Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Beginning?


Lumi

Recommended Posts

Lumi Newbie

Hello, I'm a 27 year old male, for the last couple years have been struggling to figure out whats been wrong with my body, my symptoms included: Sweaty palms, rapid heart rate, pain in upper stomach, bad digestion, I tested positive for helicobacter pylori, which I thought once diagnosed that would be the end of my problems. Well it wasn't I continued with pain in stomach, also among other things, so I finally started doing some research and over the past few days I have discovered that possibly I may have a gluten allergy or Celiac Disease. So tomorrow I decided to try a new gluten free diet, have spent a good amount of time on things that need to removed from my current diet and things that I could replace. I am praying that this could possibly help, any comments out there for someone just starting?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

If you want to have your blood tested for celiac, you should do so before you start eating gluten-free because the test results will become negative once you are gluten-free. The same goes for the endoscopic intestinal biopsy. If a diagnosis is not needed or wanted, then I wish you the best of luck with the new diet; I hope you see lots of improvement.

Don't forget to eliminate gluten from it's hiding spots like soy sauce, worchestershire, teriyaki sauces, smoke flavor, prepared sauces and soups, and vitamins. grocery shopping definitely takes longer with all of the label reading going gluten-free requires. lol :rolleyes:

Lumi Newbie

Hello everyone, its been a few days completely gluten-free and I can honestly say my stomach has never felt better in the last 4 years, i'm so excited that this has been a problem for me for so long and I may have finally figured out a solution, I want to say thanks to this website for all its great information and people that have helped others out in understanding what all this about. I can't wait to see how my progress goes with my new diet!

GFinDC Veteran

That's great Lumi, an improvement means something is going right. It is sometimes a bit of a back and forth thing at the beginning of the gluten-free diet with people. They feel better, then they feel worse, then they feel better etc. That is just an adjustment process to the new diet. It can help to take probiotics and limit or stop dairy and sugar and starches. All those bacteria in your gut need to adjust to the new diet too, and they can be helped by the probiotics and low sugar.

Whole foods and simple meals are good to start out on. Limit grains and processed / baked goods for a while at least. Soy and nightshades are good to avoid for a while also, but you may be able to eat them fine later. Meats, veggies, nuts and fruits are a good diet to start on.

Here are some threads for info.

FAQ Celiac com

https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

How bad is cheating?

Lumi Newbie

Thank you so much :D

mochabutterfly Newbie

hi. I can honestly say this desease is new to me but the symptoms are not. only waking up now and ,like you Lumi, doing the research. Because symptoms have become more severe and trying. the only time I felt really great was when I was doing the master cleanse which involved no food at all! lol. I have yet to be tested. my appointment is in two weeks. I too am dying to know what is going on and what has been going on with my body.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,208
    • Most Online (within 30 mins)
      7,748

    WAB19
    Newest Member
    WAB19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.