Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mineral Deficient


LeahBanicki

Recommended Posts

LeahBanicki Rookie

Had a rough patch and really struggling to keep eating when my guts are killing me. 5 days of D and now slightly afraid to eat. All my safe foods are bothering my delicate system.

My legs are crampy at night and now the extreme headaches have started up.

I started taking Magnesium and Calcium and it's slowly helping. I am starting to think I need to head back to the doctor. Worried about anemia and mineral deficiencies. Most multiple vitamins make me sick and really hurt once they are slightly digested. So tired of the IBS label that explains nothing.

The sublinguals cost so much that I opt out of them too often because the cost of my groceries is so high, my budget is toast.

I know that I just need to be patient but being able to share my issues somewhere does make me feel better.

Now to find the energy to cook something...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Had a rough patch and really struggling to keep eating when my guts are killing me. 5 days of D and now slightly afraid to eat. All my safe foods are bothering my delicate system.

My legs are crampy at night and now the extreme headaches have started up.

I started taking Magnesium and Calcium and it's slowly helping. I am starting to think I need to head back to the doctor. Worried about anemia and mineral deficiencies. Most multiple vitamins make me sick and really hurt once they are slightly digested. So tired of the IBS label that explains nothing.

The sublinguals cost so much that I opt out of them too often because the cost of my groceries is so high, my budget is toast.

I know that I just need to be patient but being able to share my issues somewhere does make me feel better.

Now to find the energy to cook something...

Hi Leah

I don't recall your history, so I will assume that you have had a diagnosis. Have you eliminated dairy? Dairy is absorbed on the tips of your villi and if they are gone due to Celiac...you get the same sort of symptoms like those with gluten.

Magnesium can give you diarrhea. Go easy with that.

Keep a food journal and document everything that gets past your mouth, from meds, lotions, lipsticks or balms and shampoo. Check your dog food, cat litter. And get a toaster for your own use only. Do you see the trend?

LeahBanicki Rookie

I was diagnosed in 10/2010

Still healing, quit dairy for a long time and hadn't had any problems with it for a few months.

It's fun cause our dogs are gluten free now too and so much healthier. My older dogs were having seizures and hasn't had any since we switched to 'Taste of the Wild' brand.

I was the kind that gained weight while I was still undiagnosed and starving. I have been steadily losing weight and wondering if any of the fat I am losing was storing gluten.

I have heard that can happen with leaky gut... Not sure if it's true.

I am hyper viligant about all the extras, but fruit like apples peaches pears, etc just kill me. No citrus of any kind, not even a sip or horrible D for days.

It's funny cause the last two days of taking 1000mg mg mag/cal/D in 250mg increments has actually helped my D.

Just trying to be smart and write everything down.

thanks for the support! :)

flowerqueen Community Regular

Hi, sorry to hear you've been so ill. Did the crampiness in your legs and headaches start since you have the D? It could be that you are dehydrated, and need to step up the amount of water you are drinking. The other thing that crossed my mind is, thyroid problems. Have you had you thyroid checked to see if you are hypothyroid? I am both hypo-thyroid and Coeliac. They are both auto-immune diseases and as you may or may not be aware, if you have one auto-immune disease, the chances of having another increase. Also, you didn't say whether you eat dairy products. I still can't eat dairy even though I've been on a gluten free diet for a while. Also oats? If you are super-sensive, you may find you can't eat them either, even ones produced in a gluten free environment. You need to go back to the doctor for more tests. Good luck, hope you feel better soon!

Had a rough patch and really struggling to keep eating when my guts are killing me. 5 days of D and now slightly afraid to eat. All my safe foods are bothering my delicate system.

My legs are crampy at night and now the extreme headaches have started up.

I started taking Magnesium and Calcium and it's slowly helping. I am starting to think I need to head back to the doctor. Worried about anemia and mineral deficiencies. Most multiple vitamins make me sick and really hurt once they are slightly digested. So tired of the IBS label that explains nothing.

The sublinguals cost so much that I opt out of them too often because the cost of my groceries is so high, my budget is toast.

I know that I just need to be patient but being able to share my issues somewhere does make me feel better.

Now to find the energy to cook something...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

    3. - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - cristiana replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,303
    • Most Online (within 30 mins)
      7,748

    Josanita
    Newest Member
    Josanita
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.