Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge

Kazza40

Recommended Posts

Kazza40 Newbie
Kazza40
Posted

Hi I am new to this forum. My father is a Celiac and about 7 years ago I started getting bad symptoms that where very much like what my father went through. The worst for me was the big weight loss and nerve symptoms, along with gastro symptoms. So I went on a gluten free diet, that my father suggested and have been now, for 6 years. Now my GP wants me to do the Gluten Challenge due to bad gastro symptoms that have come up again in the last 4 months. This concerns me due to the long period I have been gluten free and will the 4 week challenge show up on the blood tests. The one thing that did come up on my blood tests 7 years ago when my GP did so some blood tests (at that time they did not test me for Celiacs), was an elivataed ANA at 1:320 since being gluten free I have had a negative ANA he wants to see if this goes up again. I just dont know what the need is to find out if it is Celiacs or not. I am scared of eating gluten again, there has been a big improvment in my over the last 6 years, except for the last 4 months. Any help would be great, Many Thanks

  • 4 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Howlin-Radio Newbie
Howlin-Radio
Posted

Hi I am new to this forum. My father is a Celiac and about 7 years ago I started getting bad symptoms that where very much like what my father went through. The worst for me was the big weight loss and nerve symptoms, along with gastro symptoms. So I went on a gluten free diet, that my father suggested and have been now, for 6 years. Now my GP wants me to do the Gluten Challenge due to bad gastro symptoms that have come up again in the last 4 months. This concerns me due to the long period I have been gluten free and will the 4 week challenge show up on the blood tests. The one thing that did come up on my blood tests 7 years ago when my GP did so some blood tests (at that time they did not test me for Celiacs), was an elivataed ANA at 1:320 since being gluten free I have had a negative ANA he wants to see if this goes up again. I just dont know what the need is to find out if it is Celiacs or not. I am scared of eating gluten again, there has been a big improvment in my over the last 6 years, except for the last 4 months. Any help would be great, Many Thanks

My advice would be to cut out dairy on top of gluten and see if the digestive problems improve. The proteins can cross-react, sudden increase in dairy intake over a period of time could provoke this response.

Takala Enthusiast
Takala
Posted

So this doctor wants you to torture yourself for the next 4 weeks so they can run some tests that will likely show you to be "negative" anyway. Like magic your blood tests after 6 years off gluten are going to come back up suddenly positive after only four weeks.

Tell me, has the doctor scheduled his month of August vacation yet or .... ?

:blink:<_<:angry:

ravenwoodglass Mentor
ravenwoodglass
Posted

If you were doing well on the diet until 4 months ago look back and see if you can figure out what may have changed. New med, supplement, change in formulation of a food you eat, new restaurant that you are going to, new significant other who eats gluten,new toiletry that contains gluten, new pet or hobby, home remodeling, new job working with gluten items etc.

You don't have to go back on gluten to be tested for other problems as being gluten free will not mask any other illness. We can have other problems crop up or other intolerances can rear their heads. The most common being soy and dairy.

Cara in Boston Enthusiast
Cara in Boston
Posted

I doubt 4 weeks would be long enough - although it is different for everyone. My doctor told me 4-6 MONTHS (I did not last that long.)

The only thing you would need to be eating gluten for is to be tested for Celiac. You already KNOW you have an issue with gluten so I'm not sure why, after 6 years, you need to be tested for it.

If there is a concern that there is another problem - something other than gluten causing your new symptoms - testing for it wouldn't require you to eat gluten (does that make sense?)

My guess (but I'm no doctor) is that you are getting contaminated with gluten from something you have added or changed in the last few months. It could even be a product you have used for years - maybe they suddenly changed the way it was processed or changed the ingredients.

If you think it is gluten - find the gluten.

If you think it is a new and different problem, you don't need to test for gluten intolerance or celiac and therefor do not need to resume eating gluten again.

Cara

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    2. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    3. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    4. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    5. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,850
    • Most Online (within 30 mins)
      7,748
    Cindy Shreve
    Newest Member
    Cindy Shreve
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.