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Newb From Sd

elleystar

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elleystar Newbie
elleystar
Posted

Hi everyone!

I've been haunting the forum the last couple of months, ever since I realized I needed to go gluten free. I'm finally jumping in and hoping to join the conversation. I live in the Black Hills of SD. My health has been going down the tubes the last few years and when I finally reached my breaking point and saw a doctor, it all spiraled into thyroid ultrasounds, a specialist, and finally autoimmune Dx of Hashi's and celiac. At least now I know why I have felt so bad for so long. It's been a real challenge learning how to keep my kitchen safe, with my gluten-eating husband and 4 yr old sharing it with me, and starting all over on the basics of cooking and eating out.

I've already learned so much from reading here, so THANK YOU, and I look forward to getting to know everyone and learning even more!

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bartfull Rising Star
bartfull
Posted

Ellystar, I just wrote to you in the other thread you have posted on, but I forgot to say, "WELCOME!!" I'm sorry you had to join our "club", but it's good to know I have a neighbor I can actually meet up with sometime. I LOVE Spearfish! Not just the beautiful canyon, but the town is great too. You guys have some great restaurants. I used to really enjoy Roma's. Of course I doubt THEY have a gluten-free menu, being an Italian restaurant.

You guys have a Safeway up there, don't you? The one by Bakken Park in Rapid has a HUGE organic section and they carry a ton of gluten-free items, so if your local one doesn't have much, it's worth a trip down. I never used to like grocery shopping, but when I go there I have a ball. "LOOK!!! I can EAT this!!"

Let's stay in touch.

elleystar Newbie
elleystar
Posted
  • Author

Yes, I used to enjoy Roma's now and then, but I really don't think I should go near the place now! Even though they do a few non-pasta things.

Barbacoas was a pleasant surprise last week. Almost the full menu is gluten free, and the two guys who worked on my food went through about 5 pairs of gloves, and even threw away the first bowl of rice and beans. They must have realized they CC'd it somehow, but I didn't catch it, as I was busy perusing all the veggie toppings at that moment.

The Bay Leaf went above and beyond to ensure me a gluten-free bison ribeye with vegetables, caramelized onions, and chilled gazpacho as well. I am going to team up with a local blogging friend of mine who is Primal and gluten-free. We are going to line up interviews with the managers, try to get a quick tour of the kitchens, and then eat a meal, and blog all about it. So I'll be sure to share with you when we do. We hope to do the same all around the Hills!

We do have Safeway but I have heard the one in Rapid City is way better. I was just there today on a whirlwind trip with DS and couldn't stop in. I'll be going back soon though. With a cooler and ice packs!

I actually work at the health food store here so I'm pretty spoiled, I get a nice discount and they really take my suggestions for products.

NickMcKinnis Rookie
NickMcKinnis
Posted

Hello Elleystar! I am pretty new around here but I'd like to welcome you nonetheless. That's really cool that you work at a health food store, I'm jealous.

I can definitely understand the difficulties of staying gluten free in a household that consumes gluten. I live with two roommates, both of which eat gluten. Before them I lived with my ex girlfriend who actually worked at a bakery. Patience is easily spread thin in that environment until you find your own methods of keeping everything safe. I hope your efforts are going more smoothly than mine did.

elleystar Newbie
elleystar
Posted
  • Author

Ellystar, I just wrote to you in the other thread you have posted on, but I forgot to say, "WELCOME!!" I'm sorry you had to join our "club", but it's good to know I have a neighbor I can actually meet up with sometime. I LOVE Spearfish! Not just the beautiful canyon, but the town is great too. You guys have some great restaurants. I used to really enjoy Roma's. Of course I doubt THEY have a gluten-free menu, being an Italian restaurant.

You guys have a Safeway up there, don't you? The one by Bakken Park in Rapid has a HUGE organic section and they carry a ton of gluten-free items, so if your local one doesn't have much, it's worth a trip down. I never used to like grocery shopping, but when I go there I have a ball. "LOOK!!! I can EAT this!!"

Let's stay in touch.

You mentioned the gluten-free fest in Rapid City in your other thread, and I wanted to tell you. My endocrinologist in Rapid is great. He is very knowledgeable and kind of specializes in celiac. He travels around to med schools trying to educate them on it and teach them how to look for it. My cousin's husband (a dr. getting his endo specialisation right now, who lives in NH right now!) actually knew the name as soon as I told him, he'd met him and really respected him. Anyway I know the celiacs group in Rapid works with him and tries to get him to participate in events like these. I wonder if he had the time this go-round.

Hello Elleystar! I am pretty new around here but I'd like to welcome you nonetheless. That's really cool that you work at a health food store, I'm jealous.

I can definitely understand the difficulties of staying gluten free in a household that consumes gluten. I live with two roommates, both of which eat gluten. Before them I lived with my ex girlfriend who actually worked at a bakery. Patience is easily spread thin in that environment until you find your own methods of keeping everything safe. I hope your efforts are going more smoothly than mine did.

She worked in a bakery? I don't know how you survived. Truly.

I used to bake so much, OH MAN I loved to bake. I could make anything. Now I can't do it anymore, not like I used to, know what I mean? It's sad but I try not to dwell on it. I can't give away my cookbooks yet though.

NickMcKinnis Rookie
NickMcKinnis
Posted

She worked in a bakery? I don't know how you survived. Truly.

I used to bake so much, OH MAN I loved to bake. I could make anything. Now I can't do it anymore, not like I used to, know what I mean? It's sad but I try not to dwell on it. I can't give away my cookbooks yet though.

It was extremely challenging, everyday she made a beeline for the shower. I'm sure I was glutened more than once from it, but she took every precaution she could. Sometimes she was even more careful than I was. I would keep the cookbooks, you could always substitute! I know it's not the SAME but I have had a few times where it actually improved a recipe.

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
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      By knitty kitty · Posted

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