Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Galbladder


scottyg354

Recommended Posts

scottyg354 Enthusiast

Well I have been talking to a few of you for a while about some of my issues. Just got back from my Ultrasound and HIDA scan. Galbladder is only functioning at 17%. So I guess that could explain some of my issues. Still going to get the celiac panel done, since I tend to get boils and fatigue and am still constipated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

I thought your problems really sounded like Gallbladder. When it's that low functioning they usually recommend having it removed.

If you are taking acid reducing meds they can make your GB more sluggish.

My function was at 30% when tested. I went off my acid reducer and gluten-free too, to see if it improves.

I'm not getting as much pain/nausea with mine as I was before.

A LOT of Celiacs have GB problems. I found this link here on celiac.com.

https://www.celiac.com/articles/119/1/Gall-Bladder-Disease-and-Celiac-Disease---By-Ronald-Hoggan/Page1.html

scottyg354 Enthusiast

I thought your problems really sounded like Gallbladder. When it's that low functioning they usually recommend having it removed.

If you are taking acid reducing meds they can make your GB more sluggish.

My function was at 30% when tested. I went off my acid reducer and gluten-free too, to see if it improves.

I'm not getting as much pain/nausea with mine as I was before.

A LOT of Celiacs have GB problems. I found this link here on celiac.com.

https://www.celiac.com/articles/119/1/Gall-Bladder-Disease-and-Celiac-Disease---By-Ronald-Hoggan/Page1.html

Can the gallbladder cause the skin boils, constipation and dizziness?

Meggielynn13 Rookie

I had my gallbladder out at 13%. I was fine for a few months and then my problems started again and were worse than ever. I'd suggest getting checked for Celiac because I did after all of that and I found out I have it. Now that I'm on the Gluten Free diet I'm almost 100 percent better. Good luck. It does get better!! :)

mushroom Proficient

Hi Scotty: I was just thinking to myself, Wait a minute, this Scotty has been around a long time, and he still hasn't been tested??? :unsure:

I went back to the beginning and here was your first post on the forum, a year ago:

"Ok guys. I am a 26 year old male. I was scoped about 7 years ago both on the top and the bottom, due to chest and upper abdominal issues. Doc said I had GERD and a Hiatal Hernia. Over the years my GI Health has seemed to steadily go down hill. I recently went to my GP about my GI issues and he said it sounded to him like IBS-A. he said since I was already scope within 10 years he didn't see the need to do it again, but sent me for all kinds of blood work. I was diagnosed hypothyroid as well TSH of 9.

I have some odd symptoms I would like to list to see if anyone on here has had the same issues. Here they are:

GI Symptoms:

Diarrhea

Constipation

Loose, Flat and Ribbon Stool

Left Sided Abdominal Pain (not severe but consistantly present, right underneath my ribcage)

Noisy stomach (Most on my left side and towards my lower back)

Foul Smelling gas at least 3-4 times a week

Gnawing feeling in stomach, indigestion

Excessive Gas

Other Symptoms (Possibly due to hypothyroid)

Fatigue

Anxiety/Depression/Irritable

Dry Skin (Especially Elbows and Knuckles)

Rashes (Boils)

Some Vision Issues

Cracking Skin on Feet

Back pain almost between shoulder blades and in lower back

Weight Gain

Brain Fog

All i know this is driving me nuts. I thought something was seriously wrong with me. My blood came back perfect except for my Thyroid. The hypothyroid explains a bit, but I am just curious if I could have a food allergy as well.

I am in the process of cutting out Gluten. If I feel better I will def let my doc know I want to be tested."

