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Any Tips For Gaining Weight After celiac disease Diagnosis?


GLUTEN FREE IN SLC

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GLUTEN FREE IN SLC Rookie

I was recently diagnosed with Celiac (April 10th, 2012). In the past two years I have unintentionally lost nearly 50 pounds. 20 of which have been within the past couple months. Finally being diagnosed with Celiac was a Godsend, in that I finally knew what was most likely causing my weight loss. I have always worked out and have been in really good shape. Being a male, and someone that didn't have much weight to loose in the first place, I have really taken a hit to my self confidence and self esteem (not to mention all the other side effects of Celiac).

If anyone has any tips for getting back to being healthy and eating gluten free, nutritious/high calorie foods, diet regimens, etc. please let me know. Any advice would be greatly appreciated! Thanks!


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ravenwoodglass Mentor

What worked for me was eating 3 balanced meals and in the morning I would open a bag of Wylde pretzels, they are about 1000 calories a bag and soy and gluten free, and I would munch them off and on all day. That would give me an extra 1000 calories without much effort. Wouldn't work for someone watching their carbs but for me it helped me gain back the 10 lbs I needed within a couple weeks.

lucky28 Explorer

I ate a lot of hardboiled eggs as well as bananas with almond butter for breakfast and snacks for the first few months. I also ate at least one batch of gluten-free brownies a week for the first 6 months. LOL not very nutritious, but they are yummy and help put on some lbs! Look around the boards here. There's a few threads with breakfast lunch and dinner suggestions. Good luck and Welcome.

oh, I almost forgot, LARABARS come in tons of flavors and at least the one's I've tried have been pretty calorie laden.

TightLoli Rookie

Don't forget about peanut butter.

woodnewt Rookie

I was recently diagnosed with Celiac (April 10th, 2012). In the past two years I have unintentionally lost nearly 50 pounds. 20 of which have been within the past couple months. Finally being diagnosed with Celiac was a Godsend, in that I finally knew what was most likely causing my weight loss. I have always worked out and have been in really good shape. Being a male, and someone that didn't have much weight to loose in the first place, I have really taken a hit to my self confidence and self esteem (not to mention all the other side effects of Celiac).

If anyone has any tips for getting back to being healthy and eating gluten free, nutritious/high calorie foods, diet regimens, etc. please let me know. Any advice would be greatly appreciated! Thanks!

In my own experience, it just took time. After a terrible issue with chronic (and unknowingly) consuming small amounts of gluten through cross contamination a few years ago, my weight dropped from a healthy 135 lbs (BMI 22) to around 90 lbs (BMI 15) over three months. Once I'd discovered the source of cross-contamination and eliminated the gluten, the weight loss stopped, but I only gained weight up to 102 lbs and stayed that way for about one year no matter what I ate. I kept a food journal and consumed on average 2500+ calories a day and gained not a single pound. Scale seemed to be stuck at "102." It took one year of being totally gluten-free and eating very simple, home-prepared, whole foods before the weight came back. My current diet is primarily: avocados, some potatoes, some bananas, some nuts, lots and lots of red meat, some chicken, eggs, yogurt, easy to digest veggies, minimal fruit, refined sugars in extreme moderation (the yogurt I eat has some added sugar... I've also recently added very dark chocolate which has a little sugar added too, so that would be the sources of sugar in my diet), and absolutely no grains... I guess you could say that in addition to being hyper-vigilant for gluten sources of cross contamination, I'm on a high protein, relatively high fat, moderate carbohydrate (about 60-100g a day), totally grain free diet. And for me, this works and helped me to recovery. I do not know if this would work for others, however. It took me a lot of trial and error to figure out what was "right" for my digestive system. In the beginning I was so sick my diet was extremely limited (almost exclusively banana, potato, avocado, and meat) but I added foods like nuts and eggs and vegetables one by one as I could tolerate them.

My weight is 125 lbs now - still ten pounds below my target goal but at least in the normal range for my height.

GLUTEN FREE IN SLC Rookie

Why do you stay away from all grains? Even rice...? And what about brands of bread and so forth that claim to be completely gluten free?

Thanks, Everyone's comments have been greatly appreciated.

woodnewt Rookie

Why do you stay away from all grains? Even rice...? And what about brands of bread and so forth that claim to be completely gluten free?

Thanks, Everyone's comments have been greatly appreciated.

I would say the best brands of gluten free breads are Udi's and Kinnikinnick. I don't eat them anymore, but I used to. They are both very tasty IMO.

I avoid all grains because through trial and error I have determined that they are detrimental to my health. I follow a diet that somewhat resembles a hybrid of SCD (Specific Carbohydrate Diet) and Paleo diet. As said, this may not be ideal for all persons, but I know without doubt it is ideal for me. I used to eat soft white rice and meat soups when I was first recovering and I eventually realized it was not doing me any good. It wasn't until I replaced the rice with potatoes and bananas that I noticed improvement.


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    • cristiana
      Hello fellow coeliacs and a Happy New Year I'd appreciate some advice. In December I gave up junk food and ate a new healthy diet, which had a lot of gluten-free oats, nuts, oranges in it, and a quite a lot of black coffee, rather than my usual lattes etc.  After a week or so I felt awful bubbling and bloating in the area which I would say is the ascending and transverse colon.  Earlier in the day it might start with stabbing pain, maybe just two or three 'stabs', or a bit of an ache in my pelvis area, and then by the evening replaced with this awful bloated feeling.   I can still fit into all my clothes, there isn't any visible bloating but a feeling of bloating builds from early afternoon onwards.  The pain and bloating has always gone by the morning.  BMs normal.   I went back to my normal diet over Christmas, for a couple of days things improved, but the bubbling and bloating then came back with a vengeance.  I'm having an ultrasound in a couple of weeks to check my pelvic area and if that is clear I suspect may have to have a colonoscopy, but is there anything anyone can recommend to calm this bloating down.  I have been given an additional diagnosis of IBS in the past but it has never been this severe.   I have to confess that I might have had some gluten over Christmas, I ate a lot of Belgium chocolates which were meant to be gluten free but the small print reveals that they were made in a shared facility, so I have probably brought this all on myself!
    • TheDHhurts
      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
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