Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Really Frustrated!


drewsant

Recommended Posts

drewsant Rookie

I've been doing really well this last month, and staying away from gluten to the best of my knowlege. I've been eating garden salads, and gluten-free dressing, with a plain grilled chicken breast. I've been eating dark chocolate for snacks. I even checked my hand soap and shampoo, even though I thought it was going a little overboard with paranoia since I don't ingest the soap or shampoo, but they are both fine, and gluten-free, and I don't wear makeup. So I'm at a loss as to why I've had diarrhea in the last 3 days.

I had to leave work a 1/2 hour into my shift on Thursday. Made it through Friday-still had diarrhea, just not as bad. Then today, I was in the grocery store, and it just hit me again. I had to leave everything there, and just leave. I haven't even had any dairy, which never bothers me anyway, but I'm getting to the point where I'm getting paranoid about eating anything again, just like I did when I first started this diet.

The whole point to this post I guess is to ask--has any one gone on an elimination diet, where you only eat one food for like a week, then another food for a week, etc, to see if it makes you sick? Is this something I should try?

Or could it be because I started taking prenatal vitamins (gluten-free) about a week and a half ago? But I would think I would have gotten sick before now if it were the vitamins.

I'm just really frustrated and don't know what to do. I don't want to live on salad for the rest of my life. Maybe I should have further testing, maybe it isn't Celiac, but another food allergy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Yep, I've done an elimination diet. At a dozen foods (pork, rice, olive oil, rice, and eight others) for two weeks and then tried one of each of the common allergens every few days... Or at least, that was the plan. The mental/emotional effort of doing that diet did me in. It was far too restrictive and drove me crazy. But I did a variation to learn that I was casein intolerant.

It can be a valuable test to perform, but do plan out how you're going to go about doing it, and make sure to follow the basic rules of eliminating whole food families for at least two weeks before introducing, and not crossing something off the list (thinking it causes no problems) without having put it back in your diet - daily - for at least a week. Use Google to get a bunch of helpful sites to help you design an elimination diet for yourself if you decide to do one.

But I would also ask what other medical tests have been done to rule out a pathogenic or other organic cause?

drewsant Rookie

After about a month of having very severe diarrhea--I mean eating or drinking anything would set me off, and Immodium wouldn't help, I went to the Dr, and he had me tested for different things, because I had recently been on about 3 different antibiotics for a kidney infection until they found one tht worked. He thought maybe it caused another secondary infection in my intestinal tract. Testing ruled that out, and several other things. Every time I get tested, which is usually once a year, they don't find anything, which is why they have always just called it Irritable Bowel Syndrome.

That's why I was wondering if it may be another food I'm allergic or intolerant to, because it seems like an awful lot of people have other intolerances other than just gluten. My doctor wants me to go to an allergist to be tested for several different things, because even he mentioned I could have other allergies going on. I've just been doing really well though, except for the 2 times where I ate gluten and knew it, and got over those episodes within about 3 or 4 days.

Guest BellyTimber

Drewsant, I noticed you mentioned antibiotics, they don't affect everyone equally severely but you may be a person who needs probiotics.

Get a brand that has over 4 billion organisms per capsule. Your bowels will show you what is an adequate and not excessive dose.

Also some live yoghurts have a better dose in them than others - in the UK Rachels and Yeo Valley were reputed to be the strongest when I last read about them some years ago, I don't know which brands you get where you live. If live yoghurt has sugar or sweetener in, that will tend to negate the probiotic element in it.

Also I found that the migraines that I have had since at least 17 years ago when I had a serious infectious illness and which are possibly largely triggered by stress, have probably been causing lots of my upsets because a symptom of migraine is often a digestive shutdown.

Also don't forget to drink water like I've been doing!

HTH

drewsant Rookie
Drewsant, I noticed you mentioned antibiotics, they don't affect everyone equally severely but you may be a person who needs probiotics.

Get a brand that has over 4 billion organisms per capsule.  Your bowels will show you what is an adequate and not excessive dose.

Also some live yoghurts have a better dose in them than others - in the UK Rachels and Yeo Valley were reputed to be the strongest when I last read about them some years ago, I don't know which brands you get where you live.  If live yoghurt has sugar or sweetener in, that will tend to negate the probiotic element in it.

Also I found that the migraines that I have had since at least 17 years ago when I had a serious infectious illness and which are possibly largely triggered by stress,  have probably been causing lots of my upsets because a symptom of migraine is often a digestive shutdown.

Also don't forget to drink water like I've been doing!

HTH

<{POST_SNAPBACK}>

Thanks for the suggestion. At this point, I don't think I can eat dairy without it making me worse, so don't know if yogurt would help. I've tried it before, religiously, and it never made any difference. Once I get over the diarrhea, I'm fine with dairy.

I drink tons of water, because I'm high risk for getting kidney infections due to my disability, so already got that covered!

It's funny, I've only had migraines since I started the gluten-free diet. The Dr. thought it was probably due to the drastic change in diet so quickly.

bluefin Newbie

well

i have not been on a diet so far

but i have heard a lot about atkins diet

search on google and you will find a lot on atkins diet

thanks

drewsant Rookie

Don't think the Atkins Diet would help my situation, but thanks for the suggestion.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PrincessLEah Rookie

maybe you should try allergy testing. I have tons of stuff that make me sick f I eat too much of it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,611
    • Most Online (within 30 mins)
      7,748

    Rotary
    Newest Member
    Rotary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • itsdunerie
      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.