Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bacterial Overgrowth Results Question


Sunny1008

Recommended Posts

Sunny1008 Rookie

Hi everyone,

I had a hydrogen breath test the other day to check for bacterial overgrowth of the small intestine. The nurse who was doing the test said that the preliminary results looked "questionable." I have to wait a few more days to hear the final result from the interpreting physician.

What do you think "questionable" means? I think there has to be some sort of problem b/c every time I eat, I blow up like a balloon and look pregnant (no matter what I eat). Also, I am not putting on any weight. I have a huge bloated belly and these stick legs, and I am still underweight. I also am still having nausea occasionally, food intolerances, and constipation.

Thoughts??

Thank you!

Sunny


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beachbirdie Contributor

Hi everyone,

I had a hydrogen breath test the other day to check for bacterial overgrowth of the small intestine. The nurse who was doing the test said that the preliminary results looked "questionable." I have to wait a few more days to hear the final result from the interpreting physician.

What do you think "questionable" means? I think there has to be some sort of problem b/c every time I eat, I blow up like a balloon and look pregnant (no matter what I eat). Also, I am not putting on any weight. I have a huge bloated belly and these stick legs, and I am still underweight. I also am still having nausea occasionally, food intolerances, and constipation.

Thoughts??

Thank you!

Sunny

I'm not a medical professional, but if I heard "questionable" I would be thinking it simply means the test is not clearly and obviously negative. Not necessarily positive, but in that "fuzzy" area that means they'll want to take a closer look.

Have you made any changes in your diet that might be helpful with a SIBO problem?

Sunny1008 Rookie

I'm not a medical professional, but if I heard "questionable" I would be thinking it simply means the test is not clearly and obviously negative. Not necessarily positive, but in that "fuzzy" area that means they'll want to take a closer look.

Have you made any changes in your diet that might be helpful with a SIBO problem?

Hi beachbirdie,

Yes, that's what I thought too - that the results could "go either way", positive or negative. I am still waiting to hear back from the interpreting physician.

I am trying to stick to the SIBO diet, but I am still finding out through trial and error foods that trigger a reaction.

beachbirdie Contributor

Hi beachbirdie,

Yes, that's what I thought too - that the results could "go either way", positive or negative. I am still waiting to hear back from the interpreting physician.

I am trying to stick to the SIBO diet, but I am still finding out through trial and error foods that trigger a reaction.

Are you using a diet from the doctor, or did you find something online? What are the kinds of foods your diet allows?

My daughter-in-law ended up jumping on the Specific Carbohydrate Diet (except she was able to keep chocolate in her life, though it's "illegal" B)) and it has kept her intestines happier than the diet the doctor put her on.

It's really tough to deal with this stuff that messes with the intestines :( . Hopefully you'll get a handle on it and get to healing.

Sunny1008 Rookie

Are you using a diet from the doctor, or did you find something online? What are the kinds of foods your diet allows?

My daughter-in-law ended up jumping on the Specific Carbohydrate Diet (except she was able to keep chocolate in her life, though it's "illegal" B)) and it has kept her intestines happier than the diet the doctor put her on.

It's really tough to deal with this stuff that messes with the intestines :( . Hopefully you'll get a handle on it and get to healing.

Yes, it is really tough dealing with digestive problems!! I am trying to follow the Specific Carbohydrate Diet as much as possible, although it is definitely a challenge.

beachbirdie Contributor

Yes, it is really tough dealing with digestive problems!! I am trying to follow the Specific Carbohydrate Diet as much as possible, although it is definitely a challenge.

Sorry you are struggling!

Have you tried taking the dairy out altogether? Sometimes dairy problems are not lactose, but casein. Making 24-hour yogurt will not solve a casein problem.

Sunny1008 Rookie

Sorry you are struggling!

Have you tried taking the dairy out altogether? Sometimes dairy problems are not lactose, but casein. Making 24-hour yogurt will not solve a casein problem.

