Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And B-12


kendick

Recommended Posts

kendick Newbie

My oncologist has told me that I am annemic and need B-12 in my system. He explained that B-12 will not be absorbed in my stomach so I don't get any B-12 in my bloodstream. He put me on shots. Once per week. He says probably for the rest of my life. Ive always been the low-metabilism type guy. Always tired, etc. Does anybody have experience with this? Will this help me to get my energy back that I lost years ago? He also told me that I've probably had celiac for many years. I'm 54 and havent felt great for a long, long time. So, I was just wondering if anybody out there has the same issues !!Thanks. This is my first time here. I was just diagnosted last month so Im still trying to figure everything out with this problem......


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ziva Newbie

I am relatively new to Celiac and am trying to figure out what this all means for me also. I didn't know there was anything wrong with me until Dec. when a GI doc mentioned anemia during a routine colonoscopy at 50. As I have read more about Celiac, I can say I can identify with some symptoms and defiantly have some absorption issues resulting in anemia, Vit D and recently told of B12. On Wedn. I was put on weekly B12 shots for 24 weeks. I thought weekly seems a little different than what I heard others say, but I'm going to give it a try. My husband was put on the same amount but once a month. Different doctor than mine. From what I have read, it seems the shots are the best way to go because of the absorption issues with people with Celiac. I'm sure all people are different, but I had the impression that once off gluten and your intestines heal, your body would then absorb the nutrients and you wouldn't have to stay on the shots. As I said, I am new and learning as I go.

Good luck to you

raea2002 Apprentice

I have gotten 2 B12 shots. I don't know if it is from them or from going gluten free that has helped me. I guess it could be a combo of both. I hope you can get your energy back because I know how miserable it is without it. Hang in there. I do know that it takes time.

stef-the-kicking-cuty Enthusiast

I'm taking "sublingual liquid B complex with B12". It will go into your blood stream from under your tongue, not through your stomache or intestines. I guess that would be the alternative to the shots, but I don't have medical insurance.

mushroom Proficient

I initially took B12 shots once a month; I still take them every three months although now four years post gluten free. Some of us, it seems, do not fully recover our absorption ability, and while I am obviously getting some from my food I still have to supplement. Same with everything else :(

kendick Newbie

I initially took B12 shots once a month; I still take them every three months although now four years post gluten free. Some of us, it seems, do not fully recover our absorption ability, and while I am obviously getting some from my food I still have to supplement. Same with everything else :(

Looks like Im not the only one with the problem. I am taking the shots once a week and was told by my oncologist that it will probably be a life long treatment.. Doesn't sound like much fun. But, as a cancer survivor, I know it could be alot worse. I'm just wondering how long before I start feeling better. Does it take a few weeks for the shots to take effect?? Thanks to everybody. I am learning as I go, for sure.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Challenges eating gluten before biopsy

    2. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof

    4. - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Challenges eating gluten before biopsy

    5. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,459
    • Most Online (within 30 mins)
      7,748

    Jackir
    Newest Member
    Jackir
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
    • knitty kitty
      What exactly are you taking from doterra? 
    • Xravith
      Hello, I'm back with a second post. The first time I wrote, I mentioned the possibility that my symptoms were related to gluten. I did a genetic test in which I resulted to have the predisposition, but the results of my blood test were all negative without IgA deficiency. My doctor suggested that it was necessary to do a biopsy to rule out Celiac Disease. However, he said, because of my family history and my symptoms were strongly related to gluten, it was very possible that my Celiac Disease is developing and my antibodies may become positive in the future.  I tried to continue the gluten challenge for the biopsy, around 2-3 g of gluten per day, but it was enough to make me feel worse each passing day. I started developing anemia and other mild nutritional deficiencies, and it was really affecting my daily life. I'm a student and exams are coming up, so my doctor suggests me to strictly remove gluten until I feel better so I could study without problems until I could do the gluten challenge when I come back home for holidays. Since going gluten free, I feel like a completely different person. My mind is clearer, I have no stomach pain during the day, and even my nails improved within just two weeks. It could also be Non-Celiac Gluten Sensitivity, but of course I’ll need the biopsy to know for sure. I was wondering, has anyone else had negative blood tests at first and later tested positive? And has anyone struggled with the gluten challenge because of symptoms?
    • Jmartes71
      Doterra is a life saver and yes I feel like im waiting because Im getting yes you are celiac, no your not celiac. Im so FRUSTRATED, exhausted and tired of explaining to medical why I feel this way.Im stressed because my body isn't feeling well.Yes I am and no it's not just a food allergy as downplayed with doctors Ive seen.I even went to the " celiac  specialist " Dr Fernandez-Becker who down played my ailments and stated im not and then yes I am I even had one her " care team" ask my why do you want that diagnosis. UNMMMMM. I don't want it, its been my life confirmed in 1994.Menopause intensified extra sensitivity and medical has down played my sibo, ibs, CELIAC, now im having skin and eye issues. I thought help was available but its been a complete medical disaster. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.