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Please Help Me With Diagnosis

sadsickgirl

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sadsickgirl Newbie
sadsickgirl
Posted

Hello everyone,

I'm mainly after Australians advice, specifically those in Sydney that can recommend some doctors that understand coeliac disease. I'm having a terrible time at the moment. Basically I've tested negatively for the blood test a number of times but I feel like I may still have coeliac disease and want to potentially have a biopsy done. The problem is there are no doctors that will take me seriously when I suggest this and say that if the blood test is negative then I don't have coeliac disease and theres nothing to worry about as I'm not really skinny.

I don't think my symptoms are classically coeliac disease but I'm so sick of feeling awful all the time I want to get this investigated.

- Severe hair loss - last 8 months.

- I have severe fatigue, tired all the time for the past 3 years.

- Severe depression for the past seven years, haven't responded to antidepressants at all.

- Moderate - severe back and neck pain for the past 8 months. I've been seeing a PT and have experienced no relief.

- Moderate joint pain which seems to be getting worse, for the past 8 months.

- Mild to moderate to occasionally severe GI symptoms, but these seem very random and I can't really find a pattern or connection with what goes on.

- Mild tingling/ numbness in hand and feet which like the GI symptoms is really random and follows no pattern. (I haven't told anyone about this as I pretty sure they'd think I'm mad).

Basically I feel like I'm in my 8th decade of life, not my second. If there is anyone, anyone at all that can recommend to me a doctor that will take me seriously I would be eternally grateful. I really feel at my wits end at the moment. I just got back from my doctor who said I have IBS and should try the FODMAP diet :(. Part of the reason why I'm desperate for testing is my family thinks I'm a hypochondriac and won't support me going gluten free unless I have a proper diagnosis.

Thanks for your help. Sorry for the ramble/rant.

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beachbirdie Contributor
beachbirdie
Posted

Hello everyone,

I'm mainly after Australians advice, specifically those in Sydney that can recommend some doctors that understand coeliac disease. I'm having a terrible time at the moment.

Thanks for your help. Sorry for the ramble/rant.

Dropped a message in the other topic where you asked for help in Australia. Hope it will help!

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      symptoms.

      By trents · Posted

      You might look into wearing an N95 mask when others are creating baked goods with wheat flour in your environment.
    • Rebeccaj
      symptoms.

      By Rebeccaj · Posted

      @trents thank you for that information. My parents feel that cooking flour in toaster isn't a thing as its already cooked product before made? but Airbourne particles is my fear. Like I have had symptoms from 6 meters away had to leave massive migraine. 
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      symptoms.

      By trents · Posted

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