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Possible Diagnosis


clare89

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clare89 Newbie

this is amazing my son is 5 years and 5 months his suffered from some symptoms since weaning but was always put down to antibiotics due to tonalities but after he had them removed he still suffered then suddenly school had problems with my son (lose stole) told me he couldn't go to school. after the doctors heard this and the fact he had blood in stool they were worried went to see pead and was told sounds like celiacs and to stop foods but what i am more amazed at is alot have mentioned that your children are experiencing bad behaviour same as my son which they have been saying is bad parenting until now and now saying could be autism. the weird thing is looking at the dos and donts to what foods he can have my son has different ones could any one help me with suggestion of places to go and recieps for no wheat no cows milk no egg and no soya for a questionable cielic. i havent found and suitable breads at mo and this is one main product i would like help with thank you for any help i would also like to add that he has been a fussy eater and will not eat different food to others at school or his sister is it save for a non sufferer to eat non gluten


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Mom2J112903 Newbie

My son is strictly g-tube fed now but he was on a gluten-free diet most of his life before we had to go to tube feeds. We stuck with a lot of fruits and veggies as we know those are safe. Udi's bread is really good and we used a lot of Pamela's (I think this was the brand at least) mixes as well. Do you have a Whole Foods, Earth Fare or Trader's Joe near you?

clare89 Newbie

no not i have seen and living in the uk i have noticed that the knowledge and access to these diets are very limited here every thing i have seen online has to be brought from over seas and extremly expencive to buy then to srip

Kelleybean Enthusiast

What does he like to eat now? Maybe that will give a hint for replacement ideas.

clare89 Newbie

What does he like to eat now? Maybe that will give a hint for replacement ideas.

im struugleing to find items with out so much in it bread is very hard as the gluton free and wheat free and dairy free all seem to have soya or egg which cant have either

beachbirdie Contributor

this is amazing my son is 5 years and 5 months his suffered from some symptoms since weaning but was always put down to antibiotics due to tonalities but after he had them removed he still suffered then suddenly school had problems with my son (lose stole) told me he couldn't go to school. after the doctors heard this and the fact he had blood in stool they were worried went to see pead and was told sounds like celiacs and to stop foods but what i am more amazed at is alot have mentioned that your children are experiencing bad behaviour same as my son which they have been saying is bad parenting until now and now saying could be autism. the weird thing is looking at the dos and donts to what foods he can have my son has different ones could any one help me with suggestion of places to go and recieps for no wheat no cows milk no egg and no soya for a questionable cielic. i havent found and suitable breads at mo and this is one main product i would like help with thank you for any help i would also like to add that he has been a fussy eater and will not eat different food to others at school or his sister is it save for a non sufferer to eat non gluten

Yes it is safe for a non-sufferer to eat non-gluten.

You just need to make sure the diet is well balanced with good source of protein (lean meats, nuts of not allergic, fish) and plenty of fruits and vegetables. There are also gluten-free grains that can be part of a good diet.

With your son's special needs, you might look into the Open Original Shared Link (Gut and Psychology Syndrome) diet or the Open Original Shared Link. There are lots of websites that have good ideas for people with your son's limitations.

Be sure to look at the Open Original Shared Link site, they are all about feeding kids on special diets, especially those with autism. Open Original Shared Link is a link to their recipe page.

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    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
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    • catnapt
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