Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Twitching, Weird Symptom.


gem75

Recommended Posts

gem75 Rookie

i've been gluten-free for a year now due to having hashimotos. well, i've had some slip ups over the year, but I'm 29 weeks prego and have had very few slip ups since pregnancy.

in march i started twitching at bedtime, the twitching would cause hottible insomni for me, I think what i am experiencing is periodic limb movement. When i ate gluten it was really bad, like insomina all night and nothing i could take (benadryl ) would be strong enough. I wasn't eating gluten and still twitching, and noticed dairy and soy were doing it to me , so i've been dairy and soy free for several months,m as well. my body still will twitch at night but it will only be a few if i don't eat any of these foods. I still need to take a benadryl and a prescription histmaine every night to sleep.... again if i 've accidentally ingested soy dairy or gluten i'm up all night with horrible insomnia and my body twitching, like strong, big twitches.

my iron has been really low through out preg and my dr said i was borderline anemic. I started taking ferralet 90 several months ago and my iron kept going down( ferritin) homogloubin, hemocrit) i came to a conclusion my iron was going down every month because i was taking my prena;l 3x a day and i think the calcium in the prenantal was interfering with my iron. I have been taking a one a day prescription prenatal for a bout a month now, so we will see if my conclusion is right with the calcium/iron--- getting blood drawn tomorrow. So anyways i thought mayeb the twitches were becasue of low iron, but i twitch more when i eat the certian foods. I was in the hospital about 3 weeks go and my dr said my magnesium was low, i can't recall if my calcium was too. Anyways, she thought maybe the low mag was causing my body to twitch. But again, i twitch BAD when i eat the certain foods. I've upped my calcium/mag since being in the hospital... so hoping tomorrow i will get that tested too to see if it's still low.

has anyone ever had these symptoms of twitching when eating certain foods? i want to get an immune testing when i'm doe with the pregnancy to see what foods are causing me problems.

im at my wits end with these twitches and needing strong meds to sleep at night.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Lakefront Brewery
Little Northern Bakehouse



Celiac.com Sponsor (A8-M):
Food for Life


sreese68 Enthusiast

This may not be helpful info, but

gem75 Rookie

I sure hope it's prego related, omg do i hope. This pregnancy has been awful and then to not be able to eat anything has been double awful.i have a lot of immune prblems with this pregnancy, i have to inject blood thinners every day because i have MTHFR, a gene mutation , my body doesn't process regular b vits. I also have poor blood flow to placetna. Had to take prednisone up until like 20 weeks do to an auto immune attack on my placenta. I'm suffered anemia pretty much the entire pregnancy.Also high bp and am being wathced for pre eclampsia.

what do you mean your nerves get effected by gluton? like your nervous system?? i thought i was having a nervous system problem w/ gluton but it happens when i don't eat it... it ha[[ens every night, just not as severe as when i eat G.

i have big dreams of eating ginos east pizza the day i deliver and it worries me to know what will happen to my body if i do. I suppose i can take a zanax at the hospital and that will take care of it. Zanax will be about the only thing that will knock me out and knock the twitches out.

it's been very depressing.... although on a happy note i've gained a little over 20 lbs;) i gained 60 with my first, thanks to donuts, pizza etc etc, i had high bp with hi and developed pre eclampsia--- which i'm on the watch for that too. But most of that weight gain was due to poor eating.

oh my do i hope this is all prego related.

gem75 Rookie

oh and i get VERY strong twitches when i eat gluton and just small movements when i don't eat anything incriminating (that i know of) i know the days i've eaten soy, dairy gluton as i get very wired at night (tired all day) , where i don't get drowsy from the benadryl/histamine dual.

Marilyn R Community Regular

We probably aren't similar, because I can't tolerate benadryl. It makes me climb the walls! I don't twitch, used to, but I have other neuro responses to getting glutened (balance, gait, neurapathy. I found Quinoa is a wicked grain for me, not sure it will be for you. It's and ingredient in many gluten-free foods.

