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dani nero

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dani nero Community Regular

Got gluten-symptoms two days ago, and can't figure out why for the life of me. I was careful about what I put in my mouth, the house is 100% gluten-free, and yet here they are.

The only thing that is new is this leave-in conditioning serum which I used for the first time.

I did check the ingredients and nothing indicated that it could contain gluten. It only has sals which I thought would be ok since it's only applied to hair-tips. There is very limited information about it on the product's website and they don't even provide an email address. I'll have to call them, but thought I'd ask if anyone here knows in the meantime.

The Ingredients include:

Cyclopentasiloxane, Dimethiconol, C12-15 Alkyl Benzoate, Benzyl Salicylate, Linalool, Citronellol, Geraniol, Elaeis Guineesis oil/Palm Oil, Shorea Robusta butter/Shorea Robusta Seed Butter, Benzyl Alchohol, Eugenol, Perfume/Fragrance.

So anyone ever used this serum before and know if it's safe? Here's a picture of the product.

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    • mermaidluver22
      @Scott Adams Thank you so much for this thoughtful and encouraging reply 💛 It really helps me feel less alone navigating all of this! I’ve definitely been strict gluten-free, but I’ll admit — in the beginning, I honestly knew nothing about cross-contamination 😅 so it’s very possible my gut is still healing from that. I feel very abnormal because I am not a typical celiac or a typical Crohn's, so it makes me feel very stuck. 
    • mermaidluver22
      Thank you so much for this thoughtful and encouraging reply 💛 It really helps me feel less alone navigating all of this! I’ve definitely been strict gluten-free, but I’ll admit — in the beginning, I honestly knew nothing about cross-contamination 😅 so it’s very possible my gut is still healing from that. I feel very abnormal because I am not a typical celiac or a typical Crohn's, so it makes me feel very stuck. 
    • nanny marley
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    • Scott Adams
      It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains elevated despite a strict gluten-free diet, this could indicate ongoing healing or subtle gluten exposure. The ileal inflammation might still be related to celiac, though it’s good your doctor is ruling out other conditions like Crohn’s, given the nonspecific biopsy findings. Some people with celiac do report ileal involvement, particularly if they have refractory disease or delayed healing. Keeping close follow-up with your GI and possibly revisiting your diet for hidden gluten sources could help. Hang in there—it’s a journey, and you’re doing great by staying proactive!
    • mermaidluver22
      hi, how are u now? any answers?
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