Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Oh Boy

outthere39

Recommended Posts

outthere39 Rookie
outthere39
Posted

I usually drink water with everything, but of course that does not work with cereal. So I use soy dream, which specifically says that is gluten free. I do not get the same reactions as if I ingested gluten, but the soy drink tends to produce a knid of laxative effect. Are a lot of celiacs having problems with soy? I also have probs with corn. What are replacements can be used for Soy dream that have been easier to digested. I have been currently taking DgL, the licorice root, which I will say has taken the edge of a little.

Richard

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SadiesMomma Apprentice
SadiesMomma
Posted

Hi Richard,

Well, sometimes when people have one allergy the other sometimes just some along with them. In this case it is probably just that. I as well use water for everything and I too have an allergy to soy beverages. The reason you are reacting is possibly due to 2 reasons:

1. You're allergic to soy.

2. The equipment used is possible used with materials used with some forms of grains.

I cant remember where I read it but "Rice Dream" I was told to not even drink because of that exact reason. Maybe it is the same with the soy? I have pretty much just given up soy all together and stick to water. You may want to research a little on certain brands of rice milk and check with the companies to see if they are gluten-free and also process it on "clean" machines. meaniung not used as the same machine as somehting that can hurt you.

As for the corn allergy, it is in my case just one of those additional foods on the forbidden list. Do a trial and error. See what forms if all or just some bother you. Maybe start a food diary to see what happens when and yadda yadda. its helped me a ton!!!

Good luck!

-Heather

SteveW Rookie
SteveW
Posted

Soy is on my watch list.

I haven't isolated it yet but most of the time I eat anything with soy I get a similar reaction as you.

I use Pacific Almond Milk and haven't had any issues.It is gluten-free.

It's very good and a excellent source of calcium.

What is DgL?

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I have bad reactions to a lot of soy products but most that say gluten free and contain soy are okay for me. I try to avoid it all together. Maybe, you should try the same. Good luck!

Kristina

lauradawn Explorer
lauradawn
Posted

I was going to suggest the same thing.... the almond milk or maybe even goat's milk. Those are the alternatives I can think of. I know that the rice milk specifically says that it is made from a barley enzyme, but I don't think that is the same with soy. I don't know....

Sorry

:o

outthere39 Rookie
outthere39
Posted
  • Author

Steve, DGL is a licorice root that helps support stomach lining and intestinal contractions. I am not actually sure how to spell out the whole word..deglycyrihizinate..I think. You chew two tablets 20 minutes before eating. I has deifinitely helped with the bloating.

-Richard

SteveW Rookie
SteveW
Posted

Richard,

Thanks for the info. I've actually been drinking Yogi Egyptian Licorice Tea( recommended by dietitian) and it does help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SadiesMomma Apprentice
SadiesMomma
Posted

I thought as Celiacs that we couldnt have licorice..???????

gf4life Enthusiast
gf4life
Posted

Hi Heather,

Many licorice candy products contain wheat, but natural licorice root is gluten-free. You can get gluten-free licorice candy and the DGL supplements are good for aiding digestion, but certainly don't taste much like licorice! Read every label if you do try to get some licorice. Running Rabbit brand makes black cherry, raspberry and black licorice flavored candies. They are all gluten-free!

Richard, I am allergic to soy (I get very itchy!) and I am intolerant to dairy, so I have almond milk on my cereal. I use Blue Diamond Almond Breeze. It does have a small amount of soy lecithin in it, but not enough to bother me. Other than that, you could try Mocha Mix (original, NOT fat free). It is dairy free and soy free. I water it down. About 3 parts water to 1 part mocha mix. It makes a good milk replacement for baking as well as for cereal.

God bless,

Mariann

Aightball Apprentice
Aightball
Posted

So far, I've had excellent luck with the Silk brand of soy milk. For me, milk allergy goes along with the gluten/wheat thing, so I have to be extra careful not to get any dairy of any kind. You might try Silk.

If it keeps up, though, see an allergist. They can do a skin test for food allergies and this helped me tremendously! I am not allergic to wheat, but am intolerant of wheat/gluten.

-Kel

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,131
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.