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New Here, Hoping For Some Help With Test Results.

kmwondering

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kmwondering Rookie
kmwondering
Posted

Hello all. I am learning so much from reading the boards already. I'm honestly a little overloaded with information. I'm slowly trying to understand what all the tests are and what they mean. I'd like to post the results of the tests I've had, which are negative according to my doctor. Please, share your opinions and suggestions about tests that may have been missed. I'd like to arm myself with as much information as possible before my follow up visit. Based on a lifetime of symptoms, Celiac seems to fit. I'm planning on trying gluten free no matter what the final outcome of my testing is, but I'd prefer a definite positive if it is, in fact, celiac.

ARUP Laboratories

Deamidated Gliandin Peptide AB, IGA

11 units

Reference range 0-19, negative

Celiac Disease reflexive panel

Immunoglobulin A, Total

143

Reference Range 68-378

Tissue Transglutaminase IGA

15 units

Reference range 0-19, negative

I see other tests mentioned here but am having a hard time piecing out which is which. Thanks in advance!

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Takala Enthusiast
Takala
Posted

Those were good tests, in combination, but read here:

and here:

Open Original Shared Link

There are plenty of people around who never got a "formal" diagnosis because they didn't throw a proper blood test. Yet they had matching symptoms for celiac and gluten intolerance, and much documented damage which matches the disease. Don't despair. Once you are past all the tests, based on your symptoms, give the gluten free diet a trial.

kmwondering Rookie
kmwondering
Posted
  • Author

Those were good tests, in combination, but read here:

and here:

Open Original Shared Link

There are plenty of people around who never got a "formal" diagnosis because they didn't throw a proper blood test. Yet they had matching symptoms for celiac and gluten intolerance, and much documented damage which matches the disease. Don't despair. Once you are past all the tests, based on your symptoms, give the gluten free diet a trial.

Thanks so much for the response and the links. Very helpful.

kmwondering Rookie
kmwondering
Posted
  • Author

Anyone reading this have the experience of having negative IGA but positive IGG? Thinking about requesting the IGG....I am wishing that I had been more educated several months ago when I had an endoscopic ultrasound done, maybe I could have asked them to snag a biopsy while they were in there anyway.

beachbirdie Contributor
beachbirdie
Posted

Anyone reading this have the experience of having negative IGA but positive IGG? Thinking about requesting the IGG....I am wishing that I had been more educated several months ago when I had an endoscopic ultrasound done, maybe I could have asked them to snag a biopsy while they were in there anyway.

There are a couple of folks around here with positive IgG and negative IgA. Some have only the TtG IgG which they don't often test. At least two of those came back with serious intestinal damage on their biopsies.

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    • trents
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      By trents · Posted

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      Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure.  These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract.  Joints can ache, thyroid problems or the pancreas can develop.  Ataxia is just one of over two hundred symptoms of Celiac Disease. Some people with Celiac Disease also make tTg IgA 6 antibodies in response to gluten exposure.  The tTg IgA 6 antibodies attack the brain, causing ataxia.  These tTg IgA 6 antibodies are also found in people with Parkinson's disease, though they may not have Celiac Disease.  First degree relatives (parents, siblings, children) of those diagnosed with Celiac should be tested as well.  Celiac is genetic.  Your mom and sister should be tested for Celiac, too!   Definitely a good idea to keep to a gluten free diet.  
    • knitty kitty
      symptoms.

      By knitty kitty · Posted

      @Rebeccaj,  When you smell toast or pasta cooking, that means that particles of that food are floating around in the air.  Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract.   If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies.  
    • Rebeccaj
      symptoms.

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