If you are not going to go gluten free, it is time you did a serious gluten challenge and got yourself tested, IMHO. And even if you test negative you should give totally gluten free a trial. The gallbladder is the final impetus, surely. Countless posters have had gallbladder problems, many of which resolved gluten free, but many of the posters had already lost their gallbladders before they realized that gluten was the problem all along. I have not read back on all your posts to see how much gluten you have been consuming over the past year, but just that first post alone rings enough alarm bells for me that you are at the very least gluten intolerant. And I believe you were very gluten lite when you were previously tested for celiac. And I don't know if your endoscopy included celiac biopsy but I suspect not if it was 11 years ago. You need to resolve this issue in your mind once and for all, and hopefully before you lose your gallbladder :).

scottyg354 Enthusiast

Hi Scotty: I was just thinking to myself, Wait a minute, this Scotty has been around a long time, and he still hasn't been tested??? :unsure:

I went back to the beginning and here was your first post on the forum, a year ago:

"Ok guys. I am a 26 year old male. I was scoped about 7 years ago both on the top and the bottom, due to chest and upper abdominal issues. Doc said I had GERD and a Hiatal Hernia. Over the years my GI Health has seemed to steadily go down hill. I recently went to my GP about my GI issues and he said it sounded to him like IBS-A. he said since I was already scope within 10 years he didn't see the need to do it again, but sent me for all kinds of blood work. I was diagnosed hypothyroid as well TSH of 9.

I have some odd symptoms I would like to list to see if anyone on here has had the same issues. Here they are:

GI Symptoms:

Diarrhea

Constipation

Loose, Flat and Ribbon Stool

Left Sided Abdominal Pain (not severe but consistantly present, right underneath my ribcage)

Noisy stomach (Most on my left side and towards my lower back)

Foul Smelling gas at least 3-4 times a week

Gnawing feeling in stomach, indigestion

Excessive Gas

Other Symptoms (Possibly due to hypothyroid)

Fatigue

Anxiety/Depression/Irritable

Dry Skin (Especially Elbows and Knuckles)

Rashes (Boils)

Some Vision Issues

Cracking Skin on Feet

Back pain almost between shoulder blades and in lower back

Weight Gain

Brain Fog

All i know this is driving me nuts. I thought something was seriously wrong with me. My blood came back perfect except for my Thyroid. The hypothyroid explains a bit, but I am just curious if I could have a food allergy as well.

I am in the process of cutting out Gluten. If I feel better I will def let my doc know I want to be tested."

If you are not going to go gluten free, it is time you did a serious gluten challenge and got yourself tested, IMHO. And even if you test negative you should give totally gluten free a trial. The gallbladder is the final impetus, surely. Countless posters have had gallbladder problems, many of which resolved gluten free, but many of the posters had already lost their gallbladders before they realized that gluten was the problem all along. I have not read back on all your posts to see how much gluten you have been consuming over the past year, but just that first post alone rings enough alarm bells for me that you are at the very least gluten intolerant. And I believe you were very gluten lite when you were previously tested for celiac. And I don't know if your endoscopy included celiac biopsy but I suspect not if it was 11 years ago. You need to resolve this issue in your mind once and for all, and hopefully before you lose your gallbladder :).

I did have the celiac panel last year. I pushed for it after finding this site. Unfortunately right around the time I found this site I went gluten free which was about 3 weeks before my panel. So kind of bad timing. At that point I had know idea that I was to eat gluten for a while prior. I have been eating gluten daily, so this time my results will be accurate. Only thing that showed equivocal on my last test was my Giladin/Gluten IgG at 11.

PS: What the hell is a final impetus? LOL

mushroom Proficient

PS: What the hell is a final impetus? LOL

To cut to the chase, so to speak;

get down to the nitty gritty;

wrap it up :D

Or, more specifically, the kick-in-the-butt that forces you to do something. :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



scottyg354 Enthusiast

To cut to the chase, so to speak;

get down to the nitty gritty;

wrap it up :D

Or, more specifically, the kick-in-the-butt that forces you to do something. :lol:

Suprisingly the past two days my symptoms haven't been that bad. Is it normal to have symptoms that aren't consistant? I know they are bound to come back, the only symptoms that seem to linger are the dizziness and rashes.

mushroom Proficient

Suprisingly the past two days my symptoms haven't been that bad. Is it normal to have symptoms that aren't consistant? I know they are bound to come back, the only symptoms that seem to linger are the dizziness and rashes.

