Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bacterial Overgrowth - Anyone Familiar With This?


Sunny1008

Recommended Posts

Sunny1008 Rookie

Hi everyone,

I have been on a gluten-free diet for a month now, and my symptoms are not that much better. I have been reading about SIBO (small intestinal bacterial overgrowth) and am wondering if I have it. (Asked the doctor for a test and waiting to hear back from him.)

Symptoms are:

Nausea

Gagging

Extreme bloating (looks like I'm pregnant)

Stomach pain and cramps

Constipation

Multiple food intolerances

Does anyone have any experience with SIBO?

Thanks!

Sunny


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

My doctor tested me for this at the same time as celiac. Happily it was negative so I'm unable to help.

I hope you are feeling better soon.

Sunny1008 Rookie

My doctor tested me for this at the same time as celiac. Happily it was negative so I'm unable to help.

I hope you are feeling better soon.

Darn! But thanks anyway, nvsmom.

lovegrov Collaborator

I once heard a celiac doctor in the Atlanta area (Cynthia Rudert) who generally put her new patients on probiotics because bacterial overgrowth is frequently found with untreated celiac. It can also be difficult to detect and diagnose (sound familiar?). According to her, the probiotics can't hurt and might help. This was 10 years ago. Can't say if she's changed her treatment since then.

richard

Sunny1008 Rookie

I once heard a celiac doctor in the Atlanta area (Cynthia Rudert) who generally put her new patients on probiotics because bacterial overgrowth is frequently found with untreated celiac. It can also be difficult to detect and diagnose (sound familiar?). According to her, the probiotics can't hurt and might help. This was 10 years ago. Can't say if she's changed her treatment since then.

richard

Richard,

I tried some probiotics a couple weeks ago (the pearls), and they made me very, very nauseous, so I had to stop taking them. I don't know why...maybe they were too strong, or I wasn't taking the right kind??? Very frustrating though.

Sunny

beachbirdie Contributor

Richard,

I tried some probiotics a couple weeks ago (the pearls), and they made me very, very nauseous, so I had to stop taking them. I don't know why...maybe they were too strong, or I wasn't taking the right kind??? Very frustrating though.

Sunny

If you have a poor balance of flora in your intestine, you might not be able to tolerate a full dose of probiotics at first. You also might need to avoid dairy based ones, as well as avoiding ones with "pre-biotics" also called "FOS" which stands for fructo-oligosaccharides. Inulin is sometimes added as a pre-biotic, and could present problems as well.

If you suspect a bacteria problem, I would definitely recommend the Open Original Shared Link or the Open Original Shared Link diet. Many people have found relief with those. They are not easy at first, there are a lot of restrictions, but once you learn which foods are "safe" it isn't so bad! And, you don't necessarily have to follow the time-table they lay out, where you add foods back into your diet little by little. You could probably jump into the full "legal" diet and be fine, and figure out whether it is helping you or not. You would want to give it a little time, a couple of weeks to a month.

Look for a probiotic without FOS or inulin, and take only tiny amounts. If it is a powder in a capsule, break it open and use only part of it. Work your way up slowly to bigger doses.

If you have bacteria overgrowth, you need to deprive the bad bacteria of the compounds which feed them. The two diets I mentioned do that.

Sunny1008 Rookie

If you have a poor balance of flora in your intestine, you might not be able to tolerate a full dose of probiotics at first. You also might need to avoid dairy based ones, as well as avoiding ones with "pre-biotics" also called "FOS" which stands for fructo-oligosaccharides. Inulin is sometimes added as a pre-biotic, and could present problems as well.

If you suspect a bacteria problem, I would definitely recommend the Open Original Shared Link or the Open Original Shared Link diet. Many people have found relief with those. They are not easy at first, there are a lot of restrictions, but once you learn which foods are "safe" it isn't so bad! And, you don't necessarily have to follow the time-table they lay out, where you add foods back into your diet little by little. You could probably jump into the full "legal" diet and be fine, and figure out whether it is helping you or not. You would want to give it a little time, a couple of weeks to a month.

Look for a probiotic without FOS or inulin, and take only tiny amounts. If it is a powder in a capsule, break it open and use only part of it. Work your way up slowly to bigger doses.

If you have bacteria overgrowth, you need to deprive the bad bacteria of the compounds which feed them. The two diets I mentioned do that.

