Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tired Of Eating

Strawberry-Jam

Recommended Posts

JNBunnie1 Community Regular
JNBunnie1
Posted

I can taste, but I don't taste like normal people. I can eat strange combinations of food and I taste each food separately rather than a medley. so for example I can eat guacamole on ginger snaps, or cherries dipped in hot sauce, or mackerel and avocado mashed into a paste with rice, and not think any of it is gross. My taste is also extremely insensitive it seems, while my smell is pretty decent i think. I wonder if I burnt my tongue too many times on super hot liquids. anyway my sense of smell is fine and far surpasses my sense of taste. this is pre-celiac.

It is possible that your taste will recover as you heal on the diet. Are there any particular types of tastes that you can taste strongly and still enjoy? Sweet, salty, savory?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Strawberry-Jam Enthusiast
Strawberry-Jam
Posted
  • Author

It is possible that your taste will recover as you heal on the diet. Are there any particular types of tastes that you can taste strongly and still enjoy? Sweet, salty, savory?

I can taste everything, I just don't enjoy the eating part. I enjoy sweet too much as in I eat too much sugar, but the enjoyment only lasts for the first few bites and then I just feel gross again.

I do like eating well-flavoured red meat though. And bacon fat. And bone marrow. But I still malabsorb fat if I eat too much at once :(

and @ lindamb296 -- of course you can call me Jam. That's actually my name IRL :lol:

JNBunnie1 Community Regular
JNBunnie1
Posted

I can taste everything, I just don't enjoy the eating part. I enjoy sweet too much as in I eat too much sugar, but the enjoyment only lasts for the first few bites and then I just feel gross again.

I do like eating well-flavoured red meat though. And bacon fat. And bone marrow. But I still malabsorb fat if I eat too much at once :(

and @ lindamb296 -- of course you can call me Jam. That's actually my name IRL :lol:

Well, maybe a good solution would be to just go with what makes you happy. If well-flavored red meat is appealing, a steak, burger patty, or pot roast, with a small amount of potatos or bland greens would be good. Stick a burger patty on top of a salad, help get the greens in. That's actually one of my favorite meals. Fry potatos in bacon fat so they taste good, and you get some calories and resistant starch.

It sounds like your body really wants fat, probably because you're having trouble absorbing it. A number of vitamins are fat-soluble, so your body will crave fat so that it can get those vitamins. A certain amount of dietary fat is also necessary for proper brain and bowel function. Bone broths are a good way to get the fats and nutrients you need in their most digestible form. I can give you some links to recipes for making the most nutritious broths.

When you say you feel gross after the first few bites, do you mean nausea? Trouble swallowing? Or something else?

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted
  • Author

naw it's just a mental thing.

too much fat does make me feel nauseated. I made a bone broth without draining the fat and I almost got sick off it. now I drain the fat but keep the marrow.

my eating is really disordered. half the time I'm hungry but even a nice fatty bacon slice doesn't sound good. nothing sounds good. it's a mental block I guess.

also I have reflux on and off. right now it's really bad so I hate everything. it will come and go even when my diet is constant, so I wonder if it isn't triggered by microscopic effing CC.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,925
    • Most Online (within 30 mins)
      7,748
    Nicole E
    Newest Member
    Nicole E
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Confused About Results

