Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Had 4 Bites


Janelson

Recommended Posts

Janelson Apprentice

So on Sunday (it is now friday) I thought that I had grabed a gluten-free ice cream...do you ever notice that the world flour does not stand out until about the 4th bite in. Well I was re-reading the ingredients....I always read ingredients when eating something even if I have had it a million times. Anyeays so there was wheat in it. That next day my stomach was bloated and I felt uncomfortable but nothing too bad. Then came the headaches and yesterday my back hurt so bad I was in tears! My hair is starting to fall out again and I have such bad brain fog. The other day I forgot my parents home phone number which has been the same since I was a little girl. I missed work and have a chance of getting laid off and missed 2 test at school. All because I had 4 bites of ice cream. Its not fair and nobody understands. They all just look at me and shrug their shoulders. Its like I am crying for help to them and they cant hear me or dont care to listen. Sorry needed to vent a litlle thanks guys.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I'm sorry that you got glutened by ice cream. It can be so easy to overlook those ingredients, I know, which is why I'll often read them over, slowly, two or three times! Would a doctor's note to your workplace help at all?

bluelotus Contributor

I am so sorry that happened to you, but I completely understand. Not only do you miss the obvious ingrediants, but it is so easy to justify eating something with ingrediants that don't sound alarm bells ("well, spices wouldn't have wheat, they'd have to say that".......mistake). I've been there so many times. I am in the process of writing a paper for my degree program and it is going so slowly b/c I've not only been glutened several times but b/c I think I have other allergies that mimic being glutened. Its awful. I hate it and my heart goes out to you. Unfortuneately, I don't have any advice for you...except maybe as said above about a doctor's note. But, how well will a teacher/employer understand and how many notes will they accept?? I have not idea....... If we can educate more people on our condition, maybe others (employers, teachers) will accept/understand our condition more. Good luck and know that you aren't alone.

nettiebeads Apprentice

I missed work and have a chance of getting laid off and missed 2 test at school. All because I had 4 bites of ice cream. Its not fair and nobody understands. They all just look at me and shrug their shoulders. Its like I am crying for help to them and they cant hear me or dont care to listen. Sorry needed to vent a litlle thanks guys.

<{POST_SNAPBACK}>

jenvan Collaborator

janelson-

it happens to the best of us :( hope you recover quickly! i love edy's icecream--and if you go online, it says whether each flavor is gluten-free or not... FYI

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.