Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

14 And Gluten Free... Making Others Listen

rml97

Recommended Posts

rml97 Rookie
rml97
Posted

...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Food for Life
Food for Life

Celiac.com Sponsor (A8-M):
Daura Damm

psawyer Proficient
psawyer
Posted

I also use purell all the time (probably more than anyone is supposed to, but I don't like taking chances).

Just so you know, Purell has no effect on gluten. It is a disinfectant. To remove gluten, you need soap and water and scrubbing.

rml97 Rookie
rml97
Posted
  • Author

Thank you so much for this information! I alway use soap and water before I eat and purell only to make sure Im still clean.....I guess I was just wasting a lot of time and purell on that....

rml97 Rookie
rml97
Posted
  • Author

Do you know if wipes, like Wet Ones, would be a better option if I can't get to a sink?

tom Contributor
tom
Posted

Hi rml,

I read your orig july5 post above which is now erased? I thought it was a good description of your situation, and well-written.

I know the "can't be too careful" mindset, and that there's plenty of times i'd go 'overboard' by someone else's definition, but THEY don't know what it's like, do they?

I say be as careful or overly careful as makes you comfortable, despite whatever else goes on in the house. As time goes by you might re-evaluate boundaries but family members that aren't affected (perhaps a "yet" belongs here) shouldn't be making the gluten-free rules for you. (Now I'm not certain how well I remember your post)

Everyone on the forum is rooting for you & will offer tips as much as possible.

Now, regarding the wipes if no sink around - I don't know. Would that be for if you for sure touched some bread, or more like "better safe than sorry"?

rml97 Rookie
rml97
Posted
  • Author

Hi rml,

I read your orig july5 post above which is now erased? I thought it was a good description of your situation, and well-written.

I know the "can't be too careful" mindset, and that there's plenty of times i'd go 'overboard' by someone else's definition, but THEY don't know what it's like, do they?

I say be as careful or overly careful as makes you comfortable, despite whatever else goes on in the house. As time goes by you might re-evaluate boundaries but family members that aren't affected (perhaps a "yet" belongs here) shouldn't be making the gluten-free rules for you. (Now I'm not certain how well I remember your post)

Everyone on the forum is rooting for you & will offer tips as much as possible.

Now, regarding the wipes if no sink around - I don't know. Would that be for if you for sure touched some bread, or more like "better safe than sorry"?

Im not sure what happened to my original post.... I asked about the wipes and then it was gone with just "......"

Anyway, I really appreciate what you said about being too careful. I often don't listen to others and just do what makes me feel comfortable even if I know that I sometimes go too far. I dont like taking chance and even if others think my precautions are crazy I try not to listen and do them anyway. My parents are starting to think that Im being obsessive over how causious I am, thats why I had mentioned being unsure of my careful ways...

As for the wipes it would be for "better safe than sorry" perposes....I dont touch gluten at all (and in the rare occassion that I do, I scrub up to my elbows atleast 3 times with a lot of soap and water)

Thanks! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):
    Holidaily Brewing Co.
    GliadinX


    Celiac.com Sponsors (A17-M):

    GliadinX


  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to maryannlove's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Yasso frozen yogurt bars - be careful

      Thanks for sharing this! Talk about frustrating! It is complicated enough to try to keep track of which products are safe, but the concept of the same product sold at 2 different stores--one that is certified gluten-free and one that isn't--that is exactly why having celiac disease is still so difficult, and it is so easy to make mistakes!
    2. Scott Adams
      - Scott Adams replied to cristiana's topic in Traveling with Celiac Disease
      1

      UK Visitors: Award Winning Flapjackery in the West Country (and Chichester, West Sussex)

      It's great that this business has celiac disease awareness and uses gluten-free oats! I wish more restaurants would make such simple changes, for example if Asian restaurants switched to using gluten-free soy sauce, many (but not all!) risks would be eliminated for lots of their dishes. My daughter works at a Vietnamese restaurant where the owner is keenly...
    3. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Frustrated

