Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pretty Sure This Is Negative Results But Please Take A Look


MoMof2Boyz

Recommended Posts

MoMof2Boyz Enthusiast

for my almost 14 year old son.

(DGP IgG) 0.7 range <4.9

(DGP IgA)<.1 range <6.1

(TTG IgA) <.1 range <10.3

(EMA IgA) negative

total serum IgA 17 so from some emails last year(I had saved them) Dr. Guandalini says that an IgA of 20 or above is not considered IgA deficient...so going by 17 this would be considered defecient?? ages 3-13 range is 41-395 and ages 13 to adult range is 44-441

looks like he had some gene testing done

DQ2- DQ8- increased risk <0.1x relative risk extremely low

food allergy panel came back

milk(flagged high)

peanuts(flagged high)

wheat(flagged high)

all the other stuff he was right at the range given so like for egg white his results were <.35 and the range is <.35

so any comments any advice?? our next appointment isn't for a few weeks and the nurse told me not to read too much into this. the food allergy results make total sense, drinks lots of milk, eats pband j for lunch on wheat bread everyday....

oh and just in case, my ds ismoody/figure itmight be hormones though, very thin think stick thin, no body fat(doc even notes 0% body fat on his medical chart) constipation, redness under his eyes, low iron. thanks again for any help


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

With an IgA of 17 and a range of thirteen to adult 44 - 441, your son is IgA deficient (and even with Dr. Guandalini adjusting the range to less than 20, he is still under.) This means to me that his IgA testing is not valid and they need to do the IgG versions. His symptoms certainly sound spot on for celiac. Is there any way of getting retesting sooner with the IgG versions? Ask the nurse.

Skylark Collaborator

What shroomie said. He needs TTG-IgG and EMA-IgG. He needs to continue eating wheat for valid testing so you might want to call and see if they can arrange the labs sooner.

MoMof2Boyz Enthusiast

ok, thank you both, I will ask for those versions of the test.

can someone tell what the difference between these are? (the IgG compared with the IgA thanks!)

Skylark Collaborator

They are different types of antibodies. Your son doesn't make enough IgA for the tests to be valid, whether or not the doctor decides to diagnose him as IgA deficient. That means he needs the IgG version of the test.

MoMof2Boyz Enthusiast

Hi everyone! Just one more question, if my son's DGP IgG is positive(but not a very high positive) would that indicate celiac?

Skylark Collaborator

Yes, that would indicate celiac. DGP-IgG is very specific.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MoMof2Boyz Enthusiast

Yes, that would indicate celiac. DGP-IgG is very specific.

Really?!! In your opinion, is a DGP IgG of 0.7 range <4.9 a positive? just trying to understand this all better.

thanks!

Skylark Collaborator

Really?!! In your opinion, is a DGP IgG of 0.7 range <4.9 a positive? just trying to understand this all better.

thanks!

Sorry, I thought you were asking theoretically or maybe about someone else's test. Your son's test is not positive at all. It is negative, and low-negative at that. 0.7 is considerably below the 4.9 cutoff.

MoMof2Boyz Enthusiast

Sorry, I thought you were asking theoretically or maybe about someone else's test. Your son's test is not positive at all. It is negative, and low-negative at that. 0.7 is considerably below the 4.9 cutoff.

thanks, sometimes this stuff can be hard to understand :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Judy Wysocki commented on Scott Adams's article in Cookies
      2

      Gluten-Free Cranberry Pistachio Snowball Cookies

    2. - Scott Adams replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      CT with contrast.

    3. - Scott Adams replied to Shellly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      New labs are now very elevated


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
    • JoJo0611
      I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.