Scotty, you are talking to a girl who used to eat pizza as a comfort food :D You are talking to a gal who went to the doc on Tuesday after symptoms had persisted for two months, only to have them mysteriously "resolve" overnight on Monday :o Well, not really, but so it appeared. You cannot negliect a whole year of symptomatology because of one or two days of not feeling "so bad". Why would you still be here if you were fine??

Problems with foods often depend on what you eat with that particular food or other. Eat the food on its own, on an empty stomach, and see how you react. Just the pizza crust, without all the confounding mozzarella cheese and mushrooms and pepperoni and olives and whatever-else-you-like on your pizza. Yes, it is normal to have symptoms that aren't consistent.

Finish the challenge and take the test!! And when your testing is finished go strictly gluten free :ph34r:

scottyg354 Enthusiast

Scotty, you are talking to a girl who used to eat pizza as a comfort food :D You are talking to a gal who went to the doc on Tuesday after symptoms had persisted for two months, only to have them mysteriously "resolve" overnight on Monday :o Well, not really, but so it appeared. You cannot negliect a whole year of symptomatology because of one or two days of not feeling "so bad". Why would you still be here if you were fine??

Problems with foods often depend on what you eat with that particular food or other. Eat the food on its own, on an empty stomach, and see how you react. Just the pizza crust, without all the confounding mozzarella cheese and mushrooms and pepperoni and olives and whatever-else-you-like on your pizza. Yes, it is normal to have symptoms that aren't consistent.

Finish the challenge and take the test!! And when your testing is finished go strictly gluten free :ph34r:

It's gonna be tough if my test shows up negative to try a go gluten free. I'm gonna do it though and see how I fair out.

Bubba's Mom Enthusiast

Can the gallbladder cause the skin boils, constipation and dizziness?

I don't know about boils, constipation, and dizzyness from gallbladder? I currently have C and dizzyness, but they don't know why. The C can be because of your thyroid, or along with dizzyness and skin problems *could* be from gluten?

With your history of symptoms it sure looks like Celiac to me. At the very least, gluten sensitivity?

Going completely gluten-free and staying that way might make a lot of your issues heal over time? You'd feel like a new man!

ravenwoodglass Mentor

It's gonna be tough if my test shows up negative to try a go gluten free. I'm gonna do it though and see how I fair out.

I would give all I have to be able to go back in time and have had one person, one doctor, one book or website or anything tell me to try the diet even if my tests were negative. I was a textbook celiac in all respects except one, I showed a false negative on the blood tests for celiac that the doctors kept doing over and over and over as I slowly died in front of my young children.

Please do give the diet a good strict try no matter what the tests say. In the end your body will tell you if it needs to be gluten free but you have to give it the chance to be gluten free first for a time.

scottyg354 Enthusiast

I would give all I have to be able to go back in time and have had one person, one doctor, one book or website or anything tell me to try the diet even if my tests were negative. I was a textbook celiac in all respects except one, I showed a false negative on the blood tests for celiac that the doctors kept doing over and over and over as I slowly died in front of my young children.

Please do give the diet a good strict try no matter what the tests say. In the end your body will tell you if it needs to be gluten free but you have to give it the chance to be gluten free first for a time.

Just talked to the nurse at the doctors office. She said that everything looked normal, even though she read out loud to me that my gallbladder function was abnormal. LOL. Guess I am going to wait until the end of the month to talk to the doctor. Lucky me. It is only functioning at 20%.

ravenwoodglass Mentor

Just talked to the nurse at the doctors office. She said that everything looked normal, even though she read out loud to me that my gallbladder function was abnormal. LOL. Guess I am going to wait until the end of the month to talk to the doctor. Lucky me. It is only functioning at 20%.

You, according to your sig, stilled showed some antibodies after a couple of weeks gluten free. That really was a significant finding. It isn't unusual for us to have liver and gallbladder impact and things can improve for both after we have been on the diet. If you are losing gallbladder function on gluten there is a chance you may recover normal function after you have been on the diet strictly for a bit. Do give the diet a chance before you have the organ removed.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      IBS-D vs Celiac

    2. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.