Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Can't Stay Awake...


Pandoranitemare

Recommended Posts

Pandoranitemare Apprentice

I already have problems sleeping at night due to other health issues, and now I am doing a gluten challenge I am literally falling asleep about 15 mins after I eat every meal! I end up sleeping for about an hour, at least, and I literally cannot stay awake no matter what I do, then I cannot sleep at night time, but when I do drift off I wake up about every 2 hours.

It is driving me crackers. I am eating plenty of fruit and veg, and taking multivitamins, so I really don't know what else I can do to help with the sleepiness.

Does anyone have any advice please?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

If I were eating gluten, I wouldn't be able to stay awake at all.

That was one of my worst problems. I don't think there is anything you can do to stop it while you are eating gluten. sorry

Skylark Collaborator

Coffee? Sleeping pills at night? Any chance you're wheat allergic as well as intolerant and an allergy pill would help? I don't know how I would survive a gluten challenge. :blink:

Pandoranitemare Apprentice

Coffee? Sleeping pills at night? Any chance you're wheat allergic as well as intolerant and an allergy pill would help? I don't know how I would survive a gluten challenge. :blink:

Thank you for your suggestions, I already have tried coffee, and have even tried 'Pro Plus' caffeine tabs-(neat caffeine) which are supposed to keep people awake and alert...but not me..lol.

I am on a lot of pain meds, so more pills are not really an option in case of reaction.(I get side effects really easily too)

I have always had night time insomnia, to the point that even sleeping pills don't work on me.

I always try not to sleep during the day because it makes the insomnia worse. Though in theory I am getting more sleep it is just exhausting sleeping on and off, on and off all day and all night with no decent stretch of quality sleep at all

I am just holding on to the fact that I am doing this for a purpose, and it will end...soon.(not soon enough)

If I am not diagnosed with celiac at the end of this, I will certainly be diagnosed as having lost my mind!

Skylark Collaborator

I had night time insomnia until I got onto a good multivitamin/mineral/trace and fish oil. Being off gluten so you can absorb them is probably important though...

Pandoranitemare Apprentice

I had night time insomnia until I got onto a good multivitamin/mineral/trace and fish oil. Being off gluten so you can absorb them is probably important though...

That is interesting...

I have been taking multivitamins, fish oil and calcium+vitD supplements for quite a while, but I guess it is possible that they are not being absorbed well.

Hopefully things will improve when I am done with this challenge etc and can get back on being gluten free then :)

  • 3 weeks later...
TIBZY Newbie

funny because now i have sleeping issues..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
tmarie-xxx Newbie

Yesterday after a dozen blood tests have been tested for celiac! Not what I was expecting as I believed it affected your weight? I am an average woman for my age of 42 though would love to lose some. My problems started last summer with breathlessness and then severe lethargy......my goodness sleeping has become an issue I could sleep all day and all night and still wake up and want to sleep. Feel very achy all the time, sore neck and i have a back problems but for over the last two years slowly got worse. Suffered with vertigo and that was just awful in 2010 and ever since then I have been constantly ill! I dont like to go to the docs often as i feel very patronised when i go, i mean telling them im very tired and breathless isnt too much!!!!!!

Some results came back previous saying im anemic and b12 deficient too so now on folic acid. However, after reading this forum i realised that when i eat bread or wheat just this morning as well, i suddenly become very very tired and unable to do much at all apart from sit down and practically fall asleep..........I want to live again and breathe properly again. What I'm asking is would you say that this is a celiac? Im not too sure and feel that asking my doc while waiting for results is too much to do??????/

Mateto Enthusiast

Yeah, I feel sleepy too sometimes. Only when I settle down to SLEEP, I can't. Go figure <_<

How about caffiene? Maybe instead, boost your levels of Vitamin B12???

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,609
    • Most Online (within 30 mins)
      7,748

    Gwen Gatzke
    Newest Member
    Gwen Gatzke
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.