I have decided to take out dairy altogether. Anytime I eat it, I blow up like a balloon. Not fun!

Do you think it is necessary to take an antibiotic for bacterial overgrowth? My doctor wanted me to try Rifaximin, but my insurance won't cover it, and out of pocket it costs $700!!! Outrageous!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beachbirdie Contributor

I have decided to take out dairy altogether. Anytime I eat it, I blow up like a balloon. Not fun!

Do you think it is necessary to take an antibiotic for bacterial overgrowth? My doctor wanted me to try Rifaximin, but my insurance won't cover it, and out of pocket it costs $700!!! Outrageous!

I'm not a medical professional, so don't want to go too far giving out advice. Myself, I prefer to go without antibiotics if not necessary to save my life, because I think that is what messed up my gut flora in the first place. It will kill of the good as well as the bad.

I might try a good probiotic, NOT one with FOS...I was having a lot of trouble with cramping and pain that I finally narrowed down to the stuff they add to probiotics to supposedly feed the "good" bacteria. No inulin, or other "fructo-oligosaccharides". You might have to start very slowly, with tiny doses at first, and gradually increase as you can tolerate them.

IrishHeart has mentioned a company called Custom Probiotics many times, and they make products that are dairy free. They come in loose powder with little measuring spoons so you can customize your dose. They are more expensive than what you find in the store, but you might find them helpful. You can call and talk to the owner, he is a chemist and can help you figure out what would work. He had severe intestinal problems and developed his products because of that. If you do a search (from the little search box at the top of this forum...not the "celiac.com" search) for "custom probiotics" you can find IrishHeart's messages about how they literally saved her life. I think if you PM'd her she'd be happy to tell you more about that, if you can't find her messages.

Have you seen Open Original Shared Link? It talks about some of the other diets out there that can be helpful, and kind of explains the principles of getting rid of the baddies.

It's slow going, and will take a lot of patience. But there are tons of recipes out there that are really good, you can google GAPS or SCD recipes and find some yummy stuff! This is one of my favorites, Open Original Shared Link.

Sunny1008 Rookie

I'm not a medical professional, so don't want to go too far giving out advice. Myself, I prefer to go without antibiotics if not necessary to save my life, because I think that is what messed up my gut flora in the first place. It will kill of the good as well as the bad.

I might try a good probiotic, NOT one with FOS...I was having a lot of trouble with cramping and pain that I finally narrowed down to the stuff they add to probiotics to supposedly feed the "good" bacteria. No inulin, or other "fructo-oligosaccharides". You might have to start very slowly, with tiny doses at first, and gradually increase as you can tolerate them.

IrishHeart has mentioned a company called Custom Probiotics many times, and they make products that are dairy free. They come in loose powder with little measuring spoons so you can customize your dose. They are more expensive than what you find in the store, but you might find them helpful. You can call and talk to the owner, he is a chemist and can help you figure out what would work. He had severe intestinal problems and developed his products because of that. If you do a search (from the little search box at the top of this forum...not the "celiac.com" search) for "custom probiotics" you can find IrishHeart's messages about how they literally saved her life. I think if you PM'd her she'd be happy to tell you more about that, if you can't find her messages.

Have you seen Open Original Shared Link? It talks about some of the other diets out there that can be helpful, and kind of explains the principles of getting rid of the baddies.

It's slow going, and will take a lot of patience. But there are tons of recipes out there that are really good, you can google GAPS or SCD recipes and find some yummy stuff! This is one of my favorites, Open Original Shared Link.

beachbirdie,

Thank you so much for all the info! You are awesome! I agree with you, I would rather not take an antibiotic if I absolutely don't have to.

Have you heard of a probiotic called Inner-Eco? I work at Whole Foods Market, and this has been recommended to me many times. I'm not sure if it contains FOS or inulin, I will have to check on that. But it is a refrigerated kefir that comes from coconuts or something, LOL! The good thing about it is that it's a liquid, so I could start out taking a very small amount and work my way up. Have you heard of this?

