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I Don't Know If I Should Test For Celiac


AmyWrites

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AmyWrites Newbie

I've been the type with a "weak stomach" all my life. Every few weeks or so, I'd go through a day or two where I would vomit and have diarrea all day. It got better, actually felt GOOD, after a surgery I had for endometriosis, but it's back now.

I've been reading a lot about celiac, since white bread sends me running to the toilet. But frankly, I'm reading about a lot of symptoms, and mine seem not often or severe enough. I can eat pasta well enough, and the only gluten-containing food I've stopped consuming is white bread and red meats... and with some digestive enzymes my doctor gave me, I'm better. I still have, if I eat greasy food or whatnot, some bad symptoms; maybe diarrhea, sulfuric like gas,maybe nausea and stomach pains. But it's not like before. I was diagnosed with IBS some time ago but felt it wasn't accurate. I don't have any of the neurological symptoms listed here, maybe except depression and terrible sleep. I don't know if I should try to test for Celiac as my symptoms are not so severe enough. Opinions?


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roxieb73 Contributor

I look at it this way...... Celiac has so many symptoms it could be the cause and what do you have to lose? Worst that happens is you come back negative. I say go for it.

Cara in Boston Enthusiast

With a diagnosis of IBS, you should at least be tested for celiac. Symptoms can be inconsistent - they can even seem to "go away" for months or years - only to return much worse. I can't really think of a reason NOT to be tested. Just be sure you get all the right tests, or you may rule out celiac when it is actually the real problem - false negatives can just add to the confusion.

Cara

MitziG Enthusiast

You can have NO symptoms and have celiac. Also it is very common for symptoms to wax and wane as you described. Your symptoms sound very much like mine- for the 30 years prior to my diagnosis! Definitely get tested!

MitziG Enthusiast

Also, endometriosis has been strongly linked to Celiac.

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      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
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    • jenniber
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