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Problems With Ignoring The Condition

blythiee

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blythiee Newbie
blythiee
Posted

Hi,

Im 18 diagnosed with celiac when I was 5 and since about the age of 14 (when I had the ability to buy my own food without my parents control) I stopped living on a gluten free diet, mostly because I didnt want to be singled out as different from my friends. However, recelntly I was wondering if there may be a link between my abuse of the allergy and the symptoms that I have which appear to be worryingly similar to ADHD. I know its a weird connection to make but I find myself easily distracted with bursts of energy and no time for sitting still. DO you reckon that this could be related.

Either way I am intending to fix my diet up but I was wondering if anyone had heard of a link before I try other routes to solve those issues.

Also how quickly would the benefits be noticeable

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Lisa Mentor
Lisa
Posted

Hi,

Im 18 diagnosed with celiac when I was 5 and since about the age of 14 (when I had the ability to buy my own food without my parents control) I stopped living on a gluten free diet, mostly because I didnt want to be singled out as different from my friends. However, recelntly I was wondering if there may be a link between my abuse of the allergy and the symptoms that I have which appear to be worryingly similar to ADHD. I know its a weird connection to make but I find myself easily distracted with bursts of energy and no time for sitting still. DO you reckon that this could be related.

Either way I am intending to fix my diet up but I was wondering if anyone had heard of a link before I try other routes to solve those issues.

Also how quickly would the benefits be noticeable

Yeah, probly so!

At 18, it's time to do whats right for you and not cave into "what's cool". Celiac is not an allergy, and it can have an effect on every part of your body. And the "cool" thing about being gluten free is that you're a step above the crowd. Cause you know what you want and into your health. It makes me feel special. :)

But to answer your question, the gluten free diet is suggested with kids with Autism. It helps settle them a bit, according to the research that I have seen.

eatmeat4good Enthusiast
eatmeat4good
Posted

What you are describing sounds like a neurological reaction of a Celiac person to gluten.

Many of us get jittery, anxiety,ADHD, can't focus, brain fog symptoms when we ingest gluten.

ADHD symptoms have been scientifically linked to gluten especially for Celiacs.

I hope you choose to come back to your gluten free life.

Many people feel the results of going gluten free really quickly.

Others take longer. I could tell in 2 days of going gluten free that I was getting better.

Go gluten free strictly and see if it clears up for you. I bet it does. I have read dozens of times that people feel mental clarity like never before once they go gluten free. It happened to me too. Calmer,peaceful, happy, good humor, no anxiety or brain fog or can't focus ADHD symptoms anymore for me.

....Unless....

I get Glutened.

Then it all comes back really really fast.

You'll have to eliminate it and see if it helps.

Don't worry about the time you were not gluten free.

Just start doing it now....

I bet you will feel a whole lot better!

GFinDC Veteran
GFinDC
Posted

Hi check out this thread on anger. Gluten can affect the brain in many ways, Some people develop gluten ataxia and have difficulty with walking. Others have anger or anxiety or memory problems. Some have all that fun stuff at once. There is also a heightened risk of getting other autoimmune disease with celiac if not treated with the gluten-free diet. Lupus, fibromyalgia, rhuematoid arthritis, T-1 diabetes Sjogrens' disease are a few of the not so fun things you could develop. Google on "celiac related conditions" to find lists. Plus you'll end up with donut breath if you keeping eating gluten. :)

Short temper thread

http://www.celiac.co...per-depression/

How bad is cheating?

http://www.celiac.co...t-periodically/

FAQ Celiac com

http://www.celiac.co...celiac-disease/

Newbie Info 101

http://www.celiac.co...ewbie-info-101/

What's For Breakfast Today?

http://www.celiac.co...reakfast-today/

What Did You Have For Lunch Today?

http://www.celiac.co...or-lunch-today/

What Are You Cooking Tonight?

http://www.celiac.co...ooking-tonight/

Dessert thread

http://www.celiac.co...399#entry802399

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
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      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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