Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Story


Glutiator

Recommended Posts

Glutiator Newbie

Hi,

I'm new to this very helpful forum. Greetings from Germany!

To cut it short: I'm 28 and for 12-13 years I'm experiencing a huge range of symptoms...

Anxiety, social phobias, brain fog, problems with concentration, extremely SLOW in everything I do, and always a feeling of senselessnes...

Joint pain, tooth problems, ear aches, bowel problems, infections, alcohol-intolerance, red eyes, gallbladder pain!!! . Like someone would push his fist in that area. Night sweat, non-existent libido...it was not so funny... ;)

And very very pale skin...almost unable to tan. And as a kid I had a very nice skin and tan! This always seemed odd to me...how could I have lost something like skin color?? Does this symptom sound familiar to anybody reading this??

As almost everybody here I can look back on a "doctor's office-odyssey". I have seen like 25 doctors (different departments) in that time and my sad conclusion is: 0% of them could help me. Why do I pay my health insurance contributions??? + I spent thousands for stuff I didn't need or my colon couldn't absorb!

:blink:

Now for the positive things I can say. I stumbled upon a gluten related website and I was shocked! Exactly my problems were described there...

I'm living gluten-free for 5 days now and I already feel an uplift in my mood!!! This is NO placebo! This is sooo cool! If I'm finally on the right track now, then I'm the happiest guy on this planet! :P

I hope that I will gain some pounds very soon (I'm very thin) and that my skin looks healthier...

What do you think? Do you know these symptoms? Any feedback concerning my story is appreciated!

Best regards!!

:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

Hello..and welcome!

Yes..your symptoms could be from gluten. If you want to be tested for Celiac disease you need to stay on a gluten diet until after your tests are done. For some of us, it's better to know if we have Celiac disease so we are more determined to stay on a gluten-free diet, so testing is important.

Even though you have seen many Dr.s they may not have thought to test you for Celiac disease? Most Dr.s don't think of it.

Once you've had tests done, go gluten-free no matter what the results are. Some of us have negative blood tests, but can't tolerate gluten anyways.

Good luck to you! :D

Glutiator Newbie

Thanks for your thoughts! Hmm...but I already have begun to eat a gluten-free diet and I began to feel better...if testing means that I have to eat gluten again now...then I think I will skip the test... :unsure:

Glutiator Newbie

Ah, and I have slightly "cornificated" skin on my finger joints. And the ring fingers both have these dry spots on the side. My feet are affected too.

And one psychological symptom: I cannot cry. Didn't cry for years! Does this sound familiar to you??

Best regards!

Bubba's Mom Enthusiast

Ah, and I have slightly "cornificated" skin on my finger joints. And the ring fingers both have these dry spots on the side. My feet are affected too.

And one psychological symptom: I cannot cry. Didn't cry for years! Does this sound familiar to you??

Best regards!

Gluten can affect every system in your body. It can cause a variety of neurological symptoms, like social anxiety, unusual emotions, and various skin issues as well.

Your paleness, that mentioned earlier, may be from anemia? It's not a good idea to supplement iron without having a test for anemia though. Too much can be harmful. Eat a diet rich in iron and as you heal it should start to absorb?

Glutiator Newbie

Gluten can affect every system in your body. It can cause a variety of neurological symptoms, like social anxiety, unusual emotions, and various skin issues as well.

Your paleness, that mentioned earlier, may be from anemia? It's not a good idea to supplement iron without having a test for anemia though. Too much can be harmful. Eat a diet rich in iron and as you heal it should start to absorb?

Hmm, my blood values (last year) were normal...concerning iron. I will just wait and eat as healthy as possible. (Organic and preferably unprocessed food) But I'm doing fine with my diet. I think the gluten thing is most likely the solution to my mysterious problems.

tom Contributor

...

I'm living gluten-free for 5 days now and I already feel an uplift in my mood!!! This is NO placebo! This is sooo cool! If I'm finally on the right track now, then I'm the happiest guy on this planet! :P

...

Awesome

Always great to hear of the breakthroughs. I think it's hard for a lot of ppl to imagine what a difference such common foods can make.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,846
    • Most Online (within 30 mins)
      7,748

    Fultonn
    Newest Member
    Fultonn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.