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Twitching, Weird Symptom.

gem75

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gem75 Rookie
gem75
Posted

i've been gluten-free for a year now due to having hashimotos. well, i've had some slip ups over the year, but I'm 29 weeks prego and have had very few slip ups since pregnancy.

in march i started twitching at bedtime, the twitching would cause hottible insomni for me, I think what i am experiencing is periodic limb movement. When i ate gluten it was really bad, like insomina all night and nothing i could take (benadryl ) would be strong enough. I wasn't eating gluten and still twitching, and noticed dairy and soy were doing it to me , so i've been dairy and soy free for several months,m as well. my body still will twitch at night but it will only be a few if i don't eat any of these foods. I still need to take a benadryl and a prescription histmaine every night to sleep.... again if i 've accidentally ingested soy dairy or gluten i'm up all night with horrible insomnia and my body twitching, like strong, big twitches.

my iron has been really low through out preg and my dr said i was borderline anemic. I started taking ferralet 90 several months ago and my iron kept going down( ferritin) homogloubin, hemocrit) i came to a conclusion my iron was going down every month because i was taking my prena;l 3x a day and i think the calcium in the prenantal was interfering with my iron. I have been taking a one a day prescription prenatal for a bout a month now, so we will see if my conclusion is right with the calcium/iron--- getting blood drawn tomorrow. So anyways i thought mayeb the twitches were becasue of low iron, but i twitch more when i eat the certian foods. I was in the hospital about 3 weeks go and my dr said my magnesium was low, i can't recall if my calcium was too. Anyways, she thought maybe the low mag was causing my body to twitch. But again, i twitch BAD when i eat the certain foods. I've upped my calcium/mag since being in the hospital... so hoping tomorrow i will get that tested too to see if it's still low.

has anyone ever had these symptoms of twitching when eating certain foods? i want to get an immune testing when i'm doe with the pregnancy to see what foods are causing me problems.

im at my wits end with these twitches and needing strong meds to sleep at night.

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sreese68 Enthusiast
sreese68
Posted

This may not be helpful info, but

gem75 Rookie
gem75
Posted
  • Author

I sure hope it's prego related, omg do i hope. This pregnancy has been awful and then to not be able to eat anything has been double awful.i have a lot of immune prblems with this pregnancy, i have to inject blood thinners every day because i have MTHFR, a gene mutation , my body doesn't process regular b vits. I also have poor blood flow to placetna. Had to take prednisone up until like 20 weeks do to an auto immune attack on my placenta. I'm suffered anemia pretty much the entire pregnancy.Also high bp and am being wathced for pre eclampsia.

what do you mean your nerves get effected by gluton? like your nervous system?? i thought i was having a nervous system problem w/ gluton but it happens when i don't eat it... it ha[[ens every night, just not as severe as when i eat G.

i have big dreams of eating ginos east pizza the day i deliver and it worries me to know what will happen to my body if i do. I suppose i can take a zanax at the hospital and that will take care of it. Zanax will be about the only thing that will knock me out and knock the twitches out.

it's been very depressing.... although on a happy note i've gained a little over 20 lbs;) i gained 60 with my first, thanks to donuts, pizza etc etc, i had high bp with hi and developed pre eclampsia--- which i'm on the watch for that too. But most of that weight gain was due to poor eating.

oh my do i hope this is all prego related.

gem75 Rookie
gem75
Posted
  • Author

oh and i get VERY strong twitches when i eat gluton and just small movements when i don't eat anything incriminating (that i know of) i know the days i've eaten soy, dairy gluton as i get very wired at night (tired all day) , where i don't get drowsy from the benadryl/histamine dual.

Marilyn R Community Regular
Marilyn R
Posted

We probably aren't similar, because I can't tolerate benadryl. It makes me climb the walls! I don't twitch, used to, but I have other neuro responses to getting glutened (balance, gait, neurapathy. I found Quinoa is a wicked grain for me, not sure it will be for you. It's and ingredient in many gluten-free foods.

