Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Be Cd?

Original

Recommended Posts

Original Newbie
Original
Posted

For the past 5 months or so I have been experiencing some strange GI problems that have gradually worsened over time. I started out just feeling bloated after I ate and sometimes feeling the urge to go to the bathroom almost all the time even though I knew I didn't really need to go. Then it progressed into having many bowel movements a day about 4 or 5 at the least. But I do not have diaherra but the stool is still weird. Sometimes light and sometimes with a weird clear coating over it. I also get very very bloated and gassy from eating even small amounts of food.

I also get headaches, have a chronic sore throat, and get dizzy very easily. ( I think that may be low blood pressure though.)

I also get severe pain in my lower right abdomen that sent me to the ER. The doctors their thought I had a appendicitis but I didn't! I wish I did because I would be better now :( But oh well.

I also have become extremely anxious because I am always worrying that I won't be able to get to a bathroom quick enough or that I am going to begin to start feeling like I need to use the bathroom. I don't know what this is but it is getting unbearable. I am a college student right and have been missing class because I feel sick or get highly anxious about becoming sick in class. Sometimes it gets so bad I practically have a panic attack. I am constantly on edge and on bathroom watch and it is having a very negative effect on my life.

My GI Dr. had me go through a barium series of my small intestine but it came back normal. I also have fluid around one of my ovaries. I don't think that has anything to do with my stomach problems though.

I was diagnosed with IBS. My doctor prescribed me Hyoscyamine but it doesn't seem to be working. He also prescribed me fiber pills.

What do you think?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Sounds very similar. I am not a doctor and don't want to interfere with what you have been told to do but.....if you DO have Celiac Disease, the fiber pills will only make your symptoms worse.

Ask your doctor to give you a blood test for celiac disease, it is not always conclusive, but it may give you a place to start. Other people here on the site can clarify what the blood test is called.

Keep monitoring this web site and you will gain alot of knowledge from many experienced people. Perhaps, going on a gluten-free diet would help your symptoms. It will not hurt you even if you don't have celiac disease.

If I know that I have to be somewhere and can't get out of going, I will not eat anything beforehand. This seems to help me alot.

Good luck and keep reading these posts

Lisa B.

KaitiUSA Enthusiast
KaitiUSA
Posted
My GI Dr. had me go through a barium series of my small intestine but it came back normal. I also have fluid around one of my ovaries. I don't think that has anything to do with my stomach problems though.

Those barium series are not good for detecting celiac. You need to first get a complete blood panel for celiac which includes the following:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

Sounds like celiac could be a possibility.

Lisa Mentor
Lisa
Posted

I also wanted to add to my post that if you need to be in class, try Imodium Advanced. It is at most grocery stores and it will help you get through your classes and relieve some of the stress you have in sitting in class for hours. Stress will add to your diar. issue.

Do go look into a blood test for celiac disease.

We have all been there and you are in very good company.

Lisa B.

Original Newbie
Original
Posted
  • Author

I also wanted to add to my post that if you need to be in class, try Imodium Advanced. It is at most grocery stores and it will help you get through your classes and relieve some of the stress you have in sitting in class for hours. Stress will add to your diar. issue.

Lisa,

I don't think Imodium will work because I don't usually actual need to go to the bathroom (well some of the times i do) but the other half of the time its just a urge and then I don't go. This situation is making me feel like I am going to have a nervous breakdown! I am already a anxious person by nature but whatever is going on with me is making it much worse. I am actually thinking about taking the semester of school off so i can figure out what is going on without the stress of classes. Also, I am out of state so my Dr's aren't where I am at school.

Guest DanceswithWolves
Guest DanceswithWolves
Posted

My symptoms really kicked in when I relocated and took on a new job. I started losing weight dramatically. I think stress or anxiety can be a trigger. I also felt guilt and nervousness. I never even considered celiac disease, but I had an emotional breakdown in front of my boss/friend after a few sitiuations came to my attention about the job...so I packed everything up and moved back to Pennsylvania.

I had the bloating too at first. I was taking so many acid reflux pills almost every day that I think those pills made me feel worse. Do you get chills? Dry hands?

Original Newbie
Original
Posted
  • Author

I do get chills. I dont have dry hands but my lips are always really dry. Whatever this is it really started to get out of control when I went to Europe this summer. Before it would come in go but it is now constant.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


weaverwake Newbie
weaverwake
Posted
Sounds very similar. I am not a doctor and don't want to interfere with what you have been told to do but.....if you DO have Celiac Disease, the fiber pills will only make your symptoms worse.

Ask your doctor to give you a blood test for celiac disease, it is not always conclusive, but it may give you a place to start. Other people here on the site can clarify what the blood test is called.

Keep monitoring this web site and you will gain alot of knowledge from many experienced people.  Perhaps, going on a gluten-free diet would help your symptoms.  It will not hurt you even if you don't have celiac disease.

If I know that I have to be somewhere and can't get out of going, I will not eat anything beforehand.  This seems to help me alot.

Good luck and keep reading these posts

Lisa B.

<{POST_SNAPBACK}>

tarnalberry Community Regular
tarnalberry
Posted
I was diagnosed with IBS. My doctor prescribed me  Hyoscyamine but it doesn't seem to be working. He also prescribed me fiber pills.

What do you think?

<{POST_SNAPBACK}>

Based on that dx alone, you *should* have already been tested for celiac disease. I'm sure you weren't, but IBS is supposed to be a diagnosis of EXCLUSION, meaning they test EVERYTHING else first. They never test for celiac disease, though. :-( If you're still eating wheat, go back to your doctor and find out if you had the full celiac panel done (and what your scores were if you did), and if you didn't, get that test done. IBS is the most common mis-diagnosis of celiac.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.