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3 Questions

portulaca

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portulaca Newbie
portulaca
Posted

Few Celiac Kid questions. 1st, celiac daughter interested in going Veg. We won't eliminate meat altogether for her until she is older - but any recomendations for gluten-free Veg. resources - recipes, websites and nutrition? She has a wide palate. 2nd, she is low in Vit. D. anyone know if this is common w. Celiac Disease? 3rd. Looking to upgrade phones, any opinions on gluten-free Droid app vs. Iphone gluten-free app?

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StephanieL Enthusiast
StephanieL
Posted

I can only answer question 2 for you. Vit.D deficiency is very common overall, not just the Celiac community. Depending on where you live (I am in northern Ohio) MOST people are low in D.

veruca Newbie
veruca
Posted

I have an iPhone and I frequently use the following apps 1) is that Gluten Free? and 2) Find me Gluten Free. The first one is a repository of product information. I use it constantly when I'm shopping to ascertain whether or not specific brands are safe. It is really helpful and has the info about specific flavors as well.

I use Find me gluten free when I travel and even around my own city to locate gluten-free restaurants. Last summer I was in upstate NY and found some diner style place with a bakery that was totally gluten free. I had chicken fingers and mozzarella sticks. I didn't even know I missed those!

1974girl Enthusiast
1974girl
Posted

1 )I have no idea. Sorry. We would starve if my dd had to eat veggies. She hates them and I have to practically force them down her.

2)I haven't had my daughter's vitamin level checked but my mom's doctor told me he has not seen one person come back without a vitamin D problem. This is just a regular doctor. But...since celiacs can often go with increased risk of Type 1 diabetes (my husband!), there are several studies that show 1000mg of Vitamin D may prevent it. The rate of diabetes is higher the farther you get from the equator leading them to think the sun may have something to do with it. In Finland where they stay bundled up, it is very high. So I give my DDs (both) vitamin D suppliments. The recommended dose for a child is 400 but the video I watched said to try to stop diabetes, it should be 1000mg.

3)If you are new to this thing... I lived with scanavert for my Iphone for the first few months. You can mark what you are allergic to (gluten) and then it has a barcode scanner. It will tell you what is safe and what is not. It will even tell you drug interactions if you have any. It is $1.99 a month or $9.99 for 6 months. It was a lifesaver and I used it for about 3 months until I felt comfortable reading labels. There were a few times I missed it and the scanner caught it.(stupid malt flavoring!) I think this should be maditory at diagnosis. HA HA!

I also have Glutenless Dining and Find me Gluten Free. Do not get gluten-free Fast Food. It was flat out wrong. It said Hardees Hashrounds were gluten free and the manager said they were most certainly not. So skip that one.

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    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      New Celiac Mama in My 30s

      By trents · Posted

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
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      New Celiac Mama in My 30s

      By Mari · Posted

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
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