Thanks also for the diet websites!

Sunny

beachbirdie Contributor

beachbirdie,

Thank you so much for all the info! You are awesome! I agree with you, I would rather not take an antibiotic if I absolutely don't have to.

Have you heard of a probiotic called Inner-Eco? I work at Whole Foods Market, and this has been recommended to me many times. I'm not sure if it contains FOS or inulin, I will have to check on that. But it is a refrigerated kefir that comes from coconuts or something, LOL! The good thing about it is that it's a liquid, so I could start out taking a very small amount and work my way up. Have you heard of this?

Thanks also for the diet websites!

Sunny

I hadn't heard of that particular probiotic, but it looks yummy! It doesn't appear to have any of the prebiotics, that's good for now, It doesn't have a huge variety of bacteria, so even though you are using it you might want to add another one for more diversity.

I'm jealous! You work at a Whole Foods! They have so much cool stuff (though it's expensive), but the nearest one to me is 65 miles :( .

Sunny1008 Rookie

I hadn't heard of that particular probiotic, but it looks yummy! It doesn't appear to have any of the prebiotics, that's good for now, It doesn't have a huge variety of bacteria, so even though you are using it you might want to add another one for more diversity.

I'm jealous! You work at a Whole Foods! They have so much cool stuff (though it's expensive), but the nearest one to me is 65 miles :( .

beachbirdie,

OK, thanks, I think I am going to try it. I will let you know how it goes.

Yes, Whole Foods has lots of great stuff! It is nice to work there, especially when you are having health issues! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to cristiana's topic in Related Issues & Disorders
      6

      Healthy diet leading to terrible bloating

    2. - Scott Adams replied to cristiana's topic in Related Issues & Disorders
      6

      Healthy diet leading to terrible bloating

    3. - cristiana replied to cristiana's topic in Related Issues & Disorders
      6

      Healthy diet leading to terrible bloating

    4. - Scott Adams replied to LovintheGFlife's topic in Traveling with Celiac Disease
      1

      Traveling gluten-free in Ireland

    5. - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Prana Organics no longer GFCO-certified

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,981
    • Most Online (within 30 mins)
      7,748

    Margerose
    Newest Member
    Margerose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      That sounds very hernia inducing work! You confirm what I have suspected, I get pain just to the right of the umbilical hernia, I am sure there is a connection.  If do see my gastroenterologist I'll mention it again.   I can't help thinking I've also got an issue in my groin, perhaps a hernia threatening, I guess an ultrasound would be needed to confirm it.
    • Scott Adams
      For the Inguinal hernia I could definitely feel it, and it came with an obvious bulge that appeared soon after doing a project where I was drilling holes on concrete using a very old school regular hand drill with mason bit, instead of a hammer drill with mason bit--this left me squatting over the drill putting my weight on it for several hours (the hammer drill would not have required this level of stress, nor the time it took). Bad idea--learn from my mistake in being "lazy" and not renting (or buying) the proper tool for the job. My umbilical hernia was around for many years, and I didn't feel that one at all, so never worried about it. My doctor basically recommended doing both in one surgery, which seemed like wise move.  As far as the possible IBS connection to either, it was definitely apparent after getting the Inguinal hernia, which is why I asked my doctor about that, but after getting both fixed I realize that the umbilical hernia likely also had mild IBS effects over the years.
    • cristiana
      @Scott Adams  Strange question but can you actually feel your hernia?  I have so many abdominal lumps and bumps of longstanding (my GP said it's fat!) that I sometimes wonder if an inguinal hernia could be missed.  I am quite sure some of my pain is from my umbilical hernia but that first came about courtesy of my second pregnancy.
    • Scott Adams
      Thanks for sharing this! I've always wanted to go to Ireland, and we did include Ireland in a recent top travel destinations article, so it's nice to know that we got that right:  
    • Scott Adams
      That's too bad--this recent topic might be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.