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Mama of 6

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Mama of 6 Rookie
Mama of 6
Posted

I am pretty darn confused on what to do. My son was orinally tested and had a low IgA (IgA 16mg normal 27-168) so I had the IgG test done as well. I thought for sure it would either be low or high but it was normal. And this panel his IgA is even lower. Should I even be suspecting Gluten anymore? Or something else? His docter is the watch and wait type,she said we will check his IgA in 6 months. I asked if the gluten free diet would make his IgA change within the 6 months she said yes it will probably make it change but she doesnt think he had gluten intolerance or celiacs???? Then why would it make his IgA change. I don't know where to go from here.

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Sesara Rookie
Sesara
Posted

I am pretty darn confused on what to do. My son was orinally tested and had a low IgA (IgA 16mg normal 27-168) so I had the IgG test done as well. I thought for sure it would either be low or high but it was normal. And this panel his IgA is even lower. Should I even be suspecting Gluten anymore? Or something else? His docter is the watch and wait type,she said we will check his IgA in 6 months. I asked if the gluten free diet would make his IgA change within the 6 months she said yes it will probably make it change but she doesnt think he had gluten intolerance or celiacs???? Then why would it make his IgA change. I don't know where to go from here.

Have you considered genetic testing? I know Promethius labs does it, it can be hard to get it covered by insurance though, but they have a home testing kit. If you really want, you could have at least one of your children with suspicious symptoms tested, and if they screen positive for one of the associated genes, you will probably have a decent chance of getting a pediatric GI referral. It seems like pediatricians are often unwilling to look at Celiac's...I'm really not sure why except that it means referring their patient to a specialist.

Mama of 6 Rookie
Mama of 6
Posted
  • Author

Have you considered genetic testing? I know Promethius labs does it, it can be hard to get it covered by insurance though, but they have a home testing kit. If you really want, you could have at least one of your children with suspicious symptoms tested, and if they screen positive for one of the associated genes, you will probably have a decent chance of getting a pediatric GI referral. It seems like pediatricians are often unwilling to look at Celiac's...I'm really not sure why except that it means referring their patient to a specialist.

I would love to do the genetic testing, but it is way too much. My son who has been gluten free for about two weeks, has a rash on his stomach and back. Red dots like little bites, I am wondering if it's related. Any thoughts?

Sesara Rookie
Sesara
Posted

I would love to do the genetic testing, but it is way too much. My son who has been gluten free for about two weeks, has a rash on his stomach and back. Red dots like little bites, I am wondering if it's related. Any thoughts?

We are just getting started in our gluten-free journey. Today was our first official day of gluten-free and I can't guarantee no cross-contamination, since I'm not completely done decontaminating my kitchen, though I did burn off all my cast iron seasoning today. :( But I have read other people talking about withdrawal symptoms, there are probably a number of posts on here that you can research about it.

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