Congrats on being pregnant! YAY! :D Wish you and yours all the best!!! ((()))

gem75 Rookie
gem75
Posted
  • Author

yeah, i've heard other people say they can't tolerate benadryl. I've been using benadryl for a long time... so i don't think it's the benadryl, but shoot you never know.

interesting about quinona... i'm not eating it, as far as i know, but i never knew it was a potential 'stay away food' so it's not something that i have been seeking out OR not. I don't eat any processed foods these days, so...

thanks you on the congrats! my first came very easy and the 2nd , took us 18 months. I see a reproductive immunologist who i think made my pregnancy successful... by keeping me prego. I'm in the home stretch, i guess that's what they call it, still 2 months to go.

gem75 Rookie
gem75
Posted
  • Author

marilyn---

I noticed in your signature you stay away from some soy. I've wondered if i can tolerate fermented soy. It seems soy lechitin is a definite NO-NO. And soy lechtin is in everything. I haven't done a test yet as the end result can be so bad for me.

it also seems i can tolerate aged swiss cheese and small amounts of goat and parm cheese.

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Bubba's Mom Enthusiast
Bubba's Mom
Posted

Are you taking probiotics? If you have any of the "bad" bacteria in your small intestine it can make you get reactions from various foods. As the bacteria feed on what you've eaten, they produce toxins that will give you side effects. Probiotics help keep the bad guys in check.

Marilyn R Community Regular
Marilyn R
Posted

marilyn---

I noticed in your signature you stay away from some soy. I've wondered if i can tolerate fermented soy. It seems soy lechitin is a definite NO-NO. And soy lechtin is in everything. I haven't done a test yet as the end result can be so bad for me.

it also seems i can tolerate aged swiss cheese and small amounts of goat and parm cheese.

I don't know if your experience will be similar to mine or not, but soy kicked me. I can now tolerate soy lecethin in dark chocolate and other things, but I save that for special occasions.

I didn't show up with a soy allergy with skin prick testing, but my allergist explained that intolerances were a whole different story. I still haven't actually tried the gluten-free tamari sauce, bought it and thought I would but chickened out. Haven't had a problem with mixing coconut aminos and fish sauce with a squirt of lime juice and some salt as an alternative to soy sauce.

You might like asiago cheese, it's aged and very tasty!

Check out1some thai recipes using coconut milk. I think you and the baby will love them, and thai recipes don't always use soy.

Good luck!!!!!! :)

ravenwoodglass Mentor
ravenwoodglass
Posted

Have you checked to make sure all the meds and supplements you are taking are gluten free? For example you mention Zanax. Name brand is not gluten free but the generic Alprazolam (Sandoz) is safe. Do make sure to check with the maker to be sure all are okay as even a tiny bit of gluten can keep nervous system issues going.

I hope things are going better for you soon and congrats on the sson to be new addition to your family.

  • 2 weeks later...
aeon077 Newbie
aeon077
Posted

Are they voluntary or involuntary twitches? Kind of like Tics? Tic disorders are commonly linked to Celiac Disease. I am still in the process of being diagnosed (highly likely have it though), but I have Tourettes Syndrome, and twitch a whole heck of a lot. I don't know that me saying this helps at all, it's more of an - "I can relate" statement. :)

sk26 Newbie
sk26
Posted

I actually went in to see a neurologist about my muscle spasms/twitching before I had any idea about my gluten sensitivity and/or pending diagnosis of Celiac Disease. I would get fast muscle spasms/twitches in my neck, arms, torso, and legs. He ended up doing a brain MRI, which came back normal and some sleep studies. He told me I have myoclonus (which is a symptom and not a diagnosis) and put me on neurontin. I took neurontin for maybe a couple of weeks and the muscle spasms/twitching significantly diminished. I still get the muscle spasms, but I'm convinced it has something to do with my gluten sensitivity and its effect on the nervous system. I also had a lot of neurological problems--- excessive fatigue, brain fog, ADD, anxiety/depressed mood, irritability, etc. that are subsiding with my gluten free diet.

  • 3 weeks later...
gem75 Rookie
gem75
Posted
  • Author

interesting SK. I'm prego now, so i'm assuming the drug your dr gave you , i can't take. But i will look into it when pregnancy is over. Who know, maybe i will luck out and lose this horrible symptom.... as if.

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