Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Introduction And A Question...


Ladyrhedd

Recommended Posts

Ladyrhedd Rookie

Hi, All.

I am new to everything gluten free. I have to see a specialist in order to even be diagnosed, but my gastroenterologist said I should try going gluten free in the meantime to see if my symptoms improve. I have been pretty strict for a week now, but now I'm ready to start making my own breads/cakes, etc...

I know there are many commercial mixes out there, but I'm starting off with trying to cook from scratch. I purchased some gluten-free all-purp flour (Bob's) and some xanthan gum. In most recipes, would you suggest adding the gum to the gluten-free flour? I have yet to eat anything gluten-free but some Glutino pretzels which I think I like more than my favorite wheat pretzels so I'm trying to be optimistic. Also, is there a good, low carb sandwich recipe you could share with me (or direct me to?)

Thanks!

Ladyrhedd


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Hi, All.

I am new to everything gluten free. I have to see a specialist in order to even be diagnosed, but my gastroenterologist said I should try going gluten free in the meantime to see if my symptoms improve. I have been pretty strict for a week now, but now I'm ready to start making my own breads/cakes, etc...

I know there are many commercial mixes out there, but I'm starting off with trying to cook from scratch. I purchased some gluten-free all-purp flour (Bob's) and some xanthan gum. In most recipes, would you suggest adding the gum to the gluten-free flour? I have yet to eat anything gluten-free but some Glutino pretzels which I think I like more than my favorite wheat pretzels so I'm trying to be optimistic. Also, is there a good, low carb sandwich recipe you could share with me (or direct me to?)

Thanks!

Ladyrhedd

Hello and Welcome!

It's recommended not to go gluten free until all your testing is finished. Your gastro person should know that. :huh:

Mizzo Enthusiast

Hi, All.

I am new to everything gluten free. I have to see a specialist in order to even be diagnosed, but my gastroenterologist said I should try going gluten free in the meantime to see if my symptoms improve. I have been pretty strict for a week now, but now I'm ready to start making my own breads/cakes, etc...

I know there are many commercial mixes out there, but I'm starting off with trying to cook from scratch. I purchased some gluten-free all-purp flour (Bob's) and some xanthan gum. In most recipes, would you suggest adding the gum to the gluten-free flour? I have yet to eat anything gluten-free but some Glutino pretzels which I think I like more than my favorite wheat pretzels so I'm trying to be optimistic. Also, is there a good, low carb sandwich recipe you could share with me (or direct me to?)

Thanks!

Ladyrhedd

Yes as Lisa said, very bad idea to go gluten free before testing it completely skews the results. FYI , It does not sound good of your GI for suggesting this.

Question what kind of specialist are you seeing because for Celiac you see a GI which you seem to under the care of already.

BTW 1 week gluten free is not long.

Adding xantham gum to gluten-free flour recipes is needing in breads, muffins and many cookies. There are few to none low carb gluten-free bread recipe mixes without getting into mixing your own flour blends consisting of sorghum, millet etc... the hardier grains.

You can get a bread mix like King Arthur bread mix and sub out 15-20% of the mix with KA resistant corn starch or KA gluten-free hearty grain flour which bulks up the fiber , which I do and it works out fine.

However I wouldn't change anything till you get your blood work and/or endoscopy done first.

good luck

Marilyn R Community Regular

Hi lady, welcome to the forum! wholeheartedly I concur with the advice already offered... you'll find several food bloggers that have good sites, here's one if you haven't discovered it yet.

Open Original Shared Link

Feel better soon, but do wait to go gluten-free until afer you have your upper. And if your GI doesn't know that, find a new improved one. :)

Ladyrhedd Rookie

Thank you so much for the advice... I should elaborate. :) i had a colonoscopy/endoscopy done. I was actually having the endo to look for possible ulcers (which I have none) and my GI found the damage in my small intestines that is consistant with celiac. He actually said if I had the antibodies in my bloodwork then he'd have diagnosed me immediately. Since I don't have the antibodies, he asked if I was willing to have genetic testing done. I went ahead with that and my results put me in the *high* risk for developing it (as opposed to very high or extremely high.) He wants me to see Dr. Peter Green. When I googled him, apparantly he's head of a celiac clinic and specializes in the disease. I just think my GI felt he couldn't say for certain if I have celiac or not and suggested eating gluten free to see if my symptoms improve.

Do you all prefer to make bread/muffins/rolls, etc... To purchasing commercial products? I just read through a thread in a different board on this site that makes me feel baking is the way to go.

Lastly, I have the King Arthur flour, but I guess I thought it was Bob's Red Mill because that's the brand of xanthan gum I purchased :)

I'm really nervous about wasting a ton of money on baking disasters! LOL

Ladyrhedd

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    2. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,415
    • Most Online (within 30 mins)
      7,748

    KittyKatJill
    Newest Member
    KittyKatJill
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.