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dailygrace28

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dailygrace28 Newbie

Hello Everyone~

I was diagnosed with Celiac Sprue on March 26th--- I'm still numb and shock. I'm 49 years old and my world is has been flipped upside down so to speak. A biopsy confirmed the disease, I've already lost 4 lbs this week. I think my body is going into shock. Not much to say just looking for some support and understanding... this is too difficult. I'm depressed and frustrated knowing this is not a temporary situation this is for the rest of my life.

Thank You. :)


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JustNana Apprentice

Oh I know...I really do.

I was diagnosed in Feb. It is a shock. I also learned I had Hashimoto's thyroid so I am still reeling too. Let me just say that the BEST thing that happened to you is to kind the wonderful, generous people on this forum.

I hope you fi d it a great help to you too. Hang in there. You are not alone.

Just curious if your labs showed celiac before you had the biopsy.

Bubba's Mom Enthusiast

Hello Everyone~

I was diagnosed with Celiac Sprue on March 26th--- I'm still numb and shock. I'm 49 years old and my world is has been flipped upside down so to speak. A biopsy confirmed the disease, I've already lost 4 lbs this week. I think my body is going into shock. Not much to say just looking for some support and understanding... this is too difficult. I'm depressed and frustrated knowing this is not a temporary situation this is for the rest of my life.

Thank You. :)

Hello..and welcome!

Most of us go through mixed emotions when DXed. It's good to know there's a reason for your symptoms, and that you can put it into remission. However, the reality that this is a diet change for life is pretty overwhelming at first?

Your brain and body will go through a withdrawl at first which makes your emotions go up and down too. Your first trips to the grocery store may be depressing. It sure was for me!

Focus on what you CAN have, not what you can't.

Shop the outer perameter of the store. That's where the good fruits and veggies, unprocessed meats, fish, eggs, and dairy are. Nuts are a great snack item.

GFinDC Veteran

Hi,

I sure know what you are talking about. It's a surprise to find to your body has permanently changed. One nice thing about celiac though is it is one condition where how you choose to live can make a huge positive difference in your health. You can learn to eat very healthily with a gluten free diet. It's just that what is healthy for us to eat doesn't include all the things that are healthy for other people. There are an awful lot of foods we can eat that are naturally gluten-free. You can find lots of ideas in the recipe section, or by searching for snacks or lunch or dinner ideas.

It can take some time to adjust and learn all the things to avoid. But the sooner you can maintain a totally gluten-free diet the sooner you will recover. One thing that can make it simpler is to avoid processed foods and stick with whole foods that you cook from scratch. A simple diet is easier to understand and there are fewer foods to be concerned about. Also the labels on whole foods are pretty short and don't take a lot of time to read. Things like whole fruit, plain meats with no glazes or breading, whole vegetables etc are good choices.

There is an FAQ at the top of each forums that has some good info.

Yes, celiac is forever, but there are many people on this forum who have had great improvements in their health and symptoms after going gluten-free. It's kind of like diabetes, if you control your diet you can do well. That's easier after doing it a while, just like anything is easier after doing it repeatedly. And we have all or are all going through the same changes so feel free to ask questions and vent as needed. We have probably done the same in the past ourselves. Welcome to our gluten-free club! :)

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      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
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