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Rash On Wrist!

Amby

By Amby
in Dermatitis Herpetiformis

Recommended Posts

Amby Newbie
Amby
Posted

Hey there! I just recently joined and was wondering if some of you could help me. I've had celiac disease since I was 10, as well as diabetes type 1. ( I am 25 now) About 9 months ago I've gotten a really bad rash on my right wrist that itches like crazy! I went to a doctor and they gave me medicine, but it helps for a while to lighten up the redness--just never goes away. It's red, flaky and itches nonstop. I'm going to a new endo for my diabetes on Monday, and will bring up everything with her. Just thought maybe you guys could tell me if you've heard of dh on a wrist before. Take care :)

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squirmingitch Veteran
squirmingitch
Posted

DH can appear just about anywhere on the body. And I've had it on my wrists. How strict are you in your gluten-free diet? Are you getting any cross contamination?

Amby Newbie
Amby
Posted
  • Author

I've actually just started following it maybe 2 days ago (thats also why I joined). I'm hoping to see an improvment soon because it really itches and looks disgusting.

I know I should have been taking care of this but late is better than never :)

weaselfish Rookie
weaselfish
Posted

Hey there! I just recently joined and was wondering if some of you could help me. I've had celiac disease since I was 10, as well as diabetes type 1. ( I am 25 now) About 9 months ago I've gotten a really bad rash on my right wrist that itches like crazy! I went to a doctor and they gave me medicine, but it helps for a while to lighten up the redness--just never goes away. It's red, flaky and itches nonstop. I'm going to a new endo for my diabetes on Monday, and will bring up everything with her. Just thought maybe you guys could tell me if you've heard of dh on a wrist before. Take care :)

Hello Amby,

Yup, in my peak of DH I had it on both wrists, most of my forearms up to my arm pits, lower to middle back, outside of thighs, calf's and shins. I'm 54 and DH hit me hard nearly a year ago. I've been gluten-free since about the middle of December 2011 and I'm now healing ( ie, no weeping, open lesions, blistering, stinging / burning, or itching ). It's a slow process but I'm making progress.

My research and experience tells me that the ONLY way to deal with DH is to remain gluten-free and more likely than not, severely restrict iodine intake or in some cases, eliminate it all together. However, the Thyroid needs iodine to function properly. So, we are ALL individual cases and must pay close attention to how our bodies react with the above mentioned.

So, YES, DH manifests on the wrists too. Be ever vigilant and observant and you will free yourself / be able to control the affliction.

Best of luck and peace,

WF

eatmeat4good Enthusiast
eatmeat4good
Posted

I had it on my wrists too...and my face...and my calves...and my back...and the back of my neck...and by far the worst is to have it on your face. But,yes, you can have it on your wrists.

Glad you are going gluten free. The rash tends to be very sensitive to traces of gluten and the flares can last a long time. Iodine may need to be limited for healing to occur. If this is the case for you see thyca.com for how to limit iodine in your diet. The pain and itching can be temporarily relieved with benzocaine products such as solarcaine, bactine, and walgreens pain relieving ointment, all of which contain benzocaine which helps to stp the burning and itching. But nothing will heal the rash except strict gluten free diet and low iodine until the rash heals. Then you can add iodine back to your diet.

Good luck, I hope it stays only on your wrists and that it heals fast.

Di2011 Enthusiast
Di2011
Posted

I have a problem with many "gluten free" products that use wheat(gluten) as derivatives. As an example xanthan gum is often wheat derived but supposedly "gluten free" due to the process it undergoes.

It is gluten free enough for me so I avoid the gums and the 400's and 1400's additives as a strict rule.

My DH has been so bad that I tend to avoid any product with numbers in the label. This includes "flavours" (((what flavour from what original source)))0.

Amby Newbie
Amby
Posted
  • Author

Thanks everyone! It's a hard adjustment, but well worth it! I've actually seem to have more energy now.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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