Congrats on being pregnant! YAY! :D Wish you and yours all the best!!! ((()))

gem75 Rookie

yeah, i've heard other people say they can't tolerate benadryl. I've been using benadryl for a long time... so i don't think it's the benadryl, but shoot you never know.

interesting about quinona... i'm not eating it, as far as i know, but i never knew it was a potential 'stay away food' so it's not something that i have been seeking out OR not. I don't eat any processed foods these days, so...

thanks you on the congrats! my first came very easy and the 2nd , took us 18 months. I see a reproductive immunologist who i think made my pregnancy successful... by keeping me prego. I'm in the home stretch, i guess that's what they call it, still 2 months to go.

gem75 Rookie

marilyn---

I noticed in your signature you stay away from some soy. I've wondered if i can tolerate fermented soy. It seems soy lechitin is a definite NO-NO. And soy lechtin is in everything. I haven't done a test yet as the end result can be so bad for me.

it also seems i can tolerate aged swiss cheese and small amounts of goat and parm cheese.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
NutHouse! Granola Co.
Authentic Foods



Celiac.com Sponsor (A8-M):
Holidaily Brewing Co.


Bubba's Mom Enthusiast

Are you taking probiotics? If you have any of the "bad" bacteria in your small intestine it can make you get reactions from various foods. As the bacteria feed on what you've eaten, they produce toxins that will give you side effects. Probiotics help keep the bad guys in check.

Marilyn R Community Regular
  On 6/5/2012 at 3:16 AM, gem75 said:

marilyn---

I noticed in your signature you stay away from some soy. I've wondered if i can tolerate fermented soy. It seems soy lechitin is a definite NO-NO. And soy lechtin is in everything. I haven't done a test yet as the end result can be so bad for me.

it also seems i can tolerate aged swiss cheese and small amounts of goat and parm cheese.

I don't know if your experience will be similar to mine or not, but soy kicked me. I can now tolerate soy lecethin in dark chocolate and other things, but I save that for special occasions.

I didn't show up with a soy allergy with skin prick testing, but my allergist explained that intolerances were a whole different story. I still haven't actually tried the gluten-free tamari sauce, bought it and thought I would but chickened out. Haven't had a problem with mixing coconut aminos and fish sauce with a squirt of lime juice and some salt as an alternative to soy sauce.

You might like asiago cheese, it's aged and very tasty!

Check out1some thai recipes using coconut milk. I think you and the baby will love them, and thai recipes don't always use soy.

Good luck!!!!!! :)

ravenwoodglass Mentor

Have you checked to make sure all the meds and supplements you are taking are gluten free? For example you mention Zanax. Name brand is not gluten free but the generic Alprazolam (Sandoz) is safe. Do make sure to check with the maker to be sure all are okay as even a tiny bit of gluten can keep nervous system issues going.

I hope things are going better for you soon and congrats on the sson to be new addition to your family.

  • 2 weeks later...
aeon077 Newbie

Are they voluntary or involuntary twitches? Kind of like Tics? Tic disorders are commonly linked to Celiac Disease. I am still in the process of being diagnosed (highly likely have it though), but I have Tourettes Syndrome, and twitch a whole heck of a lot. I don't know that me saying this helps at all, it's more of an - "I can relate" statement. :)

sk26 Newbie

I actually went in to see a neurologist about my muscle spasms/twitching before I had any idea about my gluten sensitivity and/or pending diagnosis of Celiac Disease. I would get fast muscle spasms/twitches in my neck, arms, torso, and legs. He ended up doing a brain MRI, which came back normal and some sleep studies. He told me I have myoclonus (which is a symptom and not a diagnosis) and put me on neurontin. I took neurontin for maybe a couple of weeks and the muscle spasms/twitching significantly diminished. I still get the muscle spasms, but I'm convinced it has something to do with my gluten sensitivity and its effect on the nervous system. I also had a lot of neurological problems--- excessive fatigue, brain fog, ADD, anxiety/depressed mood, irritability, etc. that are subsiding with my gluten free diet.

