Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thoughts?


troykm

Recommended Posts

troykm Apprentice

Hi all, I'm new to this forum and new to the idea of celiac disease.

I must say at this stage i have not been tested for the disease but next week am having a gastroscopy for diagnosis. However i have been reading a lot about this disease and think it may just be what i have. Let me give you all a run down on myself and see what your thoughts are.

I am 34 years old and have always had attention difficulties, mood swings, short disturbed sleep, sore throats in childhood. In early adulthood i developed panic attacks and generalised anxiety, depression and more.

my full symptoms list from head to toe would be dull headaches, panic attacks (not so much now) anxiety, depression, foggy head, occasional light headedness for a second or two, ever so slight blurry vision despite being told countless times i have 20/20 vision, constant runny nose or post nasal drip (my whole life) almost constant sore throat, bad breath, reflux without heartburn, the full gamut of IBS symptoms, and psoriasis.

now i don't have all these symptoms all at once all the time. the anxiety and the IBS are the most present, almost daily. headaches weekly foggy brain lots. mood changes constantly LOL but i just don't seem to be the person i once was. i used to be the life of the party, now I'm happy to just sit in the corner or stay home. i just don't feel right. I've even caught myself getting paranoid recently and thats something new but I've grabbed myself and managed to halt that.

now so far in my life i have been diagnosed with - anxiety disorder - depression - GERD/GORD - IBS. now most of those symptoms above are symptoms of those illnesses but only in celiac disease are they ALL symptoms of one illness. i should note anxiety and depression have never gotten better with treatment (pill or talk) and neither have they gotten worse over time. i take nexium for the GERD but i want to stop as it has long term side effects, and what got me onto the whole celiac thing was that even on the nexium i could eat/drink anything EXCEPT wheatbix and other foods with a lot of wheat/gluten in them, that always sets off the reflux despite the nexium. if i go a day with no wheat/ gluten my IBS seems to stop.

i have had blood tests come back normal (general tests, not for celiac) CT scans, thyroid tests, etc etc etc, operations to remove tonsils and a nasal reconstruction for the sore throat and drip, neither stopped either of them. even had wisdom teeth out earlier this year just in case they were causing something but alas, no. Other than those listed issues, i am in good health (i know thats a funny thing to say after all that but i mean no other illness found)

does any of what i have said point to celiac disease or even just a gluten intolerance? i would be grateful for any insight.

many thanks and a big hi from Australia

troy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

Hi all, I'm new to this forum and new to the idea of celiac disease.

I must say at this stage i have not been tested for the disease but next week am having a gastroscopy for diagnosis. However i have been reading a lot about this disease and think it may just be what i have. Let me give you all a run down on myself and see what your thoughts are.

I am 34 years old and have always had attention difficulties, mood swings, short disturbed sleep, sore throats in childhood. In early adulthood i developed panic attacks and generalised anxiety, depression and more.

my full symptoms list from head to toe would be dull headaches, panic attacks (not so much now) anxiety, depression, foggy head, occasional light headedness for a second or two, ever so slight blurry vision despite being told countless times i have 20/20 vision, constant runny nose or post nasal drip (my whole life) almost constant sore throat, bad breath, reflux without heartburn, the full gamut of IBS symptoms, and psoriasis.

now i don't have all these symptoms all at once all the time. the anxiety and the IBS are the most present, almost daily. headaches weekly foggy brain lots. mood changes constantly LOL but i just don't seem to be the person i once was. i used to be the life of the party, now I'm happy to just sit in the corner or stay home. i just don't feel right. I've even caught myself getting paranoid recently and thats something new but I've grabbed myself and managed to halt that.

now so far in my life i have been diagnosed with - anxiety disorder - depression - GERD/GORD - IBS. now most of those symptoms above are symptoms of those illnesses but only in celiac disease are they ALL symptoms of one illness. i should note anxiety and depression have never gotten better with treatment (pill or talk) and neither have they gotten worse over time. i take nexium for the GERD but i want to stop as it has long term side effects, and what got me onto the whole celiac thing was that even on the nexium i could eat/drink anything EXCEPT wheatbix and other foods with a lot of wheat/gluten in them, that always sets off the reflux despite the nexium. if i go a day with no wheat/ gluten my IBS seems to stop.

i have had blood tests come back normal (general tests, not for celiac) CT scans, thyroid tests, etc etc etc, operations to remove tonsils and a nasal reconstruction for the sore throat and drip, neither stopped either of them. even had wisdom teeth out earlier this year just in case they were causing something but alas, no. Other than those listed issues, i am in good health (i know thats a funny thing to say after all that but i mean no other illness found)

does any of what i have said point to celiac disease or even just a gluten intolerance? i would be grateful for any insight.

many thanks and a big hi from Australia

troy

My doctor told me that psoriasis is definately connected with gluten intolerance. I have other of the symptoms you mention foggines, anxiety, and blurry vision. These do seem to be much improved by my grain free diet. I have been on it 2 months. I hope you will be helped and get healthy.

GFinDC Veteran

Hi Troy,

Welcome to the site! (hand waving smiley here that we don't have available.)

You could indeed have celiac or NCGI. Before starting the gluten-free diet though it would be good to have the blood antibody tests done for celiac. It could also be a wheat allergy instead, which is pretty much treated the same way, with diet. Different tests though. Your symptoms sound like a good match to me though.

Some starting the gluten-free diet tips:

Get tested before starting the gluten-free diet.

Don't eat in restaraunts

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

Some threads with good info:

FAQ Celiac com

https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Celiac Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Easy yummy bread in minutes

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.