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Gf In Ny?


IrishGirl71

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IrishGirl71 Rookie

I hear a lot of talk about people starting Celiac support groups, etc.

I'd just love to talk to some people regularly who are living gluten-free -

particularly people in Long Island, NYC, anywhere nearby...


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celiac3270 Collaborator

About 200 people in NYC area:

Open Original Shared Link

Or join the Westchester Celiac Sprue Support Group -- they sometimes have dinners and stuff in Manhattan, an annual picnic in Westchester somewhere, and meetings scattered.

Cory Newbie
I hear a lot of talk about people starting Celiac support groups, etc.

I'd just love to talk to some people regularly who are living gluten-free -

particularly people in Long Island, NYC, anywhere nearby...

<{POST_SNAPBACK}>

I may not have to live gluten-free, but my girlfriend does. I am in norther NY. There are support groups here. Let me know if you want me to put you in touch with any of them.

lindalr Newbie
I may not have to live gluten-free, but my girlfriend does.  I am in norther NY. There are support groups here. Let me know if you want me to put you in touch with any of them.

<{POST_SNAPBACK}>

I live in central NYS. There is a support group in Utica area, as well as, in Syracuse and other places. Some are just starting off the ground.

You can find one on the web or get in touch with a support group in existence.

There should be several groups in the NYC and LI area by this time.

GFKryptonian Newbie

Whats up guys..i just signed up for this board because my mom told me about this site ;] I am 20 years old from Long Island, NY. Although I am currently living in Providence, Rhode Island at JW University. I was diagnosed with celiac disease about 5 years ago. I never knew there was a celiac site or support groups, or that this many people had the disease!

Cory Newbie
Whats up guys..i just signed up for this board because my mom told me about this site ;]  I am 20 years old from Long Island, NY.  Although I am currently living in Providence, Rhode Island at JW University.  I was diagnosed with celiac disease about 5 years ago.  I never knew there was a celiac site or support groups, or that this many people had the disease!

<{POST_SNAPBACK}>

There are more people than most realize. Not only is this site for the ones that have Celiacs but for the families and love ones that deal with it every day. It is benificial to all of us to be able to talk out ideas. I am from NY but upstate. There are others in your area surely. Check with the local dr office or hospitals they usually have ideas on where to go to meet others that have celiacs.

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    • Scatterbrain
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    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
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