Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got My Son's Bloodwork Back


Mjohnson73

Recommended Posts

Mjohnson73 Apprentice

Hey all...

Well my Dr. just called me and let me know that she is calling the GI docs cause she is sure how to interpret his results (I suppose it is good she is calling someone else for a second opinion)....

The tests she did and their results were the following:

(I think I got the IgG and the IgA results are the right way around....they might be reversed....trying to remember what she said but they are both high)

tTg: Normal (I think she said it was a 3)

IGg Antibodies: High -- Normal range is 0-19..his was a 48

IgA Antibodies: High -- Normal range is 0-19... his was 124

Sed Rate: normal 39

CBC: Everything seemed fine...

She said that I should definately try him on a gluten-free Diet and see if that does anything... and she is going to talk to the GI guys (as she said) and see what they think....I guess she has another little child that has similar (Not exactly the same) but similar results and she wants to see what they think...

I am going to put him on the gluten-free diet (he had gluten-free cereal this morning and liked it :) )

so any ideas ?

--Maya


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

I think it could stll be celiac disease...the GI doc may want to biopsy him if he suspects celiac disease. If you are against having the biopsy done then I'd just start him on the diet right now. He's obviously gluten intolerant even if he doesnt have celiac disease or visible damage yet. He is symptom free right...just small? Starting him on the diet could definately improve his growth rate. If you'd like him to be biopsied then you should hold off on the diet.

Guest nini

sounds like it...

see how he does on the diet... good luck!

I've got a five year old on the diet, so if you want any hints or ideas from the mom of a very picky eater, just ask!

Carriefaith Enthusiast

I'm not a lab tech or a doctor but from those results, I would guess that he could be in the beggining stages of celiac disease or he may have a gluten intolerance. The tTg test is highly specific for celiac disease and it was normal, but the fact that the other two tests were highly elevated indicates that there is a problem. If the doctors do not want to do a biopsy, I would start the gluten-free diet. If you need help or ideas don't hesitate to ask :)

tarnalberry Community Regular

The fact that his tTg was low just means that there hasn't been significant damage to the intestines at this point. The fact that what I presume are his anti-gliandin antibodies (both IgA and IgG) are high, shows that he is reacting to gliandin, however, and should be gluten-free. As noted, though, if you're going to go with a biopsy, he'd have to go back on gluten for that.

Mjohnson73 Apprentice

Thank you all for the replies...

He is very picky and was a little upset when I told him that he couldn't have mcdonald's chicken nuggets anymore... (he equated that with no mcdonalds at all...) i told him there were other things he can eat there... and he seemed to be ok with that... we haven't been to mcdonalds in a while anyways....

he did have gluten-free Chicken nuggets last night and he seemed to like them... which is a good thing....

today I sent him to school with a Peanut butter and fluff sandwich on Kinnikinnick brown sandwich bread, a pack of carrots and some juice....

hopefully he will eat his sandwich.....

we will see....

gotta run now...

--Maya

Jnkmnky Collaborator

Peanut butter and fluff...oh, My kids would trade me for you in a heartbeat. :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mjohnson73 Apprentice

ROFL....

He normally gets bologna and cheese sandwich, or PB&J or PB&F sandwich, carrots, fruit snacks or chips and a juice box...

I am getting him a thermos today when I go to walmart.... tomorrow he is having baked beans and hotdogs...just gotta find a gluten-free baked beans.....anyone know of one?

and he can have mac and cheese that i make... (quinoa pasta and velveeta)....

well...

I am on my way to wal-mart this morning to get him a thermos...and some other things I need....

*HUGS* to you all!

--Maya

lbsteenwyk Explorer

All Bush's baked beans are gluten free - except for the chili beans, if I remember correctly.

Mjohnson73 Apprentice

ok thanks!

I think i have some of those in the cabinet :)

--Maya

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.