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super surfer

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super surfer Newbie
super surfer
Posted

Hello all, after reading this forum, I was stunned with the "Oh this is me" epiphany so many times. I was a Celiac baby, and although a skinny kid, grew up with a normal diet. I am now in my fifties, and have chronic joint aches, constipation with alternate diarrhea, skin rash, but none of the extreme stomach pain that I've read about. I have also had a bowel resection, and diagnosed with diverticulitis. Can I relate any of this to my childhood Celiac problems. After reading this forum, I have been on a gluten free diet for about 3 days now, and hope for the best. Thanks in advance for all your input.

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Takala Enthusiast
Takala
Posted

Welcome.

They used to think that children outgrew this. They don't. :(

super surfer Newbie
super surfer
Posted
  • Author

Welcome.

They used to think that children outgrew this. They don't. :(

I have been a quasi vegaterian most of my life, and never really ate much bread, so eliminating grains ect. is not that difficult for me. It dosen't seem like much of a change. what other dietary changes could I make, or life style changes, I'm active / exercise, and want to feel better than I usually do. Thanks again

roxieb73 Contributor
roxieb73
Posted

Welcome..... I also had that moment here many times. I was a Failure to thrive infant and my mom was told I would not surive. I was a fighter then and I am still fighting. This place is wonderful there are so many wonderful people with great advice. I am sure We will both learn a lot! Good luck.

Roxie

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      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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