  • 3 weeks later...
gem75 Rookie

interesting SK. I'm prego now, so i'm assuming the drug your dr gave you , i can't take. But i will look into it when pregnancy is over. Who know, maybe i will luck out and lose this horrible symptom.... as if.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):
    Little Northern Bakehouse
    Lakefront Brewery




    Celiac.com Sponsors (A17-M):

    Little Northern Bakehouse



  • Recent Activity

    1. - SB04 replied to SB04's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      False tTG3 Test?

    2. - trents replied to SB04's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      False tTG3 Test?

    3. - SB04 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      False tTG3 Test?

    4. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      18

      Does anyone here also have Afib

    5. - knitty kitty replied to ohmichael's topic in Super Sensitive People
      16

      Curious if I should quit my job


  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      129,716
    • Most Online (within 30 mins)
      7,748

    AnnaBananza
    Newest Member
    AnnaBananza
    Joined

  • Celiac.com Sponsor (A20):
    NutHouse! Granola Co.


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Food for Life



  • Upcoming Events

  • Posts

    • SB04
      Thanks! I don't think it was a total IGA test, it was called "Array 3X - Wheat/Gluten Proteome Reactivity & Autoimmunity" and it tested a bunch of wheat proteins and transglutaminase for both IgG and IGAs.  
    • trents
      Welcome to the forum, @SB04! Let's cut to the chase. Did they run a tTG-IGA and a total IGA? Total IGA goes by many names but it checks for IGA deficiency. If you are IGA deficient, IGA test scores will be artificially low and it can result in false negatives. The tTG-IGA is the centerpiece of celiac disease antibody testing.  Dermatitis herpetiformis is the epidermal expression of celiac disease. Most who have dermatitis herpetiformis also have damage happening to the small bowel lining as well but a small percentage do not. But dermatitis herpetiformis has a characteristic appearance to it, with the rash bumps having pustules in the center. It is also accompanied by a very uncomfortable itch. From...
    • SB04
      Hi all, about a year ago I had some blood tests done through a naturopath because I had constant hives and no idea why. They would go away for a few days with an antihistamine medicine but always come right back. Anyways, she did an igg test (which i now know is terribly unreliable) and it was pointing to gluten sensitivity. there was another test too, that tested for wheat iggs, igas and several other things, among which were Transglutaminases. The only one that came up as high for me was the tTG3 igg result, which shows an autoimmune response in the skin, commonly dermatitis herpetiformis in celiac patients. I was told it was gluten causing it but not celiac. Fast forward to now, I...
    • knitty kitty
      I know I'm late to the party, but I thought these articles are very interesting.   Doctors don't recognize vitamin deficiency symptoms.   Thiamine deficiency is linked to Long haulers syndrome, too. I had palpitations that only resolved with thiamine Vitamin B 1 supplementation.   Association of vitamin B1 with cardiovascular diseases, all-cause and cardiovascular mortality in US adults https://pmc.ncbi.nlm.nih.gov/articles/PMC10502219/   Vicious cycle of vitamin B1 insufficiency and heart failure in cardiology outpatients https://pmc.ncbi.nlm.nih.gov/articles/PMC11579856/   Micronutrient deficiencies and new-onset atrial fibrillation in...
    • knitty kitty
      @ohmichael, Have you tried contacting your state's Employment Services?   There should be job opportunities and training programs especially for previous service members and veterans.   Look into trade schools.  Some offer training programs which provide scholarships and housing, and possible employment after completion.  Some scholarships are funded by employers looking for specifically trained employees. Choose a career path in something you enjoy doing.   I agree with @Scott Adams.  Play your cards close to your chest.  Get your ducks in a row before discussing leaving the gluten aisle where you work now.  Managers can and will fire you really easily, like Scott...
×
×
  • Create New...