Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Rash :(

GlutenFreeAustinite

Recommended Posts

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted

So yesterday, I broke out in hundreds of tiny little red bumps that itched on my chest. There were a few on my arms as well. Throughout the rest of yesterday and today, the rash expanded to cover my arms, hands, shoulders, face, feet, and legs. They are little tiny welts, with no head, and Benadryl provided no relief. I saw the doctor this morning, and the man was a total jerk. He wouldn't listen to my concerns about celiac/DH, saying "celiac isn't something that pops up over night. it's something your body's been dealing with for forever." When I explained my circumstances, he didn't even acknowledge it. He diagnosed me with an allergic reaction to either the topical clindamycin my dermatologist put me on for folliculitis or the doxycycline, but he doesn't know for sure. He also gave me prednisone, a steroid to help clear it up. I've only had one dose, but the rash looks worse if anything. This has not been a fun weekend...I can't wait to get off gluten this week!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

CRAP! The prednisone will screw up your tests!!!!!! Yes, even the endoscopy!!!!!! Stop it!!!!!

You've got a gluten rash & I'm saying it's dh.

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

Yeah, I'm not taking it anymore.....I only had one dose, that should be okay, right?

squirmingitch Veteran
squirmingitch
Posted

Yes. I think you'll be okay if you only took one dose. Your test is Thursday or is it Friday?

Exactly, celiac isn't something that just pops up overnight. It IS something your body's been dealing with for forever. Stupid jerk off doc! And doc, then one day everything comes to a big head b/c you docs don't know & keep resisting the idea that anyone has celiac disease & so people go through life doing untold damage to their bodies & minds for years & years & years. Oh, that's right! It's all in our heads right?

Sorry --- my rant.

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

My test is actually Tuesday......but my mom and I don't think that the dose I took today has had or will have an effect. The rash is still as bad as it was and I've been having normal gluten symptoms all day. I'm hoping that it doesn't cause problems but I'll call my GI's nurse tomorrow, as well as my general practitioner.

And yeah, I totally agree with your rant!!! The doctor didn't even look at my rash. He made some notes. My arms/hands, legs/feet are the worst, but I have them on my chest and face a bit. I'm just hoping they go away ASAP after I go gluten free. I leave for college in six weeks, and I'd like not to look like I have a contagious disease. :P

squirmingitch Veteran
squirmingitch
Posted

I hope it clears up fast! If not, you can always use it for a conversation starter to teach people about celiac disease. I bet you'll find more than a few who either are or have relatives who are celiac or even gluten intolerant.smile.gif

Tally Ho for Tuesday!

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

Thanks....my general practitioner wanted me on the prednisone and the GI doctor said it was fine, so I took another dose and it's clearing up, thank heavens. I won't be able to take it until after the biopsy, but it's doing better. Thank you so much for your support and encouragement!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

Sure thing!smile.gif

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

I asked my GI doc about the strange rash, and he said that while it would be an atypical appearance for DH, he said it was possible, especially as the prednisone wasn't really working consistently. But I don't know.

squirmingitch Veteran
squirmingitch
Posted

Well I get in my underarms and Pricklypear got it BAD in her pits & I mean BAD!!!!!! And there have been quite a few others on here who get them in their pits. DH can occur anywhere!

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

Yeah, the stuff under my arms appears to be responding to the Clindamycin, but I stopped all of my antibiotics because I broke out in this head-to-toe rash. My legs/feet/arms/elbows are covered in bright red dots. They get better after a dose of the prednisone but resurge the next day. Very odd.

squirmingitch Veteran
squirmingitch
Posted

Well, I gotta tell ya..... dh will respond temporarily to steroids but & there's a big BUT..... it comes back with a VENGEANCE! I was misdiagnosed & put on Dexamethasone which is a super duper steroid & I've been down that road ---- not going there again.sad.gif

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

That's exactly what's happening to me--it gets better at night and returns during the day. I'm going gluten-free tomorrow and am also going to try low-iodine.

squirmingitch Veteran
squirmingitch
Posted

Okay!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,612
    • Most Online (within 30 mins)
      7,748
    Rotary
    Newest Member
    Rotary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      Potential celiac need advice

      By Scott Adams · Posted

      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.