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Igg Tests Back


Littllemel

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Littllemel Apprentice

I am not confirmed Celiac but went gluten free due to a Endoscopy that showed lower intestine damage. 2 Biopsies taken came back negative.

I have been gluten free since 3/2/12 and then started having all sorts of food intolerance issues. I stopped all corn/soy/yeast/dairy/avacados etc and I keep a diary. I have nothing processed. I am down to veggies, fruits and meats in their simple forms. I get poisoned at least every 3 days. I was on a rotation diet but I was getting burned left and right so I stopped and just started eating some safe foods but I still got burned on Tuesday of this week. Yesterday I got my IgG test back and I am sensitive to almonds, eggs, bananas and cranberries but no gluten/wheats. I had stopped eggs and almonds 2 weeks ago but I was having a bit of cranberries and bananas up until yesterday. Today I have not had any, i behaved all day. The only thing that bothered me today are fats. If I don't eat them I get terrible and unbearable pains in my back. So I have been drinking little bits of EVOO here and there with food today to add it back into my diet a bit but my stomach burns when I do it.

I am so terrified of getting sick again. My major symptom is dehydration as soon as I fall asleep, it's like I dry up like a raisin immediately and my kidneys hurt from it so bad. It's like every organ inside me dries up and I can feel it and I get very sore on the inside for days and then I get burned again and its just a nightmare over and over again. Of course this causes insomnia, anxiety and night sweats with cold and hot flashes. I fear I can't live through much more of this. I am down to 100lbs and steadily dropping because I am afraid to eat.

A urine test a week ago confirmed blood in my urine but they thought it was a kidney infection and sent a culture out to the lab that came back negative so that was the end of that. I saw my new GI tuesday and she also noticed blood in my urine. She took 6 viles of blood for more celiac, IgG tests and liver tests. I have a HIDA scan scheduled tomorrow if I can stay unsick until then. I wonder if the radioactive dye will make me sick...

I am also nervous that the EVOO burning may cause me to get sick but I won't really know until I fall asleep tonight. (wierd huh?) I saw my ND yesterday and I was so sick but she made me this remedy that has really helped with my symptoms this time around but its made from arsenic and I am not sure I want to keep going to her and paying for poison to treat my problems. I would have to pay $70 for each dose from her as well.

My question is... Do you think just stopping the cranberries and bananas will stop me from reacting? Or am I doomed? I still rotate my dinners and lunches but I stick to safe similar foods during the morning and snack times because of advise from my ND. Is that bad? Almost every thing i eat is on the IgG test and shows as a safe food.

If my gallbladder is bad and they remove it, will my weird intolerance symptoms change?


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pricklypear1971 Community Regular

I almost hate to ask because I'm sure you've posted before... have you looked into salicylates, amines, histamines - those types of intolerances? You seem to be reacting in an unpredictable pattern, to many foods - and sometimes those types of intolerances are the underlying issues.

Littllemel Apprentice

How can I test for those?

pricklypear1971 Community Regular

As far as I know, by food diary and elimination.

Here's a link about histamines/amines. I know there's better info about it, just not sure where. Open Original Shared Link

Here's one about salicylates. Again, I know there's more and better-search the board you should find plenty. Open Original Shared Link

Juliebove Rising Star

I have no clue but I see no need to eat cranberries or bananas. If you think they are causing a problem then stop eating them.

If you do have gallbladder trouble then eating fats will make it worse.

TeknoLen Rookie

I would drop the arsenic supplement and consider replacing with a soothing (lower-risk) herbal tea. Milk thistle, ginger root, pau d'arco, dandelion root and goldenseal are just a few that are said to have digestive system benefits. Milk thistle is said to be good for reducing liver and gall bladder congestion so that might one to check out first. Some have potential side effects and rx medication interactions so you may want to read up before you try. Good luck.

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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