      It sounds like you’ve been doing everything right—strictly avoiding gluten, managing food allergies, and advocating for yourself—yet you’re still dealing with severe pain, exhaustion, and other debilitating symptoms. The fact that your colonoscopy came back clear after 31 years gluten-free is a testament to your diligence, but it doesn’t erase the very real...
    4. Beverage
      - Beverage replied to Betsy Crum's topic in Related Issues & Disorders
      8

      Chest pain from celiac

      Could you be having acid reflux? I used to get it soooo bad before I was diagnosed, now very rarely. I didnt have stomach upset, aka silent reflux, but pain in chest (thought I was having a heart attack) and food would get stuck from the esophagus irritation. The things here really helped, especially raising head of bed, sip of apple cider vinegar before...
    5. Wheatwacked
      - Wheatwacked replied to Mrs. Cedrone's topic in Related Issues & Disorders
      4

      Canker sores

      Studies have shown that individuals with canker sores tend to have lower levels of vitamin D in their blood compared to those without the condition. This suggests that vitamin D deficiency could be a risk factor for developing canker sores. Vitamin D deficiency is very common in Celiac Disease.
  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse


  • Member Statistics

    • Total Members
      130,412
    • Most Online (within 30 mins)
      7,748
    Saharon
    Newest Member
    Saharon
    Joined
  • Celiac.com Sponsor (A20):
    Authentic Foods

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Celiac.com Sponsor (A21):
    Authentic Foods


  • Upcoming Events

  • Posts

    • Scott Adams
      Yasso frozen yogurt bars - be careful

      By Scott Adams · Posted

      Thanks for sharing this! Talk about frustrating! It is complicated enough to try to keep track of which products are safe, but the concept of the same product sold at 2 different stores--one that is certified gluten-free and one that isn't--that is exactly why having celiac disease is still so difficult, and it is so easy to make mistakes!
    • Scott Adams
      UK Visitors: Award Winning Flapjackery in the West Country (and Chichester, West Sussex)

      By Scott Adams · Posted

      It's great that this business has celiac disease awareness and uses gluten-free oats! I wish more restaurants would make such simple changes, for example if Asian restaurants switched to using gluten-free soy sauce, many (but not all!) risks would be eliminated for lots of their dishes. My daughter works at a Vietnamese restaurant where the owner is keenly aware of celiacs, and he has made the switch to gluten-free soy and fish sauces. 
    • Scott Adams
      Frustrated

      By Scott Adams · Posted

      It sounds like you’ve been doing everything right—strictly avoiding gluten, managing food allergies, and advocating for yourself—yet you’re still dealing with severe pain, exhaustion, and other debilitating symptoms. The fact that your colonoscopy came back clear after 31 years gluten-free is a testament to your diligence, but it doesn’t erase the very real struggles you’re facing daily. It’s concerning that previous doctors dismissed your celiac diagnosis, and now you’re left fighting for validation while dealing with unexplained symptoms like eye pressure, skin issues, and relentless pain. Menopause and long COVID may be complicating things further, making it even harder to pinpoint the root cause. Are you sure your diet is 100% gluten-free? Do you eat in restaurants...if so, this can be a source of contamination. Trace amounts of gluten over time could explain your symptoms. Many people with celiac disease have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Beverage
      Chest pain from celiac

      By Beverage · Posted

      Could you be having acid reflux? I used to get it soooo bad before I was diagnosed, now very rarely. I didnt have stomach upset, aka silent reflux, but pain in chest (thought I was having a heart attack) and food would get stuck from the esophagus irritation. The things here really helped, especially raising head of bed, sip of apple cider vinegar before meals with protein, heel thumping, and until it healed, taking DGL after meals to coat...do NOT take antacids https://drjockers.com/acid-reflux/ DGL https://www.amazon.com/Integrative-Therapeutics-Rhizinate-Deglycyrrhizinated-Licorice/dp/B001WUC406/  
    • Wheatwacked
      Canker sores

      By Wheatwacked · Posted

      Studies have shown that individuals with canker sores tend to have lower levels of vitamin D in their blood compared to those without the condition. This suggests that vitamin D deficiency could be a risk factor for developing canker sores.  Vitamin D deficiency is very common in Celiac Disease.
×
×
  • Create New...