Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ibs

badgerette

By badgerette
in Related Issues & Disorders

Recommended Posts

badgerette Rookie
badgerette
Posted

I'm going nuts here. I stopped eating gluten last July, but still once in awhile I get that icky-gut feeling. I get intestinal cramps (mild), and have to poop frequently all in one day. In addition, I usually feel tired. The stools are not watery.. not the most solid, but not like bad diarrhea or anything. Is it IBS? Or do I have another food allergy/intolerance? What the heck?

I want to see a doctor about all these food issues sometime this year. What kind of doctor should I see?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marilyn R Community Regular
Marilyn R
Posted

I'm going nuts here. I stopped eating gluten last July, but still once in awhile I get that icky-gut feeling. I get intestinal cramps (mild), and have to poop frequently all in one day. In addition, I usually feel tired. The stools are not watery.. not the most solid, but not like bad diarrhea or anything. Is it IBS? Or do I have another food allergy/intolerance? What the heck?

I want to see a doctor about all these food issues sometime this year. What kind of doctor should I see?

Hi Badgerette, and welcome to the forum!

I hope you start feeling better soon. Some people start developing other food intolerances. For me it was soy, dairy, corn and some of the alternate grains like gluten-free oatmeal and quinoa.

I'm ok with those foods now (haven't tried reintroducing soy or quinoa though, and probably won't). Other people have had problems with legumes and nightshade vegetables after going gluten-free.

I know it's frustrating, you have to be a food detective and try to figure out what the heck is bugging you.

Gastroenterologist is the specialty mainstream doctors refer patients with IBS to. The one I went to was a very good Doctor, but I honestly learned more on this forum then I did from him! I still see him once a year.

isasmommy Newbie
isasmommy
Posted

Hi,

I am new to the forums but I had a similar experience.

1) I would take the advise above and give your body time to heal and if it is still going on then try and see if other foods are the offending agents.

2) After 2 years gluten free I still had problems and the fatigue was getting worse. I just thought I needed to wait to heal. However, finally this last fall I ended up in the hospital after 2 weeks diarreah (with blood in it) and turned out my colon was inflamed. After subsequent biopsy it was found that I had microscopic colitis, basically similar to Celiac but in the colon for me instead of the duodenum (small intestine). It is a type of inflammatory bowel disease (IBD).

I am now taking entocort for the inflammation and after 2 weeks it is finally helping relieve that abdominal pain. It is probably unlikely that this is going on but my doctor did say that it is not totally uncommon to have more than one of these problems along with Celiac.

3) I would make absolutely sure that there is no hidden gluten. I went back and double checked chapstick + lotions that I use.

Lastly, if you are referred to a gastroenterologist they may say you have IBS if there are no signs of other inflammation. Also, have you had your vitamin D checked? I had a problem with that before it was too low and that was also contributing to the fatigue.

Hugs and I hope you feel better.

badgerette Rookie
badgerette
Posted
  • Author

Hi Badgerette, and welcome to the forum!

I hope you start feeling better soon. Some people start developing other food intolerances. For me it was soy, dairy, corn and some of the alternate grains like gluten-free oatmeal and quinoa.

I'm ok with those foods now (haven't tried reintroducing soy or quinoa though, and probably won't). Other people have had problems with legumes and nightshade vegetables after going gluten-free.

I know it's frustrating, you have to be a food detective and try to figure out what the heck is bugging you.

Gastroenterologist is the specialty mainstream doctors refer patients with IBS to. The one I went to was a very good Doctor, but I honestly learned more on this forum then I did from him! I still see him once a year.

Aha, yes, a gastroenterologist.. got it. If I meet my insurance deductible this year.. maybe... :P

Aggh I so hope I don't have other intolerance, but it's likely. My diet is already quite restricted because of the gluten and I have interstitial cystitis and I'm vegan. If I can't have legumes or anything in the nightshade family anymore... jeeeeez. Guess we'll have to wait and see! Thanks for the reply/info!

badgerette Rookie
badgerette
Posted
  • Author

Hi,

I am new to the forums but I had a similar experience.

1) I would take the advise above and give your body time to heal and if it is still going on then try and see if other foods are the offending agents.

2) After 2 years gluten free I still had problems and the fatigue was getting worse. I just thought I needed to wait to heal. However, finally this last fall I ended up in the hospital after 2 weeks diarreah (with blood in it) and turned out my colon was inflamed. After subsequent biopsy it was found that I had microscopic colitis, basically similar to Celiac but in the colon for me instead of the duodenum (small intestine). It is a type of inflammatory bowel disease (IBD).

I am now taking entocort for the inflammation and after 2 weeks it is finally helping relieve that abdominal pain. It is probably unlikely that this is going on but my doctor did say that it is not totally uncommon to have more than one of these problems along with Celiac.

3) I would make absolutely sure that there is no hidden gluten. I went back and double checked chapstick + lotions that I use.

Lastly, if you are referred to a gastroenterologist they may say you have IBS if there are no signs of other inflammation. Also, have you had your vitamin D checked? I had a problem with that before it was too low and that was also contributing to the fatigue.

Hugs and I hope you feel better.

Thanks for all the info! Glad YOU are feeling better. I hope I get there soon! I will double check my external stuff (shampoo, lotion, etc) thanks for reminding me!

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Aha, yes, a gastroenterologist.. got it. If I meet my insurance deductible this year.. maybe... :P

Aggh I so hope I don't have other intolerance, but it's likely. My diet is already quite restricted because of the gluten and I have interstitial cystitis and I'm vegan. If I can't have legumes or anything in the nightshade family anymore... jeeeeez. Guess we'll have to wait and see! Thanks for the reply/info!

Keep a log of everything you eat, along with any symptoms. Many food intolerances are delayed reaction, so having a way to know what you ate/when symptoms appeared is very important. It will help you sort out what's best for your body, as we are all different. It takes a little bit of dectective work.

There are tests for allergies, but intolerances aren't so easy. The best way to know is to keep a log.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,159
    • Most Online (within 30 mins)
      7,748
    Werae71
    Newest Member
    Werae71
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.