Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ugh ... This Time It Was Milk That Got Me


llama3

Recommended Posts

llama3 Apprentice

I haven't been around here for a while because I've been feeling SO much better after completely cutting out gluten. So yesterday I got overly optimistic. I've been eating yogurt with no problem (but no other dairy), and I thought I would try some goat milk (which is supposed to be easier to digest - maybe that's a myth) and see if I tolerated it. I did NOT. 36 hours later I still feel really really miserable, though at least the diarrhea has stopped. My glutening symptoms are more neurological although there is some GI stuff too. I just can't believe how much my stomach hurts right now.

Somebody tell me how to make it better. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Chris Anne Newbie

I haven't been around here for a while because I've been feeling SO much better after completely cutting out gluten. So yesterday I got overly optimistic. I've been eating yogurt with no problem (but no other dairy), and I thought I would try some goat milk (which is supposed to be easier to digest - maybe that's a myth) and see if I tolerated it. I did NOT. 36 hours later I still feel really really miserable, though at least the diarrhea has stopped. My glutening symptoms are more neurological although there is some GI stuff too. I just can't believe how much my stomach hurts right now.

Somebody tell me how to make it better. :(

Wow! I go to my Digestive Doc next week and besides the Celiac I gotta ask him about the Dairy too. I'm on 2nd day of stomach pain and diarrhea. This is horrible. I hope the best for you.

llama3 Apprentice

Wow! I go to my Digestive Doc next week and besides the Celiac I gotta ask him about the Dairy too. I'm on 2nd day of stomach pain and diarrhea. This is horrible. I hope the best for you.

Thanks. I don't know if it's the casein or the lactose. I hope you figure out what's going on with you.

FruitEnthusiast Enthusiast

Hi! Have you ever tried coconut milk? I think it's really delicious, and it's opaque white so it really looks like milk. The taste is very mild, and doesn't taste like coconut at all. My favorite brand is "So Delicious" (original flavor). Makes great smoothies too. It probably works great in recipes too, but I haven't had a chance to try that yet.

llama3 Apprentice

Hi! Have you ever tried coconut milk? I think it's really delicious, and it's opaque white so it really looks like milk. The taste is very mild, and doesn't taste like coconut at all. My favorite brand is "So Delicious" (original flavor). Makes great smoothies too. It probably works great in recipes too, but I haven't had a chance to try that yet.

I sometimes make smoothies with straight coconut milk with no additives. Doesn't "So Delicious" have additives in it?

Razzle Dazzle Brazell Enthusiast

Hi! Have you ever tried coconut milk? I think it's really delicious, and it's opaque white so it really looks like milk. The taste is very mild, and doesn't taste like coconut at all. My favorite brand is "So Delicious" (original flavor). Makes great smoothies too. It probably works great in recipes too, but I haven't had a chance to try that yet.

It tastes great in desserts (especially with vanilla). It is also delicious in chowder. I reduced it on the stovetop and then add it last to simmer.

GFinDC Veteran

HI,

If you have a reaction to eating hard cheese like cheddar it is probably a casein issue. Most of the lactose is gone in hard cheeses. You can always take a couple lactaid pills when you eat the cheese just to be sure it is not lactose sugar. The lactaid digests the lactose, so if there was any trace of lactose left that would get rid of it. So you would be left with a chunk of casein to digest. You might need to do this test for 3 to 5 days in a row to see a solid reaction. This of course won't worlk if you are eating any other dairy during the time. Other dairy would muddy the waters and invalidate the test. Make sure the lactaid pills are gluten-free first though. It's an easy-peasy test really.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
FruitEnthusiast Enthusiast

I sometimes make smoothies with straight coconut milk with no additives. Doesn't "So Delicious" have additives in it?

Any "additives" in "So Delicious" are vegetable or mineral based, natural and gluten free. They are all on the safe list on this site. I don't think there are any problems with it. Anyone have any other ideas about the different coconut milks? Do the additives make it no longer a whole food, and instead a processed food? Very curious about this. I'm interested in the digestibility of it for one thing. Bought some straight coconut milk in a can from Trader Joe's but haven't tried it yet. Hope it tastes as good.

FruitEnthusiast Enthusiast

Additive free coconut milk in a can does taste just as good as the ones with additives! I didn't even know Trader Joe's carried the canned type. It's even thicker and creamier too which makes it great used straight in recipes in place of cream, I imagine, or with water added for drinking. You learn something new every day!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,738
    • Most Online (within 30 mins)
      7,748

    Werthesmiths4
    Newest Member
    Werthesmiths4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.