Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten- Free Causing A Gluten Allergy?


MichelleD

Recommended Posts

MichelleD Newbie

Is anyone else going through this? Since stopping gluten,now if I am exposed to it(ex.I made pancakes for my kids this morning, did not eat any) I get a weird sensation in my chin and lower jaw, watery eyes/discharge,sour throat.I have baked my whole life and never had these reactions when eating gluten. It is almost like not eating gluten has made me allergic to it. I am switching to gluten free beauty products to see if that helps with my eye symptoms (I have them in the morning and they return in I am near gluten) Just curious if I was the only one. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

Is anyone else going through this? Since stopping gluten,now if I am exposed to it(ex.I made pancakes for my kids this morning, did not eat any) I get a weird sensation in my chin and lower jaw, watery eyes/discharge,sour throat.I have baked my whole life and never had these reactions when eating gluten. It is almost like not eating gluten has made me allergic to it. I am switching to gluten free beauty products to see if that helps with my eye symptoms (I have them in the morning and they return in I am near gluten) Just curious if I was the only one. Thanks.

I can't be around gluten flours of any kind. I cleaned out an old cabinet and inhaled a miniscule amount of flour. It started a bad reaction that lasted a couple of months.

If you're cooking with gluten flours it can be very dangerous to your health. It can go airborne and stay there for a couple of hours.

MichelleD Newbie

I can't be around gluten flours of any kind. I cleaned out an old cabinet and inhaled a miniscule amount of flour. It started a bad reaction that lasted a couple of months.

If you're cooking with gluten flours it can be very dangerous to your health. It can go airborne and stay there for a couple of hours.

Thank you for the advise. I haven't found a gluten free pancake mix my kids like yet and thought I would be okay to cook. All part of the learning curve.

elleystar Newbie

Thank you for the advise. I haven't found a gluten free pancake mix my kids like yet and thought I would be okay to cook. All part of the learning curve.

Pamela's is the only one I like. It is nearly indistinguishable from the buttermilk pancakes I used to make pre-gluten-free. Which have you tried?

Cara in Boston Enthusiast

Being gluten free will not cause you to be allergic - you either are or you aren't. However, once you are gluten free, you may become more sensitive to even smaller and smaller amounts. Your symptoms may change (develop new ones) and may become more severe. The longer you are gluten free, the more sensitive you may become.

We also find Pamela's Pancake and Baking mix to be perfect for pancakes . . .

Cara

Mom-of-Two Contributor

There is nothing wrong with wanting to try a mixed household, I have two kids and know how hard it is- my 8 year old is way more accepting and willing to try things, but my 4 year old lives on pasta- I had a separate collander and pasta pan with utensil, only used when cooking their pasta, even a separate scrubber to wash it, but it was difficult to have noodles all over the table and counter, and when making their food with ours, making sure I didn't mix things up or contaminate a block of parmasean cheese, for example. I had my 3 month checkup and my celiac dr said I really needed to make the home gluten free. She said they can eat what they want out of the house. I tried some gluten free pasta, the corn/quinoa blend which hubby and I quite like, and my 8 year old too- but, my little guy just didn't enjoy! I then found Tinkyada pasta, and none of us can tell the difference between that and regular pasta, my little guy loves it just the same! Once I saw that it could be done, I ditched all the regular stuff and made my kitchen gluten free. I can't tell you how much easier it is, and so much less stressful to cook.

Pamelas is a great pancake mix, for kids the gluten free Bisquick tastes good too.

I thought I was fine having a shared kitchen, but with young kids, we are just busy and believe me, you are likely not being dilligant enough when handling gluten items, just try some gluten free baking and see how it goes- I would never keep regular flour in my house, regardless of who wanted pancakes!

I also learned that my 8 year old tested pos on her labs for celiac, even though normal biopsy, she is likely going to remain gluten free so making those changes now is so much easier in the long run!

I have some cookbooks, the one by Elisabeth Hasselbeck, Deliciously gluten-free, has a lot of gluten free kids favorites, waffles to chicken fingers, we have made many of the recipes and found some to be even better than the original- I just made a huge pot of mac and cheese for a picnic using the Tinkyada, and my own cheese-butter sauce, not one person knew they were not "normal" noodles......everyone thinks they can tell when something I have is gluten free- wrong!!

mushroom Proficient

Just to echo Cara, stopping gluten eating and then restarting does not make you sensitive to gluten, it just reveals the sensititivity that was there all along but unnoticed. Your body is just reacting violently to its reintroduction after the relief of being free of it :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MichelleD Newbie

Thank you for the advice. I will try Pamela's. I enjoyed baking before and and have been checking out gluten-free cooking books like crazy from the library. I have a banana muffin recipe my kids like and a fruit crisp. I mostly try to stay away from "gluten replacements" if the wheat version is bad, then the alternative is not that healthy either. I used to make pasta a couple time a week, now I make a gluten-free version once a month. I am just shocked at how sensitive I am. I ate it my whole life without these issues and this week a piece of bread was next to my salad at a restaurant and I was immediatly sick. I have switched to a gluten free shampoo, conditioner, hairspray and eye makeup and my eye symptoms are much improved.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    2. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    3. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,420
    • Most Online (within 30 mins)
      7,748

    maggie23
    Newest Member
    maggie23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.