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Heart Palpations

araceli

By araceli
in Coping with Celiac Disease

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araceli Newbie
araceli
Posted

For the past yr, I have had tachycardia and heart palpations, ringing of the ears and panic attacks when this occurs, I have had my thyriod checked, saw a heart specialist and they have ruled this all out, I have always had gastric issues good majority of my adult life, nausea, bloating,diarrhea, constipation and chronic gastritist.My primary Dr. tested me for celiac and had a endoscopy and came back positve for it. It does explain all the gastric issues but still concerned about my other issues, they just cant figure it out and im wondering is anyone else experincing this? I am slowly tring to change my diet but its not easy. I have found when I do eat gluten filled products, Im up all night, having palpataions and feel like I have poison and toxins in my body I also constanly have my arm, legs or all over my body jerking right before i try to fall asleep. This is driving me crazy and In fear of my life. Its so discouraging that they cant figure out whats wrong and I fear its something pretty serious, I did have a head cat scan and it also came back normal! Thank god! But if anyone can give me some info or are experincing the same feedback would be so appriciated. I feel like Im going nuts!!!!!1 Help

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mommida Enthusiast
mommida
Posted

OK

If you are going gluten free... It's all or nothing. "gluten lite' is a complete waste of time. imo

I did have some symptoms like that after taking an allergy medication just before a serious gall bladder attack. i have had my gall bladder removed for about 3 years and haven't had problems since.

Go back to a doctor and have your blood pressure checked, thyroid, and gall bladder.

rosetapper23 Explorer
rosetapper23
Posted

Your doctor should be checking your Vitamin B levels--especially B12 and folic acid. Heart palpitations are very common with low Vitamin B12, and you can take Methyl B12 sublingually. It's an over-the-counter supplement, very inexpensive, and immediately effective. BTW, all of your vitamin and mineral levels should be checked.

justlisa Apprentice
justlisa
Posted

Araceli...

Stop eating gluten... You've been diagnosed so that's not even a question mark for you.

With that said...

I have heart palpitations as well. I've been gluten-free since July 11 and already I see a huge improvement. I take atenolol for the palpitations (twice a day)... However, I've not really felt I need the dose at night. I will be checking with my doc at next visit to see if I can transition to just 1 dose in the morning. With the way I've been feeling, I'm quite hopeful that the palpitations will go away completely.

I see other symptoms improving, too. Feels so good to have real hope for the first time in years!

So...best advice... Do what your body needs...stop the gluten...

eatmeat4good Enthusiast
eatmeat4good
Posted

You need to be all the way gluten free. Even though it is hard, you must get rid of the gluten, because even traces can cause your symptoms to continue. Cross contamination is enough to keep people from healing. Once you are gluten free you should be feeling better. My heart palpitations stopped completely as well as migraine headaches. I think you are feeling like you have poison and toxins in your body after you eat gluten because that is exactly what gluten is to a Celiac...poison. Read labels on everything and eliminate gluten so you can feel better.

rosetapper23 Explorer
rosetapper23
Posted

I should have added that magnesium levels are tied closely to heart health, too, and the American diet is low in magnesium. Celiacs tend to have very low levels at times....so you should DEFINITELY consider getting a magnesium supplement. If you're worried about how it might affect your stomach, two brands are easy on the digestive system: Bluebonnett's liquid magnesium and Nature's Way Magnesium Complex.

CampbellS Newbie
CampbellS
Posted

For the past yr, I have had tachycardia and heart palpations, ringing of the ears and panic attacks when this occurs, I have had my thyriod checked, saw a heart specialist and they have ruled this all out, I have always had gastric issues good majority of my adult life, nausea, bloating,diarrhea, constipation and chronic gastritist.My primary Dr. tested me for celiac and had a endoscopy and came back positve for it. It does explain all the gastric issues but still concerned about my other issues, they just cant figure it out and im wondering is anyone else experincing this? I am slowly tring to change my diet but its not easy. I have found when I do eat gluten filled products, Im up all night, having palpataions and feel like I have poison and toxins in my body I also constanly have my arm, legs or all over my body jerking right before i try to fall asleep. This is driving me crazy and In fear of my life. Its so discouraging that they cant figure out whats wrong and I fear its something pretty serious, I did have a head cat scan and it also came back normal! Thank god! But if anyone can give me some info or are experincing the same feedback would be so appriciated. I feel like Im going nuts!!!!!1 Help

I have had Pre Atrial Contractions or PAC, and Panic Attacks for years. Please insist that they check all the Vitamin B levels; B1,B6 and B12. My husband had to insist they did this. My B levels were so low I had to have IV's and daily injections for a while. If they are low you should start feeling a big difference with treatments. You must be very diligent in your gluten free diet as even traces or small amounts can damage your small intestines. The sooner you control it with no exceptions, the better you will feel. My analogy for celiac disease is to do the diet. Would you stick your finger into an electric socket knowing you would be shocked. My panic attacks have abated or are almost gone; my atrial fibrillation had improved markedly. Remember there is no cheating

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WitsEnd Rookie
WitsEnd
Posted

I had chest pains, dizziness, vertigo, migraines in addition to the gastro symptoms and they ask went away when I stopped eating gluten. it is hard to be gluten free at times, but it is so much easier than the stress I went through constantly thinking I was dying.

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    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
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      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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