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super surfer

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super surfer Newbie

Hello all, after reading this forum, I was stunned with the "Oh this is me" epiphany so many times. I was a Celiac baby, and although a skinny kid, grew up with a normal diet. I am now in my fifties, and have chronic joint aches, constipation with alternate diarrhea, skin rash, but none of the extreme stomach pain that I've read about. I have also had a bowel resection, and diagnosed with diverticulitis. Can I relate any of this to my childhood Celiac problems. After reading this forum, I have been on a gluten free diet for about 3 days now, and hope for the best. Thanks in advance for all your input.


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Takala Enthusiast

Welcome.

They used to think that children outgrew this. They don't. :(

super surfer Newbie

Welcome.

They used to think that children outgrew this. They don't. :(

I have been a quasi vegaterian most of my life, and never really ate much bread, so eliminating grains ect. is not that difficult for me. It dosen't seem like much of a change. what other dietary changes could I make, or life style changes, I'm active / exercise, and want to feel better than I usually do. Thanks again

roxieb73 Contributor

Welcome..... I also had that moment here many times. I was a Failure to thrive infant and my mom was told I would not surive. I was a fighter then and I am still fighting. This place is wonderful there are so many wonderful people with great advice. I am sure We will both learn a lot! Good luck.

Roxie

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    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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