      By knitty kitty · Posted

      @Ginger38, Have you been checked for nutritional deficiencies, besides iron?   Celiac disease causes inflammation which results in nutritional deficiencies.   Iron needs Thiamine and the other B vitamins to make new red blood cells.   Iodine and thiamine deficiencies affect the thyroid.  The thyroid is one organ that uses lots of thiamine.   Vitamin D deficiency leads to hormonal problems, including menstrual problems.  Vitamin D needs Thiamine to activate it.   Heart palpitations and chest pain after gluten exposure can be evidence of poor digestion and a drop in available thiamine.  Consumption of any  foods high in carbohydrates can cause a drop in thiamine.  This is called high calorie malnutrition. Anxiety, numbness, tingling, acne, and brain fog are symptoms of Thiamine and the other B vitamin deficiencies.  There's eight B vitamins that all work together in concert.  They are water soluble.  They can be hard to absorb by inflamed intestines.  Vitamin A can improve acne. I suffered from all the same symptoms which only resolved with B Complex and Thiamine (in the forms TTFD and Benfotiamine) supplements, Vitamins D, A and C.  Magnesium, Thiamine and B6 Pyridoxine will get rid of the nightmares. Replenishing your vitamin and mineral stores will help heal and feel better faster.  Talk to your nutritionist and doctor about supplementing. Think about adopting the Autoimmune Protocol diet to help with SIBO and MCAS to reduce bloating and heal the intestines. @Alibu and I were just discussing diagnosis without obvious villus damage here.   This study followed people who showed no or little villi damage at first....they accrued more damage over time. Outcomes of Seropositive Patients with Marsh 1 Histology in Clinical Practice https://pmc.ncbi.nlm.nih.gov/articles/PMC4980207/ There's a move to be less reliant on endoscopy for diagnosis. Biopsy‐Sparing Diagnosis of Coeliac Disease Based on Endomysial Antibody Testing and Clinical Risk Assessment https://pmc.ncbi.nlm.nih.gov/articles/PMC12074562/
    • Ginger38
      Confused About Results

      By Ginger38 · Posted

      Okay, Thank you!! I already have thyroid problems and my total iron binding capacity is high which usually means low iron but everything else was normal, lower end but “normal” my hair falls out and my nails won’t grow without breaking but nothing is being treated iron wise.  I have started having palpitations and chest pain,  both of which seem to be attributed to exposure to gluten. I’ve also been having a lot of nightmares, anxiety, numbness and tingling, brain fog, spotting between cycles and acne. Idk if all those are relatable to gluten / celiac but I’m concerned  I’ve finally tipped my body/ immune system into a bad place. Is there anyway to detox and heal faster or treat these symptoms if related to gluten ? 
    • knitty kitty
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By knitty kitty · Posted

      @Alibu, Start with this study... High-dose thiamine supplementation improves glucose tolerance in hyperglycemic individuals: a randomized, double-blind cross-over trial https://pubmed.ncbi.nlm.nih.gov/23715873/ "Conclusion/interpretation: Supplementation with high-dose thiamine may prevent deterioration in fasting glucose and insulin, and improve glucose tolerance in patients with hyperglycemia. High-dose thiamine supplementation may prevent or slow the progression of hyperglycemia toward diabetes mellitus in individuals with impaired glucose regulation." They used 100 mg of thiamine three times a day.  They don't say which kind of thiamine was used.  Benfotiamine is my recommendation because it has been shown to promote intestinal health and helps with leaky gut and SIBO.  Thiamine forms including Benfotiamine and TTFD are safe and nontoxic even in higher doses.   The old "gold standard" diagnosis is changing.  It must be confusing for doctors as well.  I went through all this myself, so I understand the frustration of the vagueness, but set your course and watch as your health improves. Keep us posted on your progress!   P.S. here's another link.... https://pubmed.ncbi.nlm.nih.gov/39642136/
    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      @knitty kitty I see, thank you!!  Yes, basically the biopsy just said "normal villous architecture."  It didn't give any kind of Marsh score at all, but it sounds like it would be a 0 based on the biopsy report, which is why he's saying it's Latent or Potential celiac.  It's just weird because I know in Europe if I was a child, they wouldn't even do the biopsy, so how does this system make any sense?? I have had an A1c and it's normal.  I do know that I have insulin resistance, however, so there's that. Wow, thank you for all this information!!!  I have a lot of reading to do!
    • trents
      Diagnosis confusion

      By trents · Posted

      That is one issue but the bigger issue may be the human tendency to rationalize it all away without an official diagnosis such that you keep falling off the gluten free bandwagon. But there is the option of going for the gluten challenge in a more robust way and getting retested.
×
×
  • Create New...