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Celiac Support Group to meet - Wisconsin Rapids Tribune


Scott Adams

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Wisconsin Rapids Tribune

The Celiac Support Group will meet 6:30 pm to 8 pm April 17 in the Water's Edge Dining Room on the lower level of Riverview Medical Center. The April meeting will be an information and sharing meeting. Whether you are newly diagnosed or have been on a ...

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    • barb simkin
      I have had a reaction to chocolate within 2 hours, severe abrupt dieherra.  With alcohol it can extend up to 12 hrs before the first reaction, but not as severe as chocolate.  I am also allergic to all fish and carry an epihpen.  
    • Scott Adams
      Welcome to the forum @oyea, have you ever been screened for celiac disease? You symptoms sound like they could be celiac disease related.
    • Scott Adams
      Since chocolate has a laxative/stimulant effect on the digestive system, similar to coffee, some people do report IBS-like symptoms when they eat it, however, as long as the chocolate is gluten-free, the cause of such symptoms would be unrelated to celiac disease.
    • Scott Adams
      Since those with celiac disease have a much higher change of having or getting additional autoimmune diseases it could definitely affect your health insurance rates. Prior to the Affordable Care Act (ACA), individuals with celiac disease could indeed be charged significantly higher premiums for private health insurance or even be denied coverage altogether, as it was a pre-existing condition that insurers could medically underwrite. The ACA's protections, which prohibit denying coverage or charging higher premiums based on health status, eliminated this practice, ensuring people with celiac disease could not be penalized financially for their diagnosis. However, this protection is not inherently permanent and is tied directly to the ACA's continued existence and enforcement; should the law be substantially weakened or repealed in the future, it is possible that a return to medical underwriting could once again allow insurers to charge individuals with pre-existing conditions like celiac disease higher premiums for their health coverage.
    • Scott Adams
      @Jmartes71, your story is a powerful and heartbreaking testament to the profound failure of the medical system to understand and properly manage celiac disease and its long-term consequences. Being dismissed and medically gaslit for three decades after an initial diagnosis is an unimaginable burden that has cost you your health, your career, and your sense of justice. The fact that a primary care physician of 25 years would offer to "fluff up" a disability claim rather than properly advocate for you based on a well-documented history is a devastating betrayal. While the positive HLA-DQ2 test offers a sliver of validation, it is infuriating that it isn't enough to end the fight, and it is completely understandable that you find this ongoing battle for basic belief and care to be utterly exhausting and deeply unfair.
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