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super surfer

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super surfer Newbie

Hello all, after reading this forum, I was stunned with the "Oh this is me" epiphany so many times. I was a Celiac baby, and although a skinny kid, grew up with a normal diet. I am now in my fifties, and have chronic joint aches, constipation with alternate diarrhea, skin rash, but none of the extreme stomach pain that I've read about. I have also had a bowel resection, and diagnosed with diverticulitis. Can I relate any of this to my childhood Celiac problems. After reading this forum, I have been on a gluten free diet for about 3 days now, and hope for the best. Thanks in advance for all your input.


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Takala Enthusiast

Welcome.

They used to think that children outgrew this. They don't. :(

super surfer Newbie

Welcome.

They used to think that children outgrew this. They don't. :(

I have been a quasi vegaterian most of my life, and never really ate much bread, so eliminating grains ect. is not that difficult for me. It dosen't seem like much of a change. what other dietary changes could I make, or life style changes, I'm active / exercise, and want to feel better than I usually do. Thanks again

roxieb73 Contributor

Welcome..... I also had that moment here many times. I was a Failure to thrive infant and my mom was told I would not surive. I was a fighter then and I am still fighting. This place is wonderful there are so many wonderful people with great advice. I am sure We will both learn a lot! Good luck.

Roxie

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    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
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      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
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