4 Year Old Immunoglobin A Deficiency Celiac?

[Kate129]

My 4 yearold daughter has had problems complaining of stomachs and diarrhea for the last 6 months or so on and off. I tested positive for celiac bloodwork but had a negative biopsy and my cousin is celiac with positive biopsy. Since my cousin had a positive biopsy and my blood work was so positive my GI doc said to go gluten free so I have been for 8 months.

Here is the part where I am not sure what to do. Last week I had her tested at the pediatrician and her immunioglobin A came back 60 the range is 66- 440.. Her other tests the ttg and the antiglidan IGG were both normal.. What should I do? Could she still have celiac ? Do i bother taking her to a gi doc or get genetic testing done? I really don't want her to go on having stomach issues because the peditrician shrugged off the low immunoglobin A.. thanks for any advice!

[Mom2J112903]

My personal feelings are-if any symptom has gone on long enough to cause a change in daily life style, a specialist needs brought in. A pediatrician is for simple childhood things, not something like this. It can still be Celiac but the testing will not be accurate as the IgA is low. There are MANY other GI disorders it could be as well, so a GI is a good thing to have involved.

[Kate129]

My personal feelings are-if any symptom has gone on long enough to cause a change in daily life style, a specialist needs brought in. A pediatrician is for simple childhood things, not something like this. It can still be Celiac but the testing will not be accurate as the IgA is low. There are MANY other GI disorders it could be as well, so a GI is a good thing to have involved.

Yeah I was thinking the same thing it is just a hard call because she is completely healthy looking. she just gets diarrhea.. I guess we will be going to the gi doc and get all of this figured out. Thanks for the advice

[Mom2J112903]

Has she ever had *any* type of allergy testing? I would get the delayed allergens pulled as well as immediate. A good allergist will know what to draw and how to write up the lab slip. Some delayed allergies can and do cause GI problems.

[Kate129]

Has she ever had *any* type of allergy testing? I would get the delayed allergens pulled as well as immediate. A good allergist will know what to draw and how to write up the lab slip. Some delayed allergies can and do cause GI problems.

She has never had any allergy testing but that is good idea.. I just automatically go to celiac when I think diarrhea just because I was that way.. It is frustrating because the pediatricain didn't seem concerned at all since she is completely healthy just has diarrhea.. She usually will bend over in pain and say my tummy hurts over and over.. Then she runs to the bathroom and afterwards is running around like nothing ever happened.. I thought maybe I was just paranoid but then my mom agreed with me that it wasn't normal and she was concerned too.. It seems like it is up to me to figure it out since the pediatrician doesn't seem to care. I will definitely look into allergy testing and the GI doc I want to figure this out for her while she is little and not when she is an adult..

[Mom2J112903]

I guess you could say that thanks to our experinces with the little man we are "outside the box" thinkers. We started at birth with GI problems but he has been seen by many other specialities over the years because of different things.

[Kate129]

I guess you could say that thanks to our experinces with the little man we are "outside the box" thinkers. We started at birth with GI problems but he has been seen by many other specialities over the years because of different things.

Well thanks for all the advice I really appreciate it! :-)