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- knitty kitty replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13Help needed
@nanny marley, I had great improvement by supplementing with a B Complex and extra thiamine in the form Benfotiamine which promotes intestinal healing. I followed the AutoImmune Protocol Diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. The AIP diet removes everything from the diet that can be irritating or hard to digest... -
- cristiana replied to Redlima's topic in Related Issues & Disorders3SSRI stopped working after gluten free diet due to Celiac diag
Hi @Redlima My anxiety hit before diagnosis, and in fact it was anxiety which led me to see a doctor who put me on the road of various blood tests which revealed iron deficiency, raised globulin levels and borderline B12. At first my GP suspected a type of cancer, and didn't really know what else to make of it until about six months down the road when... -
- Scott Adams commented on Scott Adams's article in Gluten-Free Travel2The Ultimate Celiac Disease Travel Guide: How to Stay Gluten-Free on Vacation (+Video)
Thanks for sharing--it's great to hear!- gluten-free
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- CJF commented on Scott Adams's article in Gluten-Free Travel2The Ultimate Celiac Disease Travel Guide: How to Stay Gluten-Free on Vacation (+Video)
I just returned from a 2 week trip to England. While I was nervous about traveling out of country, they were very accommodating and I even got many of my meals before others did. Their gluten-free bread was often way better than ours here in the States. I didn't get sick at all on the trip!!!- 1
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- badastronaut replied to badastronaut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Still unsure.....
So after a long time in which I got my zinc and folic acid levels back on track I will now start with taking Thiamine to see if that does anything. According to my blood levels I'm not low on Thiamine but, if I understand correctly, blood works are not the best way to find out if there is a Thiamine shortage. How much Thiamine should I take to start with...
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By knitty kitty · Posted
@nanny marley, I had great improvement by supplementing with a B Complex and extra thiamine in the form Benfotiamine which promotes intestinal healing. I followed the AutoImmune Protocol Diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. The AIP diet removes everything from the diet that can be irritating or hard to digest. After a period of time to heal, other foods are slowly added back into the diet if tolerated. For more stories of my journey, read my blogs by clicking on my name and choosing activities in the dropdown menu. -
Hi @Redlima My anxiety hit before diagnosis, and in fact it was anxiety which led me to see a doctor who put me on the road of various blood tests which revealed iron deficiency, raised globulin levels and borderline B12. At first my GP suspected a type of cancer, and didn't really know what else to make of it until about six months down the road when I started to get diarrhea and was losing weight. That then led another GP to do more tests and coeliac disease was the culprit. Clinical anxiety can be very scary indeed and I suffered with a horrible, irrational phobia at that time, too. I could hardly think straight. My GP put me onto citalopram but also, thankfully, I found a couple of books that helped me to get through this time and I always mention them on this forum, at the risk of repetition, because they were a huge help to me. Paul David's 'At Last a Life' book (and his forum), as well as Dr Steve Llardi's 'The Depression Cure' book which looks at things which we neglect in modern life, such as physical exercise, omega-3 fatty acids, natural sunlight exposure, restorative sleep, social connectedness and meaningful, engaging activity. These things can really make a difference. At the same time, my vitamin and mineral deficiencies were addressed. Have you had your levels checked, particularly B12 and iron? These are particularly important as deficiencies can really affect people's mental health. If they are low or low normal, get your doctor to prescribe some supplements, but at the same s/he needs to keep an eye on iron going forward, as too much in the blood is dangerous. I found B12 incredibly helpful in feeling better in the early stages of my recovery - sometimes, it was almost like night and day just a few hours after taking it. (Someone on this forum recommended Solgar sublingual tablets, they are great.) My anxiety started to get a lot better after a few weeks but there were setbacks which made me at times think I'd not recovered, or perhaps ever would. But like a jagged line on a chart, which has ups and downs but over all has an upward trajectory, I did get better in the end. I hope that you will find the same, and that perhaps some of this story has helped.
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By badastronaut · Posted
So after a long time in which I got my zinc and folic acid levels back on track I will now start with taking Thiamine to see if that does anything. According to my blood levels I'm not low on Thiamine but, if I understand correctly, blood works are not the best way to find out if there is a Thiamine shortage. How much Thiamine should I take to start with? 100 mg? -
By Scott Adams · Posted
I'm in the "never reveal your plans to the enemy" camp on this one--it's none of their business if you're looking for another job, so I would leave that out of any conversation. Also, retaliation can be common with some employers, especially if you bring up the ADA and claim a disability because of celiac disease. I was a corporate paralegal for 5 years and handled employment claims against some major USA companies, and I've seen it all--even by huge companies that contract with the government and should know better. I say keep your cards close to your vest, wear an N95 mask if you handle wheat flour, and quietly look for another job if you feel you can't continue there. Oh, and when I say "enemy," I mean that unscrupulous managers may quickly become your enemy, even if the law is on your side, and they could find trivial reasons to give you the 3 quick warnings that may be necessary to fire you. Very few lawyers would take such a case on a contingency basis, so unless you have a stockpile of money, you'd have no recourse. -
@ohmichael doesn't have an official diagnosis of celiac disease yet. That would need to happen if he were to pursue a disability claim.
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