Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mineral Deficient


LeahBanicki

Recommended Posts

LeahBanicki Rookie

Had a rough patch and really struggling to keep eating when my guts are killing me. 5 days of D and now slightly afraid to eat. All my safe foods are bothering my delicate system.

My legs are crampy at night and now the extreme headaches have started up.

I started taking Magnesium and Calcium and it's slowly helping. I am starting to think I need to head back to the doctor. Worried about anemia and mineral deficiencies. Most multiple vitamins make me sick and really hurt once they are slightly digested. So tired of the IBS label that explains nothing.

The sublinguals cost so much that I opt out of them too often because the cost of my groceries is so high, my budget is toast.

I know that I just need to be patient but being able to share my issues somewhere does make me feel better.

Now to find the energy to cook something...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Had a rough patch and really struggling to keep eating when my guts are killing me. 5 days of D and now slightly afraid to eat. All my safe foods are bothering my delicate system.

My legs are crampy at night and now the extreme headaches have started up.

I started taking Magnesium and Calcium and it's slowly helping. I am starting to think I need to head back to the doctor. Worried about anemia and mineral deficiencies. Most multiple vitamins make me sick and really hurt once they are slightly digested. So tired of the IBS label that explains nothing.

The sublinguals cost so much that I opt out of them too often because the cost of my groceries is so high, my budget is toast.

I know that I just need to be patient but being able to share my issues somewhere does make me feel better.

Now to find the energy to cook something...

Hi Leah

I don't recall your history, so I will assume that you have had a diagnosis. Have you eliminated dairy? Dairy is absorbed on the tips of your villi and if they are gone due to Celiac...you get the same sort of symptoms like those with gluten.

Magnesium can give you diarrhea. Go easy with that.

Keep a food journal and document everything that gets past your mouth, from meds, lotions, lipsticks or balms and shampoo. Check your dog food, cat litter. And get a toaster for your own use only. Do you see the trend?

LeahBanicki Rookie

I was diagnosed in 10/2010

Still healing, quit dairy for a long time and hadn't had any problems with it for a few months.

It's fun cause our dogs are gluten free now too and so much healthier. My older dogs were having seizures and hasn't had any since we switched to 'Taste of the Wild' brand.

I was the kind that gained weight while I was still undiagnosed and starving. I have been steadily losing weight and wondering if any of the fat I am losing was storing gluten.

I have heard that can happen with leaky gut... Not sure if it's true.

I am hyper viligant about all the extras, but fruit like apples peaches pears, etc just kill me. No citrus of any kind, not even a sip or horrible D for days.

It's funny cause the last two days of taking 1000mg mg mag/cal/D in 250mg increments has actually helped my D.

Just trying to be smart and write everything down.

thanks for the support! :)

flowerqueen Community Regular

Hi, sorry to hear you've been so ill. Did the crampiness in your legs and headaches start since you have the D? It could be that you are dehydrated, and need to step up the amount of water you are drinking. The other thing that crossed my mind is, thyroid problems. Have you had you thyroid checked to see if you are hypothyroid? I am both hypo-thyroid and Coeliac. They are both auto-immune diseases and as you may or may not be aware, if you have one auto-immune disease, the chances of having another increase. Also, you didn't say whether you eat dairy products. I still can't eat dairy even though I've been on a gluten free diet for a while. Also oats? If you are super-sensive, you may find you can't eat them either, even ones produced in a gluten free environment. You need to go back to the doctor for more tests. Good luck, hope you feel better soon!

Had a rough patch and really struggling to keep eating when my guts are killing me. 5 days of D and now slightly afraid to eat. All my safe foods are bothering my delicate system.

My legs are crampy at night and now the extreme headaches have started up.

I started taking Magnesium and Calcium and it's slowly helping. I am starting to think I need to head back to the doctor. Worried about anemia and mineral deficiencies. Most multiple vitamins make me sick and really hurt once they are slightly digested. So tired of the IBS label that explains nothing.

The sublinguals cost so much that I opt out of them too often because the cost of my groceries is so high, my budget is toast.

I know that I just need to be patient but being able to share my issues somewhere does make me feel better.

Now to find the energy to cook something...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.