Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rotation Diet


beadlavada

Recommended Posts

beadlavada Newbie

I have a rather storied medical history, the Reader


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

I have a rather storied medical history, the Reader’s Digest version being that I was confirmed via biopsy as having mitochondrial disease (adult onset). Because a significant portion of my symptoms are systemic and GI-related (multiple dietary intolerances), I recently began to suspect that my issue began in the GI tract and could be fixed.

I have been following a strict rotation diet since March 1st. I avoid: gluten, corn, soy, dairy, nuts, beef, egg, ground meat (any), pork, sweet potato, rice, tomato, peach, and pear. I started avoiding gluten two years ago, and the other intolerances have just crept up over time. For the first 2 weeks of the rotation diet I also avoided fruit, suspecting candida, but I had a VERY hard time. Headaches, blood sugar dropping to the 60s, irritable, etc. Now, I am eating fruit in the AM or on an empty stomach, but I have avoided grains this whole time.

My energy levels have improved. I am doing significantly better than I was, on average, 2 months ago (when they were suspecting epilepsy and hospitalizing me), but I would think that if I had removed all trigger foods and was rotating, I would be symptom-free by now, right? Everything, and I do mean EVERYTHING I put into my mouth causes a reaction. Even plain, whole foods. Nausea, headaches, fatigue, heavy eyes, etc. It’s ridiculous. I hate food. I just wanted to be TPN’d at this point. I am SO over this nonsense.

Supplement-wise, I am taking Metagenics probiotic (60 billion organisms), L-glutamine powder (1 tsp), Magnesium, and Zinlori (zinc supplement) to try to heal my leaky gut. My functional MD has suggested a CDSA (comprehensive stool panel) down the road (very expensive and I am on disability) and a DMSA test to look for heavy metal toxicity.

I’m frustrated. Really. Frustrated. I’m exhausted and wondering just how long this is supposed to take and how we will ever figure out what’s really going on. Any input is appreciated.

Have you tried an elimination diet??? Strictly eliminating foods you are intolerance to for a period of time will allow the gut to heal. Once some healing has taken place slowly reintroduce foods and rotating them will allow healing to continue .

beadlavada Newbie

I don't understand how an elimination diet would be different from what I'm doing. I'm already avoiding the foods with known intolerances and avoiding the others as they bother me. Is there another method I'm not aware of?

  • 2 weeks later...
leivasfamily Newbie

My daughter is going through similar issues and wondering if you came to a head with your health problems. Any suggestions that have helped you that you can recommend? I hope you are doing better than when you last posted. :-)

  • 6 months later...
gfreejz Rookie

I found this great site on rotation diet Open Original Shared Link

It talks about how with leaky gut, if you eat the same safe foods all the time, you could develope more reactions.

"When you first start a rotation diet, you may have to modify the diet based on your reactions. If you find that you are reacting to foods that you previously did not suspect to be problems, eliminate these foods from your diet, at least temporarily, and replace their food families with others from the “extra foods” section. This situation is sometimes called “unmasking” because on a rotation diet the days off from a certain food allow your level of antibodies to that food to decrease. Then when you eat the food again several days later, there no longer are “masking” antibodies to camouflage your reaction to the food.

Your health is important to all of the members of your family, so take the time to make some special treats for yourself as well as for other family members. For example, make yourself a large batch of “special” pizza and freeze some. Then the next time your family or friends decide to order pizza, you will be prepared with a pizza you can eat. Freeze portions of allowable desserts for each day of your rotation cycle. When there is a birthday party or when others are having a treat, pull your dessert out of the freezer and join the celebration.

Variety is important for “mental health” as well as for nutritional reasons. It is especially important for children. Although they will be eating the same combination of foods every fourth or fifth day, these foods should be in different forms so that they don’t get tired of what they are eating. Often, changing a recipe very slightly and calling it by a different name will improve a child’s attitude toward that food.

If you eat out or travel, you may find it difficult to stay on rotation. It is better to eat a food to which you are not allergic but which you just had yesterday than to choose a food to which you are allergic. This advice also applies in other situations. For example, in the pizza illustration above, it would be better to eat your special pizza from the freezer even if it is made with the same grain you ate yesterday than to eat the “normal” pizza. "

I had leaky gut when I first came about my gluten problems and here is my two cents. First no gluten ever! And I mean not even the smallest cross contamination. Look at everything you eat or cook with. MSG is bad for me and most with gut problems. Butter seems to give me a cross reaction and is another I avoid with a passion. Replacing it with olive oil has been a turning point for me. Get vitamin testing, I take a b complex and its amazing how taking the vitamins you need can help you feel better. Probiotics are a must. Probiotics can be hard on your body at first and I started of taking a low dose for a few days then stopping for a few more days to give my body a rest. Then I could take the normal dose. When I had a leaky gut and an inflamed gut, my whole body was out of whack. I would react and could not trace back to something obvious. My stomach was very sensitive to spices, sugar, fats, tomatoes and others. I think I got some food poisoning a few times that was rough. I had to eat every few hours or I would get weak and faint feeling. I still bring food with me where ever I go and drink lots of good filtered water. Sometimes after alot of D, I also put a pinch of sea salt and few pinches of sugar in my water cup to help it absorb better.

I also would make sure the vitamins you are taking are not hurting you more than helping. I might try a elimination diet of your supplements and make sure they are ok. I also gave up my caffine habit which has helped some as well. Also, watch how much sugars you eat and how. Sugars and carbs digest faster and spike your blood sugars and stimulate your digestion. Your diet has to be balanced, you need fat, you need protein, you need vitamins and minerals from whole food sources. I'm about two years in and remember what I call good days and bad days. It was a roller coaster ride. On bad days it sometimes seemed better to not eat at all. On bad days its better to eat plain simple foods like rice or risoto. I thought I was reacting to potatoes but realized it was the butter they were fryed in.

Search this site for foods that heal, or anti inflammation diet for more good info.

Good luck it does get better. You must maintain a clean diet that is all your own. Start a food diary and become aware of what you eat and what your body is telling you. Find a doctor that is willing to listen and is knowledgeable in your own unique circumstances. Take care of yourself. Get lots of sleep, decrease stress, slow down, and take a epson salt bath.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    3. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    5. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748

    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.