Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prednisone

GlutenFreeAustinite

Recommended Posts

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted

I posted about the specifics in the DH forum, but I wanted to know if anyone could help me. I got prescribed prednisone today for a full-body rash, and I'm reading that prednisone is used to reduce inflammation in celiac patients, especially those with refractory sprue. I'm supposed to be biopsied on Tuesday for celiac disease, and I don't want ANYTHING interfering with that biopsy. I've only had one dose of the medication and it seemed to make the rash WORSE if anything. Help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I posted about the specifics in the DH forum, but I wanted to know if anyone could help me. I got prescribed prednisone today for a full-body rash, and I'm reading that prednisone is used to reduce inflammation in celiac patients, especially those with refractory sprue. I'm supposed to be biopsied on Tuesday for celiac disease, and I don't want ANYTHING interfering with that biopsy. I've only had one dose of the medication and it seemed to make the rash WORSE if anything. Help!

I have heard that it can impact the biopsy but I don't know that for sure. Since your biopsy is only a day away you could hold off until after the biopsy is done. It may not be the med that is making the rash worse but the gluten you are eating before the biopsy if the rash is DH. Do make sure the med is gluten free and do start it up the day of the biopsy if you choose to wait. Prednisone was the only thing that would help my DH before I was diagnosed but it took a couple of days before I would see a difference. If you suspect that the rash is DH then you may want to ask your derm to biopsy the skin next to the lesions to look for the antibodies. Just make sure that they are looking for DH as they need to do a particular kind of test to diagnose it and not all derms are knowledgeable about DH. If the rash is DH dropping iodized salt when you go gluten free Tuesday will help it heal faster.

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

Thank you so much! I'm planning to call my general practitioner in the morning, and to avoid the medication until after Tuesday.

Lisa Mentor
Lisa
Posted

Thank you so much! I'm planning to call my general practitioner in the morning, and to avoid the medication until after Tuesday.

I'm glad you found Raven! :) Best of luck and hope to see you back, in some manner. (I think that's a good thing?) :rolleyes:

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

I didn't even think about the prednisone impacting my celiac tests! But the doctor was a complete jerk, and told me that "celiac doesn't pop up overnight" so obviously I couldn't have DH/celiac, but completely tuned me out when I tried to explain that my antibodies were high, I'd been battling gluten issues for two years, etc. SO frustrated.

Lisa Mentor
Lisa
Posted

I didn't even think about the prednisone impacting my celiac tests! But the doctor was a complete jerk, and told me that "celiac doesn't pop up overnight" so obviously I couldn't have DH/celiac, but completely tuned me out when I tried to explain that my antibodies were high, I'd been battling gluten issues for two years, etc. SO frustrated.

As most of us here, we have been predisposed to Celiac, the onset of severe symptoms were sudden onset.

Stress was my trigger. I have always had IBS symptoms, but one day in July, 2005, I entered the bath room and did not leave it until I was diagnosed. I could not leave the house for another six months.

Many times Celiac need a trigger. Get a new doctor. :)

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

Oh yes! I had horrible migraines that were remediated by a gluten free diet that I followed for two years, though probably not as strictly as I should have (CC issues, I never ate actual gluten unless it was an accident), but wanted definitive answers through a diagnosis. So I've been eating gluten for two months, and all these random symptoms have cropped up.

And the doctor wasn't my normal doctor, who is very good and understands my whole symptom history. I went to him because it was the weekend, and my normal doctor wasn't there. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,612
    • Most Online (within 30 mins)
      7,748
    Rotary
    Newest Member
    Rotary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      Potential celiac need advice

      By Scott Adams · Posted

      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.