Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tell All

SaraM-07

Recommended Posts

SaraM-07 Newbie
SaraM-07
Posted

I am 19 years old, and in college in a small town in south central nebraska. Right before thanksgiving, I starting connecting some weird symptoms I was getting to wheat products. I mentioned it to my doctor, and they did a blood test and found nothing. I still stuck to a gluten free diet until Christmas, when I did my best to cut back, but showed symptoms again after eating it. I then continued to do a gluten free diet for 3 straight weeks before giving into a subway sandwich... and ever sense then, I have not been able to "Stay on the wagon" for more that a few days at a time.

To me this is gross and embarrassing, but when I eat something with gluten, i get horrible gas. I become bloated, and Fart uncontrollably all day! It doesn't smell too great either. I also get rashes around my eyes, they start off red, then become flakey, but last for a while. I haven't yet fully connected headaches to this, but it is something I will look out for when i get tested.

MY QUESTION:

Do my symptoms match anyone else? I cant get diagnosed till this summer being as im attending school in another state. What are some other symptoms people have? What do you eat when you can't resist the cravings? how have you stayed on the wagon?

Anythings will help! cant wait to keep up with everyones blogs!

-thanks

--"unsure" Sara

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ninja Contributor
Ninja
Posted

The other day I had to take home 2 boxes of caramel delight girl scout cookies. OMG, how I wanted even just one of those cookies so badly. I didn't and I guess that's because I was afraid of how my body would react after being (vigilantly) gluten free for 5 weeks. I definitely don't want to start over! My understanding is that your symptoms may subside within the first few weeks of going gluten-free, but that some of the nagging ones may take much longer to go away. They say a strict 3 month trial is necessary to begin feeling some of the more lasting effects.

Strangely, going gluten-free eliminated my cravings. I used to crave lots of chocolate, crackers, bread and desserts.

Symptoms vary widely

mushroom Proficient
mushroom
Posted

Just a word of caution, Sara. You are unlikely to get accurate testing if you are not eating a full gluten diet. The recommendation is the equivallent of 3-4 slices of bread for two to three months prior to testing. With no (or little) gluten intake your body stops producing the entitbodies to fight it, and antibodies is what the testing measures. Similarly, if a biopsy is ordered, no gluten means the instinal tract starts to heal, and there may not be enough damage to measure.

So you have to make a decision before summer comes along about whether you want to be tested or you want to eat truly gluten free and see if you get better.

You will find a partial listing of typical celiac symptoms here: https://www.celiac.com/articles/1106/1/Celiac-Disease-Symptoms/Page1.html

Cathey Apprentice
Cathey
Posted

To me this is gross and embarrassing, but when I eat something with gluten, i get horrible gas. I become bloated, and Fart uncontrollably all day! It doesn't smell too great either. I also get rashes around my eyes, they start off red, then become flakey, but last for a while. I haven't yet fully connected headaches to this, but it is something I will look out for when i get tested.

MY QUESTION:

Do my symptoms match anyone else? I cant get diagnosed till this summer being as im attending school in another state. What are some other symptoms people have? What do you eat when you can't resist the cravings? how have you stayed on the wagon?

Mushroom is right about the having to stay on gluten for an accurate test.

I know it's a hard discussion to indulge or not, but one you may have to decide on soon before this summer to be tested. If you decide to be gluten-free while @ school try and eat only whole foods. A good go to snack is corn tortilla chips, potato chips, salsa's, or try a great salad with the cold cuts and all good fixings in lieu of a subway, also try and find a gluten-free pizza.

I have been 100% very strict gluten free as well as our home for 4 months and I was feeling soo much better. I got accidently gluten over a 7 day period (new medication). Well, the gas, bloating is back and the big D is worst then ever. I changed medication last Friday and starting to get better.

Hope your feeling better and making good choice to feel better and get through the semester.

Weeny Newbie
Weeny
Posted

Does one have to eat 4 slices of bread a day? I usually eat one sandwich per day... Plus some cake here and there and eat whatever I want. Isn't it enough?

I will do the bloodwork in 1,5 months at the earliest... Feel terrible in my belly at this moment. It wasn't that bad in the beginning, but now I feel sick in the morning also:/

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,024
    • Most Online (within 30 mins)
      7,748
    Maus14
    Newest Member
    Maus14
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.