Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Celiac?


kh395269

Recommended Posts

kh395269 Newbie

Hi, My 8 year old son has been having severe stomach pains for the last several weeks following a stomach bug. He also had a couple of bouts of throwing up. They come and go, but seem to be worse in the morning. We took him to the doctor who sent him for a cat scan for possible appendicitis and blood work for a possible gall bladder problem. Both came back negative. We now have an appt with a Pediatric Gastrointerologist later this month. The Pediatrician had recommended trying a milk free diet for a week to see if there was any improvement. There was not. My father in law (his Grandfather) is a confirmed celiac who almost died of the disease back in 1996. He was dianosed older. With little other options, I decided to try a gluten free diet with my son. Over the course of two weeks, miraculously most (if not all) of his stomach pains disappeared. There were no more complaints. Last night, he had some gluten products and the symptoms appeared again this morning. He does not have gfailure to thrive (he is eceptionally tall for his age), but is very thin, and has no diarhea. Now, to complicate things more, he takes Zhyrtec every night for allergies/hives which I read can cause stomach pains in young children (acetic acid). Currently, I am giving him 1 tsp a night, but he took 2 a night (upon an Allergist recommendation) every night for probably a year. He has severe spring (pollen allergies), dry skin patches, and he has undiagnosed hives that began last summer (the undiagnosed ones anyay). On the Zhyrtec, he has not had any hives with the exception of viral hives. Two years ago in the summer, he had a case of Cold water urticaria for teh entire summer(cold water hives which appear when exposed to large amounts of cold water). He no longer seems to be affected by cold water. However, these I believe are all signs of an Immunological problem. He was tested for gluten antibodies back in 2010 at my requset because of the hives. His IGA was normal and his TTA IGG was normal, but his IGG was high at 43. He also had high alkaline phosphatases. The allergist said he could not have a gluten problem. Is it possible that things could have changed or that he could in fact have a gluten problem? He does seem to be reacting much better to a gluten free diet, but I suppose that can also be a coincidence? I;m afarid now we won't be able to be even test him since I am keeping him gluten free, but I can't stand to see him in pain. Thanks for any input.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cara in Boston Enthusiast

Please have him continue to eat gluten until you see the GI - otherwise he will not be able to be tested for Celiac Disease.

The symptoms you describe (even the weird hives) along with the family history, all point to celiac or gluten intolerance. The fact that he feels better gluten free makes it pretty clear.

Also, an illness (stomach bug) or other stress on the body can "trigger" celiac disease to start.

My son (7) was diagnosed by blood test and biopsy last year. His only symptom (we thought) was a drastic change in behavior and about three days of stomach aches. After going gluten free, we noticed so many other changes . . . no more seasonal allergies, his dry, patchy skin on the backs of his arms cleared up, sleeps better, no more dark circles under his eyes, hair thicker, etc. etc. etc. We didn't even know these were symptoms of anything.

See if you can get the appointment moved up. The sooner he completes the testing, the sooner he can go completely gluten free and start feeling better.

Cara

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,388
    • Most Online (within 30 mins)
      7,748

    Mazelle Deaver
    Newest Member
    Mazelle Deaver
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Im not being heard by my previous doctor I had for 25 years. I switched in May of this year.I was half told of my celiac disease in 1994 and to stay away from wheat and Ill be just fine.Im not.Was on tramadel from I think 2006 til 2023.In 2007 still gluten-free had blood test and showed other food allergies. I have been avoiding and reading labels so I don't get sick.Im 54 years old, my right eye feels as if pressure ( seeing eye specialist) saw dermatologist and had skin graph was told ulcers but since I was disregarded of my celiac disease and it was previous doctor who sent me to dermatologist, its now " undetermined ".I pushed for the first and second ANA panel and negative. I had my 5th colonoscopy July 9 this year and colon looks great, BECAUSE IM gluten-free for 31 YEARS.Waiting on biopsy.My only celiac proof on medical was 2014 that i physically have, i don't have original. How do I get my new doctor to understand the severity of pain Im dealing with, daily flare ups.Exhausted and allergic to everything. Menopause has intensified, i feel but then again I had my 3rd covid in March 2023 and I can't bounce back.Pain down left leg always in the bathroom when I barely eat.Its affecting my life and frustrated with doctors not knowing.To be far my new doctor is having me see two specialist but how do I get him to understand its my false negative celiac disease????
    • Mrs Wolfe
      Thank you.  I’ll be sure to look into those. 
    • Katerific
      I was diagnosed with microscopic colitis and celiac a couple of years ago.  The GI doctor prescribed a course of budesonide, which moderately helped until I tapered off.    After a lot of ups and downs over the course of 2 years, I am finally in microscopic colitis remission.  Since I am also diabetic, I was started on metformin and Jardiance.  Metformin by itself helped moderately.  I added Jardiance and I was much better.  I stopped the metformin and relapsed and when I added it back, I regained remission.  I think metformin and Jardiance helped my colitis because they reduce inflammation in the gut.  Metformin is known to favorably modulate the gut microbiome and reduce inflammatory cytokines.  Similarly, emerging evidence supports the anti-inflammatory properties of SGLT2 inhibitors like Jardiance.  Once I was on both, the diarrhea stopped completely, even though nothing else ever worked long-term.  There is a Facebook group that can be very informative and helpful.  Look for "Microscopic Colitis and Lymphocytic Colitis Support Group.  You will find that members of the Facebook group identify other pathways to remission of microscopic colitis.
    • knitty kitty
      Hello, @Mrs Wolfe, I crushed three vertebrae moving a chest of drawers.  I take a combination of Thiamine Vitamin B1, Vitamin B12, and Pyridoxine B6.  Together these vitamins have an analgesic effect.  I think it works better than OTC pain relievers.   I also like  "Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets" .   It's all three vitamins together in one pill.  Works wonderfully!
    • knitty kitty
      It's the Potassium Iodide in the HRT pills that is triggering Dermatitis Herpetiformis and the increased IGG levels.   The thyroid is stimulated by the Potassium Iodide, which stimulates immune cells to make more IGG antibodies.   Thiamine Vitamin B1 helps the thyroid function.  I like Benfotiamine and TTFD Thiamax.  
×
×
  • Create New...