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All The Symptoms But Blood Tests Negative

toriabd

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toriabd Newbie
toriabd
Posted

Hi, everyone. New here and looking for some help in understanding the blood tests I just had done. The results are as follows:

IGA Celiac: 84 (68-359 reference range)

TTG IgA: 3.2 (<=19.9 reference range)

Gliadin Pep IgA: 2.0 (<=19.9 reference range)

Gliadin Pep IgG: 8.8 (<=19.9 reference range)

EMA IgA: Negative

Is there any other blood test that you would recommend? Is it worth doing a biopsy? My symptoms are as follows:

Bloating, nausea, gas, diarrhea,constipation, painful stomach cramps, severe hunger pains, low body weight and difficulty gaining weight, fatigue, anxiety and depression. Most recently I have also been experiencing difficulty concentrating and "finding the right words" etc

Thank you so much!

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MitziG Enthusiast
MitziG
Posted

If your doc is willing to do an endoscopy and you can afford it, I would. 30% of celiacs will have negative bloodwork.

Just be sure he takes enough samples and from the right area- agree to it BEFORE you go under. Too many people go in for endo and the doc thinks he identifies the problem as something else so doesn't bother to take biopsies!

If that is negative, consider yourself NCGI and go gluten-free anyway!

KMMO320 Contributor
KMMO320
Posted

If your doc is willing to do an endoscopy and you can afford it, I would. 30% of celiacs will have negative bloodwork.

Just be sure he takes enough samples and from the right area- agree to it BEFORE you go under. Too many people go in for endo and the doc thinks he identifies the problem as something else so doesn't bother to take biopsies!

If that is negative, consider yourself NCGI and go gluten-free anyway!

very true. I had negative blood work, but I am IgA deficient and they only tested using tests that look for IgA and I had the Endo (at 1000 out of pocket from me) only to have the Dr take TWO samples for biopsy and basically tell me that ulcers were my problem..only, I didnt go to her for stomach problems, I went to her for the head issues I was having. @@

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Push for an endoscope. I tested negative in my blood work like you, but when scoped had severe damage easily visible to the naked eye. Request several samples be taken. 20-30% of us test negative. Something is causing your symptoms. Ask for the scope to rule things out?

Start taking probiotics too, if you aren't currently taking them. A bacterial overgrowth can give Celiac-like sypmtoms, and probiotics help balance your system.

hojo70 Newbie
hojo70
Posted

Gluten might not be your problem. Other common allergens include casein, nuts, and soy.

nora-n Rookie
nora-n
Posted

your total IgA is lowish, and the IgA based tests of course require presence of IgA. So your IgA type tests really are a bit higher.

I see you have not 0 on any of the tests.

Worth a biopsy anyway (with several specimens)

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    • trents
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      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
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      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
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