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3 Questions

portulaca

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portulaca Newbie
portulaca
Posted

Few Celiac Kid questions. 1st, celiac daughter interested in going Veg. We won't eliminate meat altogether for her until she is older - but any recomendations for gluten-free Veg. resources - recipes, websites and nutrition? She has a wide palate. 2nd, she is low in Vit. D. anyone know if this is common w. Celiac Disease? 3rd. Looking to upgrade phones, any opinions on gluten-free Droid app vs. Iphone gluten-free app?

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StephanieL Enthusiast
StephanieL
Posted

I can only answer question 2 for you. Vit.D deficiency is very common overall, not just the Celiac community. Depending on where you live (I am in northern Ohio) MOST people are low in D.

veruca Newbie
veruca
Posted

I have an iPhone and I frequently use the following apps 1) is that Gluten Free? and 2) Find me Gluten Free. The first one is a repository of product information. I use it constantly when I'm shopping to ascertain whether or not specific brands are safe. It is really helpful and has the info about specific flavors as well.

I use Find me gluten free when I travel and even around my own city to locate gluten-free restaurants. Last summer I was in upstate NY and found some diner style place with a bakery that was totally gluten free. I had chicken fingers and mozzarella sticks. I didn't even know I missed those!

1974girl Enthusiast
1974girl
Posted

1 )I have no idea. Sorry. We would starve if my dd had to eat veggies. She hates them and I have to practically force them down her.

2)I haven't had my daughter's vitamin level checked but my mom's doctor told me he has not seen one person come back without a vitamin D problem. This is just a regular doctor. But...since celiacs can often go with increased risk of Type 1 diabetes (my husband!), there are several studies that show 1000mg of Vitamin D may prevent it. The rate of diabetes is higher the farther you get from the equator leading them to think the sun may have something to do with it. In Finland where they stay bundled up, it is very high. So I give my DDs (both) vitamin D suppliments. The recommended dose for a child is 400 but the video I watched said to try to stop diabetes, it should be 1000mg.

3)If you are new to this thing... I lived with scanavert for my Iphone for the first few months. You can mark what you are allergic to (gluten) and then it has a barcode scanner. It will tell you what is safe and what is not. It will even tell you drug interactions if you have any. It is $1.99 a month or $9.99 for 6 months. It was a lifesaver and I used it for about 3 months until I felt comfortable reading labels. There were a few times I missed it and the scanner caught it.(stupid malt flavoring!) I think this should be maditory at diagnosis. HA HA!

I also have Glutenless Dining and Find me Gluten Free. Do not get gluten-free Fast Food. It was flat out wrong. It said Hardees Hashrounds were gluten free and the manager said they were most certainly not. So skip that one.

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    • trents
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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
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