Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kidney Stone & Bladder Question


Ninja

Recommended Posts

Ninja Contributor

Hi,

You guys have been so incredibly helpful and patient! So thank you!

Those of you who have had kidney stones: have you ever had one stuck in the urethra? I went to the ER 2 nights ago with severe left flank pain and bladder pain. I declined the CAT scan, but the urinalysis showed calcium oxalate crystals, trace blood and elevated red blood cells. The kidney/ureter pain has stopped, but I am still left with pretty bad urethral pain (I think it's the urethra). The pain is "inside" and very low. It's pain coupled with urgency. I'm wondering if there could be a stone lodged in the urethra, or how common that is? Also, what kind of pain did you have throughout the kidney stone "process?"

Thanks so much,

~Laura :)

P.S. I hope this is the right place for this topic...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

Hi Laura, I have a 26 year histoy with stones, not so fun as you well know. 2 weeks ago I alos was having just like you described, just terrible cramping in the bladder and flank pain, both sides. Doc ran a culture on my urine, said it was contaminated and gave me a prescript for a week. The cramping and urgency in the bladder went away in that week but flank pain remained so went back in. Doc felt I had passed a stone so I was sent for a KDB x-ray which showed my existing stones (two 8 mm stones) lodged high in my left kidney were still there.....thank goodness as there no way I am passing them. I have a CT scan set up to see if they can find any in the bladder as my bladder is still tender.

I suggest that you get the CT scan as this is a closer view of everything. If one is lodged it can cause a blockage or infection. It is possible you passed the stone. If it was very small you may not have realized that it passed. The very small stones, or crystals, are not always seen in a CT scan and definately not in a KBD x-ray.

I too had blood in my urine with the last trip to urology just this week.

Urologist has put me on a low oxalate diet....avoiding spinach, nuts, black tea, chocolate, etc. Also, just from years of doing this time and time again, I would highly suggest drinking only bottled water. I have found that stops alot of the irritation to the kidney. It won't stop the stone formation. Also, there is research that has shown that taking calcium CITRATE 20 minutes before a meal and magnesium CITRATE aftr a meal will help reduce the formation of oxalate stones. We were rcently talking about this in a post I made

Annette

Ninja Contributor

Thank you for all of the information! It definitely seems to feel better if I have a full bladder. I've been drinking the filtered water from my fridge. I'm surprised it hasn't run out of water yet (lol)!

Does the pain in your bladder feel like a spasm?

AVR1962 Collaborator

Thank you for all of the information! It definitely seems to feel better if I have a full bladder. I've been drinking the filtered water from my fridge. I'm surprised it hasn't run out of water yet (lol)!

Does the pain in your bladder feel like a spasm?

The pain I was having in my bladder was some very strange intense crapping which started higher and moved into the bladder. I had never had it before. I have been off the antobiotics for the infection but bladder is still tender if touched. I have had a trailing effect before with stones where I could feel this awful pain running a line over the hips bones and down into the bladder. These stones (cystals) can be tiny but they have rigid little edges and I think that is what is so painful about them moving and I think that's probably what causes the blood in the urine. Once you've been thru it you never want to go thru it again. It's good to make sure a stone did not get lodged. Drink lots of liquids, it does help.

I would highly suggested bottled water too. Chlorine in the water was giving me continued boughts of kidney irritation. Even filtered I am not sure if it could take the chlorination out of the water. I can go several months on tap water but then it catches me, it's just not worth it.

Ninja Contributor

Thanks! I'm not sure about the water either but I'd rather be safe than sorry! The pain in my bladder finally went away yesterday. I've been drinking so much water

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,248
    • Most Online (within 30 mins)
      7,748

    Tc clark
    Newest Member
    Tc clark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.