Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gf In Ny?

IrishGirl71

Recommended Posts

IrishGirl71 Rookie
IrishGirl71
Posted

I hear a lot of talk about people starting Celiac support groups, etc.

I'd just love to talk to some people regularly who are living gluten-free -

particularly people in Long Island, NYC, anywhere nearby...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

About 200 people in NYC area:

Open Original Shared Link

Or join the Westchester Celiac Sprue Support Group -- they sometimes have dinners and stuff in Manhattan, an annual picnic in Westchester somewhere, and meetings scattered.

Cory Newbie
Cory
Posted
I hear a lot of talk about people starting Celiac support groups, etc.

I'd just love to talk to some people regularly who are living gluten-free -

particularly people in Long Island, NYC, anywhere nearby...

<{POST_SNAPBACK}>

I may not have to live gluten-free, but my girlfriend does. I am in norther NY. There are support groups here. Let me know if you want me to put you in touch with any of them.

lindalr Newbie
lindalr
Posted
I may not have to live gluten-free, but my girlfriend does.  I am in norther NY. There are support groups here. Let me know if you want me to put you in touch with any of them.

<{POST_SNAPBACK}>

I live in central NYS. There is a support group in Utica area, as well as, in Syracuse and other places. Some are just starting off the ground.

You can find one on the web or get in touch with a support group in existence.

There should be several groups in the NYC and LI area by this time.

GFKryptonian Newbie
GFKryptonian
Posted

Whats up guys..i just signed up for this board because my mom told me about this site ;] I am 20 years old from Long Island, NY. Although I am currently living in Providence, Rhode Island at JW University. I was diagnosed with celiac disease about 5 years ago. I never knew there was a celiac site or support groups, or that this many people had the disease!

Cory Newbie
Cory
Posted
Whats up guys..i just signed up for this board because my mom told me about this site ;]  I am 20 years old from Long Island, NY.  Although I am currently living in Providence, Rhode Island at JW University.  I was diagnosed with celiac disease about 5 years ago.  I never knew there was a celiac site or support groups, or that this many people had the disease!

<{POST_SNAPBACK}>

There are more people than most realize. Not only is this site for the ones that have Celiacs but for the families and love ones that deal with it every day. It is benificial to all of us to be able to talk out ideas. I am from NY but upstate. There are others in your area surely. Check with the local dr office or hospitals they usually have ideas on where to go to meet others that have celiacs.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,542
    • Most Online (within 30 mins)
      7,748
    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.