Hi beachbirdie,

Thanks for the info! I am trying the "Leaky Gut Diet" which is very similar to the SCD and GAPS diets. It is basically a lot of whole, unprocessed, low-inflammatory foods, which deprive the bad bacteria and allow the gut a chance to heal. So far, it has been really challenging for me b/c I am used to eating kind of a lot of processed crap. So I am really having to work hard at changing my habits.

Sunny


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beachbirdie Contributor

Hi beachbirdie,

Thanks for the info! I am trying the "Leaky Gut Diet" which is very similar to the SCD and GAPS diets. It is basically a lot of whole, unprocessed, low-inflammatory foods, which deprive the bad bacteria and allow the gut a chance to heal. So far, it has been really challenging for me b/c I am used to eating kind of a lot of processed crap. So I am really having to work hard at changing my habits.

Sunny

It is definitely a major life-change! I hope that soon you will be able to feel well enough to say "it's worth it!" :)

We have several variations of this saying at my house, but my family and I like to remind each other that "nothing tastes as good as being pain-free feels!"

Bubba's Mom Enthusiast

I was DXed with Celiac just over a year ago. When I went gluten-free I immediately felt better, but then started reacting to additional foods.

I went to Mayo Clinic 3 times for additional testing. My hydrogen breath test for SIBO came back with high hydrogen and methane. I was told I most likely have a severe bacterial overgrowth.

The bad bacteria feed on what you're eating and emit toxins, which cause you to get a reaction. They will also prevent you from healing. Your reactions can also change in intensity as the various types of bacteria shift in numbers.

Initially I went on antibiotics, but didn't notice a change. I went off them and now take probiotics..3 different brands for a mix of good bacteria, and went on digestive enzymes too.

Culturelle dairy free is a good one, and I also take Power dophilus, and Nature's Bounty advanced 10.

It takes time to kill off the bad bacteria and replace it with good. I'm also incorporating coconut oil into my diet to help fight against yeast.

It's best to start slow with the probiotics. They can cause a die-off of bacteria, which will make you feel sick. Maybe start with the dairy free Culturelle? maybe even 1/2 of tablet/capsule of whichever brand you try?

If your Dr. recommends antibiotics, it's good to take the probiotics too..if not during, then certainly after taking the RX. You want to build a healthy flora in there, which takes time. Following one of the sugar/simple carb, grain restricting diets help too.

Sunny1008 Rookie

It is definitely a major life-change! I hope that soon you will be able to feel well enough to say "it's worth it!" :)

We have several variations of this saying at my house, but my family and I like to remind each other that "nothing tastes as good as being pain-free feels!"

beachbirdie,

I have been saying that A LOT lately to myself - "Nothing tastes as good as feeling WELL feels!!" :D

Sunny1008 Rookie

I was DXed with Celiac just over a year ago. When I went gluten-free I immediately felt better, but then started reacting to additional foods.

I went to Mayo Clinic 3 times for additional testing. My hydrogen breath test for SIBO came back with high hydrogen and methane. I was told I most likely have a severe bacterial overgrowth.

The bad bacteria feed on what you're eating and emit toxins, which cause you to get a reaction. They will also prevent you from healing. Your reactions can also change in intensity as the various types of bacteria shift in numbers.

Initially I went on antibiotics, but didn't notice a change. I went off them and now take probiotics..3 different brands for a mix of good bacteria, and went on digestive enzymes too.

Culturelle dairy free is a good one, and I also take Power dophilus, and Nature's Bounty advanced 10.

It takes time to kill off the bad bacteria and replace it with good. I'm also incorporating coconut oil into my diet to help fight against yeast.

It's best to start slow with the probiotics. They can cause a die-off of bacteria, which will make you feel sick. Maybe start with the dairy free Culturelle? maybe even 1/2 of tablet/capsule of whichever brand you try?

If your Dr. recommends antibiotics, it's good to take the probiotics too..if not during, then certainly after taking the RX. You want to build a healthy flora in there, which takes time. Following one of the sugar/simple carb, grain restricting diets help too.

Hi Bubba's Mom,

Thanks for all the info. I don't know for sure if I have bacterial overgrowth, but I suspect it. I am having the hydrogen breath test tomorrow to find out. I have been reading about it, and it sounds like it is really hard for your gut to heal when you have overgrowth, which could explain a lot of the problems I've been having.

Also, thanks for the info on the probiotics. I will try the Culturelle and start out very slowly. I'm pretty sure when I tried the other probiotic pearls, it was too much for me and I got die-off nausea. Now I know to watch out for that.

Thanks!

Sunny

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.