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Balance

Danijela

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Danijela Contributor
Danijela
Posted

Hey Everyone!

I just had a celiac blood screening done on Monday I haven't received the results yet, however I was wondering if anyone else has experienced any issues with balance. I find at times (more often at night) I have a real problem with balance and find myself sort of swaying or feeling like i'm going to fall.

Has anyone else experienced this???

Thanks

Danijela

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bluelotus Contributor
bluelotus
Posted

I used to get dizziness and ringing in my ear ..... seemed to be associated with my headaches, which, I now know, were caused by a gluten reaction. I'd like to see what others have to say as well. I hope it clears up for you!

tarnalberry Community Regular
tarnalberry
Posted

I believe that there has been a reported connection between balance issues and the central nervous system manifestations of celiac disease in some people. Others on the board have discussed this before, and I'm sure they'll have some useful information for you soon! :-)

Nantzie Collaborator
Nantzie
Posted

If it does turn out that I have celiac disease, then balance would have been my first, most obvious symptom. I had an incident of heat exhaustion and then I got mono in the same 3-4 month period, then after that, I could only stand a certain way if I didn't have someone to hang on to. I thought it was secondary to the heat exhaustion. My balance got a little better over time, but it's still pretty bad.

Nancy

nikki-uk Enthusiast
nikki-uk
Posted

Yes,my husband definitely had a problem with his balance.

After standing he would have to stand and 'sway' for a minute while he waited for the dizzyness and nausea to pass.Sometimes though it would come over him out the blue.My husband compared it to 'almost fainting'.

Now that he seems to be recovering on gluten-free diet he hasn't had any spells for ages.

Good luck with your results!

ravenwoodglass Mentor
ravenwoodglass
Posted
Hey Everyone!

I just had a celiac blood screening done on Monday I haven't received the results yet, however I was wondering if anyone else has experienced any issues with balance. I find at times (more often at night) I have a real problem with balance and find myself sort of swaying or feeling like i'm going to fall.

Has anyone else experienced this???

Thanks

Danijela

<{POST_SNAPBACK}>

Yes, It is called gluten ataxia, this was my main symptom other than constipation and learning problems as a kid. It got so bad with me that I was thought to have MS. It is also the first sign that I have gotten into something I shouldn't have. The ataxia hits within minutes of injestion, depression and DH blisters the next day then the GI symptoms the next. Being gluten-free stopped the ataxia within a very short time. I was able to give up my canadian canes within 2 months. They are now a sculpture of sorts in the corner of my bedroom. And the best part is no one thinkds I drink anymore, people (including one neuro) thought I was hiding an alcohol problem. They never believed me when I told them I didn't drink more than 2 non-alcoholic beers on a Saturday night. Of course now I know I was geting drunk effects from the gluten in the beer. I can drink half a bottle of wine and not have the same hangover and drunkenness I used to get from 2 non-alcoholic beer.

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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